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Speaking Honestly with Sick and Dying Children and Adolescents

Speaking Honestly with Sick and Dying Children and Adolescents
Author: Dietrich Niethammer
Publisher: JHU Press
Total Pages: 236
Release: 2012-06
Genre: Medical
ISBN: 1421404567

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Niethammer, a prominent paediatric oncologist, explains why it is so important to speak frankly and respectfully to young patients about their disease. The question at the heart of this book is how children and adolescents feel and think about death and dying.


Befriending the North Wind

Befriending the North Wind
Author: Robyn Boeré
Publisher: Augsburg Fortress Publishers
Total Pages: 244
Release: 2023
Genre: Children and death
ISBN: 1506481833

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Befriending the North Wind is about the moral lives of children and their agency in decisions about death. It examines the dimensions of human meaning children reveal and the new horizons they open to us. It asserts that children can die a good death and that they can and should have a voice in their end-of-life care.


Understanding Death and Dying

Understanding Death and Dying
Author: Frank E. Eyetsemitan
Publisher: SAGE Publications
Total Pages: 549
Release: 2020-07-16
Genre: Psychology
ISBN: 1506376215

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Understanding Death and Dying teaches students about death, dying, bereavement, and afterlife beliefs by asking them to apply this content to their lives and to the world around them. Students see differing cultural experiences discussed in context with key theories and research. The text’s pedagogy delivers relevant multi- and cross-cultural applications and connections across topics. This helps students evaluate their personal assumptions and appreciate how the content applies to their own current and future roles as individuals, family members, work colleagues, and as part of a community. The text simultaneously challenges learners to consider their own perspectives and to think critically about the parallels between their own lives and different cultures. Included with this title: The password-protected Instructor Resource Site (formally known as SAGE Edge) offers access to all text-specific resources, including a test bank and editable, chapter-specific PowerPoint® slides.


Integrating Therapeutic Play Into Nursing and Allied Health Practice

Integrating Therapeutic Play Into Nursing and Allied Health Practice
Author: Judi A. Parson
Publisher: Springer Nature
Total Pages: 214
Release: 2023-01-01
Genre: Medical
ISBN: 3031169387

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This book helps support developmentally sensitive nursing and allied health practice by integrating the therapeutic powers of play into child and adolescent health care service provision. It is designed to link play, child development, neuroscience, biopsychosocial and attachment theories with the biomedical model of health. Nurses and allied health professionals work with children aged between 0-18 years and with diverse childhood illnesses, injuries, diseases, disorders, and conditions, and are therefore in a prime position to understand and support children through potentially painful and traumatic health care experiences. Understanding of the role of play and the application of the therapeutic powers of play in communicating with children and families has the potential to significantly optimise paediatric care. The theory and play based strategies, tools and techniques presented in this book assist nurses and health care professionals to engage with children in an age-appropriate manner and ‘speak’ with children through their natural language of play, to enhance comprehension, coping, resiliency, and healing. Play is recognised as a sequentially developing ability and can be aligned with the child’s age and stage of life. Play based approaches can be placed on a continuum from fully child led or non-directive play to adult facilitated educative play. Medical information can be tailored according to the various points along this continuum to inform clinical reasoning and to help children prepare for procedures, recover from medical interventions and / or make sense of their diagnosis. Whilst this book is directed at nurses and allied health professionals who work with children and their families, it may also be a valuable resource for medical and other professionals in community or educational settings to work systemically as a team. The book takes the reader on a journey to illustrate various professional and therapeutic roles in how to playfully engage children through a range of case vignettes.


Living in Death’s Shadow

Living in Death’s Shadow
Author: Emily K. Abel
Publisher: JHU Press
Total Pages: 181
Release: 2017-02-28
Genre: Medical
ISBN: 1421421852

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Challenging assumptions about caregiving for those dying of chronic illness. What is it like to live with—and love—someone whose death, while delayed, is nevertheless foretold? In Living in Death’s Shadow, Emily K. Abel, an expert on the history of death and dying, examines memoirs written between 1965 and 2014 by family members of people who died from chronic disease. In earlier eras, death generally occurred quickly from acute illnesses, but as chronic disease became the major cause of mortality, many people continued to live with terminal diagnoses for months and even years. Illuminating the excruciatingly painful experience of coping with a family member’s extended fatal illness, Abel analyzes the political, personal, cultural, and medical dimensions of these struggles. The book focuses on three significant developments that transformed the experiences of those dying and their intimates: the passage of Medicare and Medicaid, the growing use of high-tech treatments at the end of life, and the rise of a movement to humanize the care of dying people. It questions the exalted value placed on acceptance of mortality as well as the notion that it is always better to die at home than in an institution. Ultimately, Living in Death’s Shadow emphasizes the need to shift attention from the drama of death to the entire course of a serious chronic disease. The chapters follow a common narrative of life-threatening disease: learning the diagnosis; deciding whether to enroll in a clinical trial; acknowledging or struggling against the limits of medicine; receiving care at home and in a hospital or nursing home; and obtaining palliative and hospice care. Living in Death’s Shadow is essential reading for everyone seeking to understand what it means to live with someone suffering from a chronic, fatal condition, including cancer, AIDS, Alzheimer’s, and heart disease.


