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Unforgotten

Unforgotten
Author: Bianca Brijnath
Publisher: Berghahn Books
Total Pages: 239
Release: 2014-07-01
Genre: Social Science
ISBN: 1782383557

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As life expectancy increases in India, the number of people living with dementia will also rise. Yet little is known about how people in India cope with dementia, how relationships and identities change through illness and loss. In addressing this question, this book offers a rich ethnographic account of how middle-class families in urban India care for their relatives with dementia. From the husband who wakes up at 3 am to feed his wife ice-cream to the daughters who gave up employment for seven years to care for their mother with dementia, this book illuminates the local idioms on dementia and aging, the personal experience of care-giving, the functioning of stigma in daily life, and the social and cultural barriers in accessing support.


The New Culture of Dementia Care

The New Culture of Dementia Care
Author: Thomas Marris Kitwood
Publisher:
Total Pages: 80
Release: 1995
Genre: Dementia
ISBN: 9781874790174

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This book, which is based both on practitioners' experience and on detailed research, sets out some of the key elements of a culture of care in which the person comes first. It has a powerful message for all who work in residential settings and day centres, as well as for the whole context of community care.


Changing the Culture for Dementia Care

Changing the Culture for Dementia Care
Author: Randy L. Griffin
Publisher: PHC Publishing Group
Total Pages: 139
Release: 2011-11-30
Genre: Alzheimer's disease
ISBN: 9781937661014

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Thinking about Dementia

Thinking about Dementia
Author: Annette Leibing
Publisher: Rutgers University Press
Total Pages: 263
Release: 2006
Genre: Health & Fitness
ISBN: 0813538033

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Cultural responses to most illnesses differ; dementia is no exception. These responses, together with a society's attitudes toward its elderly population, affect the frequency of dementia-related diagnoses and the nature of treatment. Bringing together essays by nineteen respected scholars, this unique volume approaches the subject from a variety of angles, exploring the historical, psychological, and philosophical implications of dementia. Based on solid ethnographic fieldwork, the essays employ a cross-cultural perspective and focus on questions of age, mind, voice, self, loss, temporality, memory, and affect. Taken together, the essays make four important and interrelated contributions to our understanding of the mental status of the elderly. First, cross-cultural data show the extent to which the aging process, while biologically influenced, is also very much culturally constructed. Second, detailed ethnographic reports raise questions about the behavioral criteria used by health care professionals and laymen for defining the elderly as demented. Third, case studies show how a diagnosis affects a patient's treatment in both clinical and familial settings.; Finally, the collection highlights the gap that separates current biological understandings of aging from its cultural meanings. As Alzheimer's disease and other forms of dementia continue to command an ever-increasing amount of attention in medicine and psychology, this book will be essential reading for anthropologists, social scientists, and health care professionals.


Dementia Care: International Perspectives

Dementia Care: International Perspectives
Author: Alistair Burns
Publisher: Oxford University Press
Total Pages: 384
Release: 2019-02-14
Genre: Medical
ISBN: 0192515594

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Dementia is a challenge facing health and social care around the world. Due to factors such as growing elderly populations, improved recognition, and diagnosis, the number of people with the illness is set to double over the next two decades. As a result, improving the quality of life for dementia patients and carers is an international priority. Dementia Care: International Perspectives is a comprehensive resource offering a global view of the clinical management and resources offered to carers and patients. Featuring 47 country profiles across 5 continents, this resource offers invaluable insights into dementia care across borders and different cultures. Each country profile features a helpful summary of key points, and contains an up-to-date, concise discussion on the clinical management of dementia within the country. This unique compendium has been written in collaboration with the International Dementia Alliance (IDEAL) to develop understandings of clinical practice and services available around the world, hoping to unify ideas and ultimately improve quality of care. Written and edited by the world's leading experts, Dementia Care: International Perspectives is a useful tool for researchers, clinicians, policy makers, academics, and international commentators wishing to expand their knowledge of the subject.


