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Sixtyfive Roses

Sixtyfive Roses
Author: Heather Summerhayes Cariou
Publisher: McArthur & Co
Total Pages: 499
Release: 2011-06-20
Genre: Biography & Autobiography
ISBN: 1770871063
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Heather Summerhayes was six when her four-year-old sister Pam was diagnosed with Cystic Fibrosis and given only months to live. “Sixtyfive roses” was the way Pam pronounced the name of the disease that forever altered the lives of her siblings and parents, who in turn helped alter the community’s response to the disease by founding the Canadian Cystic Fibrosis Foundation. With the help of the CF Foundation, research and new treatments, the fight to save Pam’s lasted for years, until her death at the age of twenty-six.This beautifully written memoir offers a compassionate yet unflinching eyewitness account of the hope, pain, and courage of a family in crisis as it falls apart and outs itself together again and again, to emerge stronger and more loving. The heart of the story explores the relationship between the two sisters—one devastatingly ill, the other healthy but burdened with guilt—as they journey through childhood, adolescence, and young adulthood.

Mallory's 65 Roses

Mallory's 65 Roses
Author: Diane Shader Smith
Publisher:
Total Pages: 24
Release: 1997-01-01
Genre: Cystic fibrosis
ISBN: 9780970035301
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Mallory explains how she and her family cope with her cystic fibrosis, a disease of the lungs, that is sometimes more easily pronounced as "65 roses."

65 Roses and a Trunki

65 Roses and a Trunki
Author: Rob Law
Publisher: John Wiley & Sons
Total Pages: 260
Release: 2020-07-27
Genre: Business & Economics
ISBN: 1119628598
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***BUSINESS BOOK AWARDS - FINALIST 2021*** An inspirational success story that shows how anyone can be a champion, overcome challenges and create a better world for yourself and others 65 Roses and a Trunki: Defying the Odds in Life and Business, is the extraordinary success story of entrepreneur Rob Law, designer and inventor of Trunki, the award-winning children's ride-on suitcase that’s sold millions of units worldwide. Born with cystic fibrosis, Rob watched his twin sister die from the same illness at sixteen. Told he could not expect to live into his twenties, he made a promise that he was going to defy the odds and live a long and successful life. Despite being humiliated in Dragons Den where his business was described as "worthless", Rob went on to create a new category of consumer product, build a global business brand, become an accomplished athlete, get an MBE from the Queen, bring joy to millions of children all over the world and become a father to three children after being told he would die childless. After beating overwhelming odds on the road to success in his personal and professional life, Rob wrote this memoir to help anyone facing difficult challenges in life and business. From brand-building and harnessing your creativity to managing a chronic health condition and facing your demons, you'll learn how to defy the odds, follow your passion, keep fighting when experts are telling you to quit and overcome every challenge you face. 65 Roses and a Trunki is a life-affirming book. Drawing on key insights from personal and business psychology, it tells an inspirational story that can be your story too.

Sixty-Five Roses

Sixty-Five Roses
Author: R. A. Williams
Publisher:
Total Pages: 269
Release: 2020-02-15
Genre:
ISBN: 9781658235938
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Cystic fibrosis is a progressive disease with no cure. And for one dying little girl with this illness, there is only one hope--an ancient Christian relic with an astonishing power to heal. Amari Johnston is a feisty private investigator fresh out of college. Her boyfriend is a brilliant experimental physicist named Kevin Brenner. They're both on the payroll of wealthy philanthropist Ernesto Galliano. While staying at Ernesto's estate, Amari befriends an endearing four-year-old foster child named Kathleen. But Kathleen isn't like the other foster children staying at the estate. She has a severe case of cystic fibrosis, and Amari is desperate to find a cure. She researches the latest medical advances, but after learning that effective treatment is decades away, she nearly gives up hope. Meanwhile, inside the restoration laboratory of the Royal Ontario Museum, a conservator discovers a relic with miraculous healing powers, a scrap of cloth from the robe of Jesus Christ. Although this novel is volume 3 of the Amari Johnston series, it can easily be read as a standalone title.

Salt in My Soul

Salt in My Soul
Author: Mallory Smith
Publisher: Random House
Total Pages: 336
Release: 2019-03-12
Genre: Biography & Autobiography
ISBN: 1984855433
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The diaries of a remarkable young woman who was determined to live a meaningful and happy life despite her struggle with cystic fibrosis and a rare superbug—from age fifteen to her death at the age of twenty-five—the inspiration for the original streaming documentary Salt in My Soul “An exquisitely nuanced chronicle of a terrified but hopeful young woman whose life was beginning and ending, all at once.”—Los Angeles Times Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately raged against her illness. Despite the daily challenges of endless medical treatments and a deep understanding that she’d never lead a normal life, Mallory was determined to “Live Happy,” a mantra she followed until her death. Mallory worked hard to make the most out of the limited time she had, graduating Phi Beta Kappa from Stanford University, becoming a cystic fibrosis advocate well known in the CF community, and embarking on a career as a professional writer. Along the way, she cultivated countless intimate friendships and ultimately found love. For more than ten years, Mallory recorded her thoughts and observations about struggles and feelings too personal to share during her life, leaving instructions for her mother to publish her work posthumously. She hoped that her writing would offer insight to those living with, or loving someone with, chronic illness. What emerges is a powerful and inspiring portrait of a brave young woman and blossoming writer who did not allow herself to be defined by disease. Her words offer comfort and hope to readers, even as she herself was facing death. Salt in My Soul is a beautifully crafted, intimate, and poignant tribute to a short life well lived—and a call for all of us to embrace our own lives as fully as possible.

