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Ways to Help Chronically Ill Children

Ways to Help Chronically Ill Children
Author: Tammy Gagne
Publisher: Mitchell Lane Publishers, Inc.
Total Pages: 52
Release: 2010-12-23
Genre: Self-Help
ISBN: 161228129X

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All kids get sick now and then, but children who suffer from chronic illnesses don’t recover quickly from their diseases. They have to deal with being sick for long periods of time, sometimes indefinitely. Dealing with a chronic illness is no fun. Often it means staying in the hospital or at home, away from school and friends. It can also mean enduring painful medical procedures. All of this can make a chronically ill child feel sad, scared, and lonely at times. You may wonder if there is anything you can do to help. Whether you already know a person with a chronic illness or you want to make some new friends, the best gift you can give is your time. This book discusses ten different ways that you can help a child who must deal with a chronic illness. Some of the ideas are big, others are small, but all of them can make a true difference in the life of a chronically ill child.


When Your Child Has a Chronic Medical Illness

When Your Child Has a Chronic Medical Illness
Author: Frank J. Sileo
Publisher: American Psychological Association (APA)
Total Pages: 419
Release: 2021-01-26
Genre: Family & Relationships
ISBN: 9781433833816

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Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. When you're focused on ensuring your child gets the best possible treatments for their symptoms, it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.


In the Shadow of Illness

In the Shadow of Illness
Author: Myra Bluebond-Langner
Publisher: Princeton University Press
Total Pages: 321
Release: 2020-06-30
Genre: Medical
ISBN: 0691214700

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A revealing account of how families adapt to living with a chronically ill child What is it like to live with a child who has a chronic, life-threatening disease? What impact does the illness have on well siblings in the family? Myra Bluebond-Langner suggests that understanding the impact of the illness lies not in identifying deficiencies in the lives of those affected, but in appreciating how family members carry on with their lives in the face of the disease's intrusion. The Private Worlds of Dying Children, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, she turns her attention to the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis. Through a series of narrative portraits, she draws us into the daily lives of nine families of children at different points in the natural history of the illness—from diagnosis through the terminal phase. In these portraits, as family members talk about their experiences in their own words, we see how parents, well siblings, and the ill children themselves struggle, in different ways, to contain the intrusion of the disease into their lives. Bluebond-Langner looks at how parents adjust their priorities and their idea of what constitutes a normal life, how they try to balance the needs of other family members while caring for the ill child, and how they see the future. This context helps us understand how well siblings view the illness and how they relate to their ill sibling and parents. Since the issues raised are not unique to cystic fibrosis but are common to other chronic and life-threatening illnesses, this book will be of interest to all who study, care for, or live with the seriously ill.


Coping with Your Child's Chronic Illness

Coping with Your Child's Chronic Illness
Author: Alesia T. Barrett Singer M.a.
Publisher: Robert Reed Publishers
Total Pages: 92
Release: 2010
Genre: Family & Relationships
ISBN: 9781885003140

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A practical guide for parents who need support, ideas and resources for dealing with their child's chronic illness. Covers communicating with your child's doctor, educating yourself about your child's illness, talking to your child, schooling, and avoiding burn-out and depression.


Parenting Children with Health Issues

Parenting Children with Health Issues
Author: Foster Cline
Publisher:
Total Pages: 388
Release: 2007
Genre: Child development deviations
ISBN:

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Does your child have a health condition which requires special medical or dietary care? Whatever the health issue, you will learn the essential parenting skills you need to help your child comply with medical requirements, cope well with health challenges, and live a hope-filled life. Get practical and compassionate answers to your toughest questions as you discover effective ways to communicate about medical issues with children of all ages. This book will teach you how to: . Encourage your child to love life despite health challenges. . Handle refusal to take medication and do medical treatments. . Skillfully respond to your child's special emotional needs. . Avoid power struggles and other common parenting traps. . Promote responsibility without nagging or lecturing. . Navigate sibling, family and couple relationship issues. . Enable your child to make good self-care decisions.


A Different Dream for My Child

A Different Dream for My Child
Author: Jolene Philo
Publisher:
Total Pages: 0
Release: 2009
Genre: Chronically ill children
ISBN: 9781572933071

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Devotional meditations for parents of critically or chronically ill children.Author Jolene Philo shares lessons from her own life, as well as the stories of other parents.


Helping Children and Adolescents with Chronic and Serious Medical Conditions

Helping Children and Adolescents with Chronic and Serious Medical Conditions
Author: Nancy Boyd Webb
Publisher: John Wiley & Sons
Total Pages: 391
Release: 2010-10-28
Genre: Political Science
ISBN: 111801216X

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Praise for Helping Children and Adolescents with Chronic and Serious Medical Conditions A Strengths-Based Approach "Helping Children and Adolescents with Chronic and Serious Medical Conditionsprovides a wellspring of knowledge, from the theoretical to the clinical. The many vignettes and transcriptions immeasurably enrich the reader's understanding of the interventions and their broader applicability."—Barbara M. Sourkes, PhDJohn A. Kriewall and Elizabeth A. Haehl Director of Pediatric Palliative CareLucile Packard Children's Hospital at Stanford An important and practical guide to providing compassionate care and support to medically compromised children and their families Helping Children and Adolescents with Chronic and Serious Medical Conditions: A Strengths-Based Approach presents practical guidance on integrating the latest research into evidence-based practice to ensure the best client care. Edited by a top scholar in the field, this essential resource contains contributions from renowned specialists in various helping fields. Utilizing an inter-professional perspective, helping professionals will draw from the experiences and expertise of a wide range of medical professionals, providing a "window" into their roles, responsibilities, and challenges, offering the most effective approaches for working with this special population of children and their families. Equipping practitioners with the knowledge and skills needed to encourage children's resilience and help them build their emotional strengths, this book uses a caring yet authoritative tone and discusses: The emotional impact of illness on the individual and the family Child-life practice in hospitals School-based interventions for children and adolescents with medical conditions How to meet the spiritual as well as emotional needs of children with chronic and life-threatening illness With thoughtful coverage of positive helping approaches that encourage family and individual strengths, Helping Children and Adolescents with Chronic and Serious Medical Conditions: A Strengths-Based Approach is an invaluable resource for social workers, teachers, school counselors, and other mental health and medical professionals who work with medically challenged children and adolescents in every setting.


How to Be Sick

How to Be Sick
Author: Toni Bernhard
Publisher: Simon and Schuster
Total Pages: 217
Release: 2010-05-10
Genre: Self-Help
ISBN: 0861719263

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This life-affirming, instructive, and thoroughly inspiring book is a must-read for anyone who is - or who might one day be - sick. It can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or life-threatening illness. Authentic and graceful, How to be Sick reminds us of our limitless inner freedom, even under high degrees of suffering and pain. The author - who became ill while a university law professor in the prime of her career - tells the reader how she got sick and, to her and her partner's bewilderment, stayed that way. Toni had been a longtime meditator, going on long meditation retreats and spending many hours rigorously practicing, but soon discovered that she simply could no longer engage in those difficult and taxing forms. She had to learn ways to make "being sick" the heart of her spiritual practice - and through truly learning how to be sick, she learned how, even with many physical and energetic limitations, to live a life of equanimity, compassion, and joy. And whether we ourselves are ill or not, we can learn these vital arts from Bernhard's generous wisdom in How to Be Sick.