The Problem of Alzheimer's

The Problem of Alzheimer's
Author: Jason Karlawish
Publisher: St. Martin's Press
Total Pages: 269
Release: 2021-02-23
Genre: Health & Fitness
ISBN: 1250218748

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A definitive and compelling book on one of today's most prevalent illnesses. In 2020, an estimated 5.8 million Americans had Alzheimer’s, and more than half a million died because of the disease and its devastating complications. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2050. Part case studies, part meditation on the past, present and future of the disease, The Problem of Alzheimer's traces Alzheimer’s from its beginnings to its recognition as a crisis. While it is an unambiguous account of decades of missed opportunities and our health care systems’ failures to take action, it tells the story of the biomedical breakthroughs that may allow Alzheimer’s to finally be prevented and treated by medicine and also presents an argument for how we can live with dementia: the ways patients can reclaim their autonomy and redefine their sense of self, how families can support their loved ones, and the innovative reforms we can make as a society that would give caregivers and patients better quality of life. Rich in science, history, and characters, The Problem of Alzheimer's takes us inside laboratories, patients' homes, caregivers’ support groups, progressive care communities, and Jason Karlawish's own practice at the Penn Memory Center.


Dementia, Culture and Ethnicity

Dementia, Culture and Ethnicity
Author: Julia Botsford
Publisher: Jessica Kingsley Publishers
Total Pages: 330
Release: 2015-04-21
Genre: Social Science
ISBN: 0857008811

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With contributions from experienced dementia practitioners and care researchers, this book examines the impact of culture and ethnicity on the experience of dementia and on the provision of support and services, both in general terms and in relation to specific minority ethnic communities. Drawing together evidence-based research and expert practitioners' experiences, this book highlights the ways that dementia care services will need to develop in order to ensure that provision is culturally appropriate for an increasingly diverse older population. The book examines cultural issues in terms of assessment and engagement with people with dementia, challenges for care homes, and issues for supporting families from diverse ethnic backgrounds in relation to planning end of life care and bereavement. First-hand accounts of living with dementia from a range of cultural and ethnic backgrounds give unique perspectives into different attitudes to dementia and dementia care. The contributors also examine recent policy and strategy on dementia care and the implications for working with culture and ethnicity. This comprehensive and timely book is essential reading for dementia care practitioners, researchers and policy makers.


Care-Giving In Dementia 2

Care-Giving In Dementia 2
Author: Gemma Jones
Publisher: Routledge
Total Pages: 393
Release: 2013-11-19
Genre: Psychology
ISBN: 1317761669

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Care-giving in dementia is a new speciality with its own rapidly growing body of knowledge. This second volume of contributions from leading practitioners and researchers around the world is a handbook for all those involved in hands on caring, or in planning care, for persons with dementia. Volume 2 of Care-Giving in Dementia provides a rich source of information on most recent thinking about individualised long-term care of both dementia sufferers and their families. Key themes in Volume 2 are: the subjective experience of dementia the provision of care for family carers differing cultural perspectives of dementia the crucial importance of life-history information for understanding a person's reaction to their illness. Chapters on the search for an ethical framework and the best environment within which to provide care are particularly timely.


Voices in Dementia Care

Voices in Dementia Care
Author: William A. Haseltine
Publisher: Greenleaf Book Group
Total Pages: 265
Release: 2020-01-07
Genre: Health & Fitness
ISBN: 1626346941

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Cognitive disorders take a toll on everyone—the person living with the condition, their family, friends, caregivers, and the communities they live in. Most of the public's interest has been in the medical research area for this devastating disease, and advice is desperately needed from those who have created innovative solutions with their own first-hand experience. Voices in Dementia Care is based on a series of interviews with dementia care experts across Europe and the United States and with people living day-to-day with the condition. It provides an intimate look at the challenges of delivering high-quality dementia care with limited resources. The book provides readers a list of best practices that can be adapted and applied in the home and in institutional settings. Voices in Dementia Care is a must-read for anyone caring for loved ones with Alzheimer’s, dementia, or other cognitive disorders. From Voices in Dementia Care— In these pages, we include transcripts of our interviews with the elder care and long-term care providers we have interviewed about dementia care. The voices of these care professionals are important to hear in their entirety, as they describe the nuances of the challenges inherent in delivering innovative high quality dementia care with limited resources. Based on our analysis of these interviews, we have identified the critical best practices that we believe all elder and long-term care providers should consider when delivering care to people living with dementia. These best practices can be adapted and applied by the informal caregiver as well—the sister, brother, child, or other loved one who may be responsible for caring for a person living with dementia outside of a traditional care environment.