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Voices of the Chronically Ill

Voices of the Chronically Ill
Author: Mary Kalfoss
Publisher: Cambridge Scholars Publishing
Total Pages: 227
Release: 2023-08-09
Genre: Psychology
ISBN: 1527520374

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This book describes what it is like to embody chaos and liminality in living with a physical chronic illness and how these experiences are related to the loss and remaking of one’s sense of self. It also encourages readers to listen closely to the figurative language people use in trying to articulate the unspeakable. Focusing upon a wide array of narrative fragments gathered from first-person literary work and research, the author portrays how a conglomerate of sensations, feelings, and thoughts are embodied in the illness experience. The voices present in this text speak of vulnerability, suffering, and brokenness, yet also, endurance and fortitude. The ethics of philosopher Emmanuel Levinas provide the grounds for offering care lovingly. This book makes a significant contribution to helping students, practitioners and carers understand the chaos that is inherent, yet so often silenced, in the illness experience. This text could also be of interest to laypeople who are curious about how subjective illness is experienced, and to those who are ill who may be seeking affirmation for what they are experiencing.


The Patient's Voice

The Patient's Voice
Author: Jeanine Young-Mason
Publisher: F.A. Davis
Total Pages: 260
Release: 2015-12-15
Genre: Medical
ISBN: 080364471X

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See the world through a patient’s eyes…from other side of illness. Pause to see the world beyond the scientific and clinical. Each chapter in the book provides a brief memoir recounting an experience of illness, written either by the patient, a member of the patient’s family, or an advocate for the patient within the medical, legal, or judicial system. As you share their experiences, you’ll gain a deeper understanding of the importance of holistic, patient-centered care. Reviews of the 1st Edition… “...powerful stories...shed light on care giving, spiritual growth, altered self-concept and other aspects of chronic illness.”—ALS Newsletter on the Web “...speak about the most important things clearly, strongly as possible...to do anything else is precious waste of time.”—UMass Magazine “...these accounts...are deep reflections about living with afflictions, relationships, and interactions with the healthcare system.”—Nursing Spectrum "The Patient's Voice: Experiences of Illness is an outstanding collection of autobiographical essays. The 16 narratives, solicited specifically for this book, are skilfully written by both children and adults. The narratives themselves are intensely personal and powerful accounts of self understanding and human triumph over acute physical and psychiatric illness, and chronic disability. As the author notes in her preface, the contributors to The Patient's Voice are "known for their writing ability and the quality of their perceptions" (p. ix).This is a modest description, however, for the contributors are talented writers indeed."- Cathy Lysack, Wayne State University, Detroit MI


Missed and Dismissed Voices

Missed and Dismissed Voices
Author: Alexander Segall PhD
Publisher: University of Toronto Press
Total Pages: 236
Release: 2023-05-26
Genre: Health & Fitness
ISBN: 1487530471

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There is a complex relationship between illness and identity. Missed and Dismissed Voices aims to expose the impact of hidden health problems on the daily lives of a growing number of adults who live with chronic conditions and repeatedly face the challenge of trying to maintain their personal sense of healthiness across the life course. The book focuses on the meaning and management of both medically diagnosed chronic diseases and medically unexplained physical conditions or syndromes. In each case, people must decide whether to make their private suffering public. The book includes analysis derived from research literature, combined with illness narrative accounts of people in qualitative interviews and blog posts, to create fictional exemplary case studies for each of the chronic conditions examined. The common issues raised in these stories provide important insights into the process by which people manage to adapt to their changing health status and life circumstances. In this book, Alexander Segall, PhD, gives voice to chronically ill people who often have their life stories either missed or dismissed.


Work and Unseen Chronic Illness

Work and Unseen Chronic Illness
Author: Margaret Vickers
Publisher: Routledge
Total Pages: 303
Release: 2002-09-09
Genre: Business & Economics
ISBN: 1134544499

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In an increasingly ageing society, medicine, hygiene and nutrition have reduced the impact of acute and life-threatening illnesses. However, whilst we are living longer, the chance of developing or contracting a chronic illness is increasing. There are a growing number of working adults affected by chronic health conditions that may be largely invisible to those around them. In this book, the author explores the 'silent' problem of unseen illness at work. The author employs qualitative research methods to challenge the idea that if you look well, you must be well. While demonstrating the effectiveness of this controversial methodology, she uses it to expose the voices of a group of marginalized workplace actors who have hitherto remained unheard. Stories from people with cancer, multiple sclerosis, endometriosis and other illnesses are interspersed with the author's reflections about life and work with illness that others cannot see. These stories reflect a passage of trauma and marginalization, but also foreground themes of survival.