The Work of the Dead

The Work of the Dead
Author: Thomas W. Laqueur
Publisher: Princeton University Press
Total Pages: 736
Release: 2018-05-08
Genre: History
ISBN: 0691180938

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The meaning of our concern for mortal remains—from antiquity through the twentieth century The Greek philosopher Diogenes said that when he died his body should be tossed over the city walls for beasts to scavenge. Why should he or anyone else care what became of his corpse? In The Work of the Dead, acclaimed cultural historian Thomas Laqueur examines why humanity has universally rejected Diogenes's argument. No culture has been indifferent to mortal remains. Even in our supposedly disenchanted scientific age, the dead body still matters—for individuals, communities, and nations. A remarkably ambitious history, The Work of the Dead offers a compelling and richly detailed account of how and why the living have cared for the dead, from antiquity to the twentieth century. The book draws on a vast range of sources—from mortuary archaeology, medical tracts, letters, songs, poems, and novels to painting and landscapes in order to recover the work that the dead do for the living: making human communities that connect the past and the future. Laqueur shows how the churchyard became the dominant resting place of the dead during the Middle Ages and why the cemetery largely supplanted it during the modern period. He traces how and why since the nineteenth century we have come to gather the names of the dead on great lists and memorials and why being buried without a name has become so disturbing. And finally, he tells how modern cremation, begun as a fantasy of stripping death of its history, ultimately failed—and how even the ashes of the victims of the Holocaust have been preserved in culture. A fascinating chronicle of how we shape the dead and are in turn shaped by them, this is a landmark work of cultural history.


When Treatment Fails

When Treatment Fails
Author: David J. Bearison
Publisher: Oxford University Press, USA
Total Pages: 320
Release: 2006
Genre: Medical
ISBN:

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The narratives in this book will illustrate how clinicians coming from different professional roles speak about the biological, psychological, spiritual, and social dimensions of caring for terminally ill patients. Bearison will analyze their ways of making sense and giving meaning to their difficult experiences, unearthing common and distinct themes and issues across disciplines. The book will also identify the ways their interdisciplinary teams facilitate or hinder each others work, and to what extent greater reciprocity can be achieved in providing the highest quality palliative care.


Fundamentals Davis Essential Nursing Content + Practice Questions

Fundamentals Davis Essential Nursing Content + Practice Questions
Author: Patricia M Nugent
Publisher: F.A. Davis
Total Pages: 963
Release: 2017-04-20
Genre: Medical
ISBN: 0803669577

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Up-to-date with the NCLEX-RN® 2016 Test Plan. Too much information? Too little time? Here’s everything you need to succeed in your fundamentals of nursing course and prepare for course exams and the NCLEX®. Succinct content review in outline format focus on must-know information, while case studies and NCLEX-style questions develop your ability to apply your knowledge in simulated clinical situations. You’ll also find proven techniques and tips to help you study more effectively, learn how to approach different types of questions, and improve your critical-thinking skills.


The Private Worlds of Dying Children

The Private Worlds of Dying Children
Author: Myra Bluebond-Langner
Publisher: Princeton University Press
Total Pages: 298
Release: 2020-05-05
Genre: Social Science
ISBN: 0691213089

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Winner of the Margaret Mead Award A classic, moving study of terminally ill children that emphasizes their agency and shows how we can relate to dying children more honestly “The death of a child,” writes Myra Bluebond-Langner, “poignantly underlines the impact of social and cultural factors on the way that we die and the way that we permit others to die.” In a moving drama constructed from her observations of leukemic children, aged three to nine, in a hospital ward, she shows how the children come to know they are dying, how and why they attempt to conceal this knowledge from their parents and the medical staff, and how these adults in turn try to conceal from the children their awareness of the child’s impending death. In contrast to many parents, doctors, nurses, and social scientists who regard the children as passive recipients of adult actions, Bluebond-Langner emphasizes the children’s role in initiating and maintaining the social order. Her sensitive and stirring portrait shows the children to be willful, purposeful individuals capable of creating their own worlds. The result suggests better ways of relating to dying children and enriches our understanding of the ritual behavior surrounding death.


All the Days of Her Life

All the Days of Her Life
Author: Lurlene McDaniel
Publisher: Laurel Leaf
Total Pages: 193
Release: 1994
Genre: Juvenile Fiction
ISBN: 0553562649

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Lacey Duval determines to hide her problems--her parents' divorce, her diabetes--in order to fit in with the popular crowd at high school and attract the handsome Todd Larson, risking her health in the process. Original.