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The Disability Bioethics Reader

The Disability Bioethics Reader
Author: Joel Michael Reynolds
Publisher: Taylor & Francis
Total Pages: 543
Release: 2022-05-30
Genre: Philosophy
ISBN: 1000587215

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The Disability Bioethics Reader is the first introduction to the field of bioethics presented through the lens of critical disability studies and the philosophy of disability. Introductory and advanced textbooks in bioethics focus almost entirely on issues that disproportionately affect disabled people and that centrally deal with becoming or being disabled. However, such textbooks typically omit critical philosophical reflection on disability. Directly addressing this omission, this volume includes 36 chapters, most appearing here for the first time, that cover key areas pertaining to disability bioethics, such as: state-of-the-field analyses of modern medicine, bioethics, and disability theory health, disease, and the philosophy of medicine issues at the edge- and end-of-life, including physician-aid-in-dying, brain death, and minimally conscious states enhancement and biomedical technology invisible disabilities, chronic pain, and chronic illness implicit bias and epistemic injustice in health care disability, quality of life, and well-being race, disability, and healthcare justice connections between disability theory and aging, trans, and fat studies prenatal testing, abortion, and reproductive justice. The Disability Bioethics Reader, unlike traditional bioethics textbooks, also engages with decades of empirical and theoretical scholarship in disability studies—scholarship that spans the social sciences and humanities—and gives serious consideration to the history of disability activism.


Disability Bioethics

Disability Bioethics
Author: Jackie Leach Scully
Publisher: Rowman & Littlefield
Total Pages: 220
Release: 2008
Genre: Bioethics
ISBN: 9780742551220

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Jackie Leach Scully argues that bioethics cannot avoid the task of considering the moral meaning of disability in humans - beyond simply regulating reproductive choices or new areas of biomedical research. By focusing on the experiential and empirical reality of impairment, and drawing on recent work in disability studies, Scully brings new attention to complex ethical questions surrounding disability. Impairment is variously considered as a set of social relations and practices, as experienced embodiment, and as an emancipatory movement, as well as a biomedical phenomenon. In this way, disability is joined to the general late-twentieth century trend of attending to difference as a significant and central axis of subjectivity and social life.


The Life Worth Living

The Life Worth Living
Author: Joel Michael Reynolds
Publisher: U of Minnesota Press
Total Pages: 181
Release: 2022-05-17
Genre: Philosophy
ISBN: 1452961603

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A philosophical challenge to the ableist conflation of disability and pain More than 2,000 years ago, Aristotle said: “let there be a law that no deformed child shall live.” This idea is alive and well today. During the past century, Supreme Court Justice Oliver Wendell Holmes Jr. argued that the United States can forcibly sterilize intellectually disabled women and philosopher Peter Singer argued for the right of parents to euthanize certain cognitively disabled infants. The Life Worth Living explores how and why such arguments persist by investigating the exclusion of and discrimination against disabled people across the history of Western moral philosophy. Joel Michael Reynolds argues that this history demonstrates a fundamental mischaracterization of the meaning of disability, thanks to the conflation of lived experiences of disability with those of pain and suffering. Building on decades of activism and scholarship in the field, Reynolds shows how longstanding views of disability are misguided and unjust, and he lays out a vision of what an anti-ableist moral future requires. The Life Worth Living is the first sustained examination of disability through the lens of the history of moral philosophy and phenomenology, and it demonstrates how lived experiences of disability demand a far richer account of human flourishing, embodiment, community, and politics in philosophical inquiry and beyond.


The Disability Studies Reader

The Disability Studies Reader
Author: Rebecca Sanchez
Publisher:
Total Pages: 568
Release: 2021
Genre: Disability studies
ISBN: 9780367536077

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Disability studies has gone from being a relatively unknown field to one of increasing importance in the social sciences. The sixth edition of The Disability Studies Reader brings in new topics, scholars, writers, artists, and essays to address links between ableism and imperialism; disability bioethics; and the relationship between disability agency, social policy, and decarceration. There are as many meanings and experiences of disability as there are disabled people, and this diversity ensures that the work of the field will continue to evolve. Fully revised and brought up to date, this volume addresses a wider range of geographical and cultural contexts, and many pay specific attention to the intersections between disability and race, gender, and sexuality. The growing interest and activism around the issue of neuroatypicality is also reflected in a new section on neurodivergence. The Disability Studies Reader remains an excellent touchstone for students in disability studies courses across the disciplines, including the social sciences, English literature, and psychology.