Ordinary Lives

Ordinary Lives
Author: Irving Kenneth Zola
Publisher: Cambridge [Mass.] : Apple-wood Books
Total Pages: 234
Release: 1982
Genre: Fiction
ISBN:

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Strong at the Broken Places

Strong at the Broken Places
Author: Richard M. Cohen
Publisher: Harper Collins
Total Pages: 414
Release: 2009-03-17
Genre: Biography & Autobiography
ISBN: 0061752983

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The bestselling author of Blindsided, Richard M. Cohen spent three years chronicling the lives of five diverse "citizens of sickness": Denise, who suffers from ALS; Buzz, whose Christian faith helps him deal with his non-Hodgkin's lymphoma; Sarah, a determined young woman with Crohn's disease; Ben, a college student with muscular dystrophy; and Larry, whose bipolar disorder is hidden within. Differing in age and gender, race and economic status, all five are determined to live life on their own terms. In Strong at the Broken Places, Cohen shares these inspirational and revealing stories, which offer lessons for us all—–on self-determination, on courage in the face of adversity and public ignorance, on keeping hope alive. We are all strong at the broken places—stronger than we think.


Chronic Illness Chronicles: Stories of Resilience and Hope

Chronic Illness Chronicles: Stories of Resilience and Hope
Author: Bev Hill
Publisher: Richards Education
Total Pages: 113
Release:
Genre: Health & Fitness
ISBN:

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"Chronic Illness Chronicles: Stories of Resilience and Hope" is an uplifting and comprehensive guide for individuals navigating the challenges of chronic illness. This book combines inspiring personal stories with practical advice, coping strategies, and holistic approaches to help readers manage their conditions and live fulfilling lives. From understanding the complexities of chronic illness to finding hope and inspiration, this book offers a wealth of information and support. Whether you are newly diagnosed or have been living with a chronic condition for years, "Chronic Illness Chronicles" provides the tools and encouragement needed to thrive in the face of adversity.


Hear My Voice

Hear My Voice
Author: Heather Dean
Publisher: Rowman & Littlefield
Total Pages: 113
Release: 2019-12-16
Genre: Education
ISBN: 147585336X

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Today’s educators face challenges unparalleled by previous generations of teachers. A typical classroom is comprised of students from diverse backgrounds, varying languages and unique backgrounds. In order for educators to meet the needs of the individual students within their classes, they must have a grasp on the challenges facing their students. Currently in education, the focus is on marginalized students and the impact their circumstances have on their ability to learn. This book is designed to make the various hardships encountered by many students more personal in order to give teachers insight into the very real needs of today’s students. Educators are familiar with the data regarding students; however, it is through the individual story of students that teachers are reminded of their vital role in nurturing and educating the students that fill their desks each year. This book will pair student narratives with brain research to provide valuable insights to K-12 educators and university professors.


Chronicity Enquiries: Making Sense of Chronic Illness

Chronicity Enquiries: Making Sense of Chronic Illness
Author: Li Zhenyi
Publisher: BRILL
Total Pages: 192
Release: 2019-01-04
Genre: Psychology
ISBN: 1848881509

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This volume was first published by Inter-Disciplinary Press in 2013. Chronic illness, together with people experiencing or treating it, became almost mute to predominant biomedical narration pervasive in mainstream media, education, medical and pharmaceutical industry. Contributors in this book aim to represent, discuss, and preserve the vanishing voices and stories on chronic illness from dimensions beyond medicine so that we may make sense of chronicity with the diversity it deserves. The book also incorporates research articles which share important stories about chronicity. These stories, same as chronic illness in our world, should not be treated in a ‘standardised’ way. Each reader, we hope, will relate the meanings of chronicity in this book to his or her own world.


Breaking Eggs: Finding New Meaning With Chronic Illness

Breaking Eggs: Finding New Meaning With Chronic Illness
Author: Lucia Amsden
Publisher: Outskirts Press
Total Pages: 145
Release: 2013-01-15
Genre: Biography & Autobiography
ISBN: 1432796100

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Breaking Eggs: Finding New Meaning with Chronic Illness, is unique. One Amazon reviewer put it like this: This account is written from a life well examined. Lucia Amsden serves up her own struggles with candor and deep wisdom in coming to grips with chronic illness. Yet this is much more than one person's story. Here are helpful suggestions on how to cope, grow, and re-frame ANY toxic negativity, no matter the circumstances. Enter into her heroic story -- and the stories of others --and be inspired by shared experiences and uplifting outlooks. Breaking Eggs won the 2013 New Mexico-Arizona Book Award, and the 2014 Reviewers Choice Award.