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Pediatric Evaluation of Disability Inventory (PEDI)

Pediatric Evaluation of Disability Inventory (PEDI)
Author: Stephen M. Haley
Publisher: Therapy Skill Builders
Total Pages: 322
Release: 1992
Genre: Psychology
ISBN:

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A comprehensive clinical assessment instrument that samples key functional capabilities and performance in children


Cerebral Palsy

Cerebral Palsy
Author: Freeman Miller
Publisher: JHU Press
Total Pages: 537
Release: 2006-05-08
Genre: Health & Fitness
ISBN: 0801883547

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When a child has a health problem, parents want answers. But when a child has cerebral palsy, the answers don't come quickly. A diagnosis of this complex group of chronic conditions affecting movement and coordination is difficult to make and is typically delayed until the child is eighteen months old. Although the condition may be mild or severe, even general predictions about long-term prognosis seldom come before the child's second birthday. Written by a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children, this authoritative resource provides parents and families with vital information that can help them cope with uncertainty. Thoroughly updated and revised to incorporate the latest medical advances, the second edition is a comprehensive guide to cerebral palsy. The book is organized into three parts. In the first, the authors describe specific patterns of involvement (hemiplegia, diplegia, quadriplegia), explain the medical and psychosocial implications of these conditions, and tell parents how to be effective advocates for their child. In the second part, the authors provide a wealth of practical advice about caregiving from nutrition to mobility. Part three features an extensive alphabetically arranged encyclopedia that defines and describes medical terms and diagnoses, medical and surgical procedures, and orthopedic and other assistive devices. Also included are lists of resources and recommended reading.


The Pediatric Evaluation of Disability Inventory

The Pediatric Evaluation of Disability Inventory
Author: Patricia Jensen
Publisher:
Total Pages: 50
Release: 1993
Genre: Children with disabilities
ISBN:

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Abstract: The utilization of occupational therapy in pediatrics has increased in the last two decades due to the passing of Public Law 94-142, a law enacted to ensure adequate education for all disabled children and the new positions available in the neonatal units of hospitals (Hopkins & Smith, 1988). Despite the agreement among therapists that functional assessments for infants and young children are valuable, few standardized instruments have been developed for these age groups (Feldman et al, 1990). Recently, to answer the need for an assessment tool to identify the functional abilities in children, Tufts University School of Medicine under a grant from the National Institute of Disability and Rehabilitation Research, has developed the Pediatric Evaluation of Disability Inventory (PEDI) (Haley, Faas, Coster, Webster, & Gans, 1989). According to Keith (1984), "the endless spawning of new and poorly developed functional assessments is wasteful for medical rehabilitation." This is why it is important during the present standardization period of the PEDI that thorough reliability and validity investigations be conducted. Since initial validity studies have shown promising results, present efforts are now focusing on establishing the reliability of the PEDI.


Patient-Reported Outcomes in Performance Measurement

Patient-Reported Outcomes in Performance Measurement
Author: David Cella
Publisher: RTI Press
Total Pages: 97
Release: 2015-09-17
Genre: Medical
ISBN: 193483114X

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Patient-reported outcomes (PROs) are measures of how patients feel or what they are able to do in the context of their health status; PROs are reports, usually on questionnaires, about a patient's health conditions, health behaviors, or experiences with health care that individuals report directly, without modification of responses by clinicians or others; thus, they directly reflect the voice of the patient. PROs cover domains such as physical health, mental and emotional health, functioning, symptoms and symptom burden, and health behaviors. They are relevant for many activities: helping patients and their clinicians make informed decisions about health care, monitoring the progress of care, setting policies for coverage and reimbursement of health services, improving the quality of health care services, and tracking or reporting on the performance of health care delivery organizations. We address the major methodological issues related to choosing, administering, and using PROs for these purposes, particularly in clinical practice settings. We include a framework for best practices in selecting PROs, focusing on choosing appropriate methods and modes for administering PRO measures to accommodate patients with diverse linguistic, cultural, educational, and functional skills, understanding measures developed through both classic and modern test theory, and addressing complex issues relating to scoring and analyzing PRO data.