Disability, Difference, Discrimination

Disability, Difference, Discrimination
Author: Anita Silvers
Publisher: Rowman & Littlefield
Total Pages: 358
Release: 1998
Genre: Law
ISBN: 9780847692231

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How should we respond to individuals with disabilities? What does it mean to be disabled? Over fifty million Americans, from neonates to the fragile elderly, are disabled. Some people say they have the right to full social participation, while others repudiate such claims as delusive or dangerous. In this compelling book, three experts in ethics, medicine, and the law address pressing disability questions in bioethics and public policy. Anita Silvers, David Wasserman, and Mary B. Mahowald test important theories of justice by bringing them to bear on subjects of concern in a wide variety of disciplines dealing with disability. They do so in the light of recent advances in feminist, minority, and cultural studies, and of the groundbreaking Americans with Disabilities Act. Visit our website for sample chapters!


Why I Burned My Book and Other Essays on Disability

Why I Burned My Book and Other Essays on Disability
Author: Paul K. Longmore
Publisher: Temple University Press
Total Pages: 294
Release: 2003
Genre: Health & Fitness
ISBN: 9781592137756

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'Personal inclination made me a historian. Personal encounter with public policy made me an activist.'


Handbook of Disability Studies

Handbook of Disability Studies
Author: Gary L. Albrecht
Publisher: SAGE Publications
Total Pages: 865
Release: 2001-05-24
Genre: Medical
ISBN: 1452212538

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This path-breaking international handbook of disability studies signals the emergence of a vital new area of scholarship, social policy and activism. Drawing on the insights of disability scholars around the world and the creative advice of an international editorial board, the book engages the reader in the critical issues and debates framing disability studies and places them in an historical and cultural context. Five years in the making, this one volume summarizes the ongoing discourse ranging across continents and traditional academic disciplines. To provide insight and perspective, the volume is divided into three sections: The shaping of disability studies as a field; experiencing disability; and, disability in context. Each section, written by world class figures, consists of original chapters designed to map the field and explore the key conceptual, theoretical, methodological, practice and policy issues that constitute the field. Each chapter provides a critical review of an area, positions and literature and an agenda for future research and practice. The handbook answers the need expressed by the disability community for a thought provoking, interdisciplinary, international examination of the vibrant field of disability studies. The book will be of interest to disabled people, scholars, policy makers and activists alike. The book aims to define the existing field, stimulate future debate, encourage respectful discourse between different interest groups and move the field a step forward.


The Future of the Disabled in Liberal Society

The Future of the Disabled in Liberal Society
Author: Hans S. Reinders
Publisher:
Total Pages: 300
Release: 2000
Genre: Health & Fitness
ISBN:

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Questioning developments in human genetic research from the perspective of people with mental disabilities and their families, Reinders (ethics and mental disability, Vrije U., Amsterdam) argues that using terms such as disease and defect to describe conditions that genetic engineering might eliminate, may also be suggesting that disabled lives are deplorable and horrific. Focusing too narrowly on preventing disabled lives, he warns, is at odds with a commitment to including disabled people fully in society. Annotation copyrighted by Book News Inc., Portland, OR


The Bioethics Reader

The Bioethics Reader
Author: Ruth F. Chadwick
Publisher: Wiley-Blackwell
Total Pages: 624
Release: 2007-09-04
Genre: Medical
ISBN:

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'The Bioethics Reader' traces some of the most important concerns of the 1980s, such as the ethics of euthanasia, reproductive technologies, the allocation of scarce medical resources, surrogate motherhood, and a range of issues debated today, particularly in the field of genetics.


Bioethics and Disability

Bioethics and Disability
Author: Alicia Ouellette
Publisher: Cambridge University Press
Total Pages: 387
Release: 2011-04-25
Genre: Law
ISBN: 1139503758

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Bioethics and Disability provides tools for understanding the concerns, fears and biases that have convinced some people with disabilities that the health care setting is a dangerous place and some bioethicists that disability activists have nothing to offer bioethics. It wrestles with the charge that bioethics as a discipline devalues the lives of persons with disabilities, arguing that reconciling the competing concerns of the disability community and the autonomy-based approach of mainstream bioethics is not only possible, but essential for a bioethics committed to facilitating good medical decision making and promoting respect for all persons, regardless of ability. Through in-depth case studies involving newborns, children and adults with disabilities, it proposes a new model for medical decision making that is both sensitive to and sensible about the fact of disability in medical cases.