The CF Warrior Project

The CF Warrior Project
Author: Andy C. Lipman
Publisher: Booklogix
Total Pages: 216
Release: 2019-05-15
Genre: Health & Fitness
ISBN: 9781610059558
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"Andy's book will provide hope for those who so desperately need it. These stories of strength and determination are inspiration to keep fighting in our own lives." --Celine Dion "These are tales of warriors who have beaten the odds by making their dreams come true. These are stories that will give you hope. And by buying this book, you will bring us closer to a cure. That is my dream." --Lewis Black "After spending time with cystic fibrosis warriors throughout the country, I've quickly realized they are the toughest and most resilient people I have ever met. The outlook CF warriors have on life is one that everyone should strive to have." --Colton Underwood "These are the stories of CF warriors who refused to succumb to a distressful prognosis, and instead thrived through the power of belief." --Megan Fox

Hold the Roses

Hold the Roses
Author: Rose Marie
Publisher: University Press of Kentucky
Total Pages: 308
Release: 2002
Genre: Biography & Autobiography
ISBN: 9780813133294
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Cystic Fibrosis

Cystic Fibrosis
Author: Melissa Abramovitz
Publisher: Greenhaven Publishing LLC
Total Pages: 114
Release: 2012-11-16
Genre: Young Adult Nonfiction
ISBN: 1420510916
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Author Melissa Abramovitz discusses the causes of cystic fibrosis, the history of its discovery, and current and future treatment options. Though a diagnosis of cystic fibrosis remains devastating in today's world, Abramovitz explains that revelations about the disease's genetic foundations may lead to medical breakthroughs in the near future. First-person accounts and inspirational quotes from individuals with cystic fibrosis will educate and inspire readers.

Alex

Alex
Author: Frank Deford
Publisher: Open Road Media
Total Pages: 115
Release: 2015-02-24
Genre: Biography & Autobiography
ISBN: 1504007336
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A father’s moving memoir of cystic fibrosis “captures a brave child’s legacy as well as the continuing fight against the genetic disease” (The New York Times). In 1971 a girl named Alex was born with cystic fibrosis, a degenerative genetic lung disease. Although health-care innovations have improved the life span of CF patients tremendously over the last four decades, the illness remains fatal. Given only two years to live by her doctors, the imaginative, excitable, and curious little girl battled through painful and frustrating physical-therapy sessions twice daily, as well as regular hospitalizations, bringing joy to the lives of everyone she touched. Despite her setbacks, brave Alex was determined to live life like a typical girl—going to school, playing with her friends, traveling with her family. Ultimately, however, she succumbed to the disease in 1980 at the age of eight. Award-winning author Frank Deford, celebrated primarily as a sportswriter, was also a budding novelist and biographer at the time of his daughter’s birth. Deford kept a journal of Alex’s courageous stand against the disease, documenting his family’s struggle to cope with and celebrate the daily fight she faced. This book is the result of that journal. Alex relives the events of those eight years: moments as heartwarming as when Alex recorded herself saying “I love you” so her brother could listen to her whenever he wanted, and as heartrending as the young girl’s tragic, dawning realization of her own very tenuous mortality, and her parents’ difficulty in trying to explain why. Though Alex is a sad story, it is also one of hope; her greatest wish was that someday a cure would be found. Deford has written a phenomenal memoir about an extraordinary little girl.

The Book of Rosy

The Book of Rosy
Author: Rosayra Pablo Cruz
Publisher: HarperCollins
Total Pages: 215
Release: 2020-06-02
Genre: Biography & Autobiography
ISBN: 0062941941
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“Offers hope in the face of desperate odds” – ELLE Magazine, ELLE’s Most Anticipated Books of Summer 2020 “[D]isturbing and unforgettable memoir…This wrenching story brings to vivid life the plight of the many families separated at the U.S.-Mexico border.” – Publisher’s Weekly, STARRED REVIEW “[The] haunting and eloquent…narrative of a Guatemalan woman's desperate search for a better life." -Kirkus, STARRED Review PEOPLE Magazine Best Books of Summer 2020 TIME Magazine Best Books of Summer 2020 PARADE Best Books of Summer 2020 Compelling and urgently important, The Book of Rosy is the unforgettable story of one brave mother and her fight to save her family. When Rosayra “Rosy” Pablo Cruz made the agonizing decision to seek asylum in the United States with two of her children, she knew the journey would be arduous, dangerous, and quite possibly deadly. But she had no choice: violence—from gangs, from crime, from spiraling chaos—was making daily life hell. Rosy knew her family’s one chance at survival was to flee Guatemala and go north. After a brutal journey that left them dehydrated, exhausted, and nearly starved, Rosy and her two little boys arrived at the Arizona border. Almost immediately they were seized and forcibly separated by government officials under the Department of Homeland Security’s new “zero tolerance” policy. To her horror Rosy discovered that her flight to safety had only just begun. In The Book of Rosy, with an unprecedented level of sharp detail and soulful intimacy, Rosy tells her story, aided by Julie Schwietert Collazo, founder of Immigrant Families Together, the grassroots organization that reunites mothers and children. She reveals the cruelty of the detention facilities, the excruciating pain of feeling her children ripped from her arms, the abiding faith that staved off despair—and the enduring friendship with Julie, which helped her navigate the darkness and the bottomless Orwellian bureaucracy. A gripping account of the human cost of inhumane policies, The Book of Rosy is also a paean to the unbreakable will of people united by true love, a sense of justice, and hope for a better future.