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Self, Senility, and Alzheimer's Disease in Modern America

Self, Senility, and Alzheimer's Disease in Modern America
Author: Jesse F. Ballenger
Publisher: JHU Press
Total Pages: 257
Release: 2006-03-31
Genre: Medical
ISBN: 0801888883

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Historian Jesse F. Ballenger traces the emergence of senility as a cultural category from the late nineteenth century to the 1980s, a period in which Alzheimer's disease became increasingly associated with the terrifying prospect of losing one's self. Changes in American society and culture have complicated the notion of selfhood, Ballenger finds. No longer an ascribed status, selfhood must be carefully and willfully constructed. Thus, losing one's ability to sustain a coherent self-narrative is considered one of life's most dreadful losses. As Ballenger writes "senility haunts the landscape of the self-made man." Stereotypes of senility and Alzheimer's disease are related to anxiety about the coherence, stability, and agency of the self—stereotypes that are transforming perceptions of old age in modern America. Drawing on scientific, clinical, policy, and popular discourses on aging and dementia, Ballenger explores early twentieth-century concepts of aging and the emergence of gerontology to understand and distinguish normal aging from disease. In addition, he examines American psychiatry's approaches to the treatment of senility and scientific attempts to understand the brain pathology of dementia. Ballenger's work contributes to our understanding of the emergence and significance of dementia as a major health issue.


Self, Senility, and Alzheimer's Disease in Modern America

Self, Senility, and Alzheimer's Disease in Modern America
Author: Jesse F. Ballenger
Publisher: JHU Press
Total Pages: 270
Release: 2006-03-31
Genre: Family & Relationships
ISBN: 9780801882760

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Ballenger's work contributes to our understanding of the emergence and significance of dementia as a major health issue.


Thinking about Dementia

Thinking about Dementia
Author: Annette Leibing
Publisher: Rutgers University Press
Total Pages: 263
Release: 2006
Genre: Health & Fitness
ISBN: 0813538033

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Cultural responses to most illnesses differ; dementia is no exception. These responses, together with a society's attitudes toward its elderly population, affect the frequency of dementia-related diagnoses and the nature of treatment. Bringing together essays by nineteen respected scholars, this unique volume approaches the subject from a variety of angles, exploring the historical, psychological, and philosophical implications of dementia. Based on solid ethnographic fieldwork, the essays employ a cross-cultural perspective and focus on questions of age, mind, voice, self, loss, temporality, memory, and affect. Taken together, the essays make four important and interrelated contributions to our understanding of the mental status of the elderly. First, cross-cultural data show the extent to which the aging process, while biologically influenced, is also very much culturally constructed. Second, detailed ethnographic reports raise questions about the behavioral criteria used by health care professionals and laymen for defining the elderly as demented. Third, case studies show how a diagnosis affects a patient's treatment in both clinical and familial settings.; Finally, the collection highlights the gap that separates current biological understandings of aging from its cultural meanings. As Alzheimer's disease and other forms of dementia continue to command an ever-increasing amount of attention in medicine and psychology, this book will be essential reading for anthropologists, social scientists, and health care professionals.


The Loss of Self

The Loss of Self
Author: Donna Cohen
Publisher: Bantam Doubleday Dell Publishing Group
Total Pages: 560
Release: 1987
Genre: Medical
ISBN:

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Alzheimer's For Dummies

Alzheimer's For Dummies
Author: Patricia B. Smith
Publisher: John Wiley & Sons
Total Pages: 395
Release: 2011-04-27
Genre: Health & Fitness
ISBN: 1118068890

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An estimated 4 million people are living with Alzheimer’s Disease (AD) in America today, with approximately 370,000 new cases diagnosed every year. AD patients live anywhere from 5 to 20 years after their diagnosis; and their inability to care for themselves grows more dramatic as the disease progresses, creating profound implications for their families and healthcare providers. Its impact on families during the caregiving years is overwhelming. If you have a family member or close friend who’s suffering from Alzheimer’s Disease and you’re looking for current, useful information, then Alzheimer’s For Dummies is for you. This reference guide also is helpful if you Need to know more about its diagnosis and treatment Want to take care of yourself while taking care of your loved one Are not the primary caregiver but want to know how to help Want to know how Alzheimer’s Disease is going to affect you and your loved one Alzheimer’s For Dummies takes a realistic look at Alzheimer’s Disease, what it is and what it isn’t. It offers pertinent, easy-to-understand advice for dealing with the myriad concerns and responsibilities that a primary caregiver must assume when managing an Alzheimer’s patient. Here’s a sampling of the information you’ll find in this valuable guide: Maneuvering through medical, legal, and financial tangles Distinguishing AD from other brain diseases and medical conditions Handling the fears that may accompany the diagnosis Evaluating current drug therapies; watching out for scams and quack treatments Finding the best doctors; dealing with attorneys and CPAs Looking at Medicare regulations Evaluating the cost of care The current state of research, diagnosis, and treatment Television personality Leeza Gibbons, whose mother was stricken with AD, writes in the foreword of this book, “There is no upside to keeping your head in the sand. This book is a crucial step in your new fight. Arm yourself with the knowledge waiting for you in these pages. It will help you find answers and resources as you adjust to your new reality.”


Alzheimer's Dementia

Alzheimer's Dementia
Author: Vijaya L. Melnick
Publisher: Contemporary Issues in Biomedicine, Ethics, and Society
Total Pages: 352
Release: 1985
Genre: Medical
ISBN:

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The National Institute on Aging (NIA) has historically been concerned with the protection of human subjects. In July 1977, the NIA sponsored a meeting to update and supplement guide lines for protecting those participating in Federal research pro jects. Although the basic guidelines had been in effect since 1966, it had been neglected to include the elderly as a vulnerable population. In November 1981, the NIA organized a conference on the ethical and legal issues related to informed consent in senile dementia cases. The present volume offers the latest and best thinking on Alzheimer's Dementia to have emerged from the dialog that was first embarked upon at the NIA meeting. Indeed, the issues and concerns it treats now seem even more relevant than they appeared historically because of the vastly greater awareness in the community of the entire spectrum of problems Alzheimer's disease confronts us all with. Our interest and concern is both humanitarian and self serving. Clearly older people must be protected from in appropriate research and careful attention must be paid to the circumstances under which research is conducted on those older persons who have given anything less than full consent. It is equally necessary, however, for the research enterprise to be protected so that today's elderly and those of the future can benefit from the fruits of research.


The Problem of Alzheimer's

The Problem of Alzheimer's
Author: Jason Karlawish
Publisher: St. Martin's Press
Total Pages: 269
Release: 2021-02-23
Genre: Health & Fitness
ISBN: 1250218748

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A definitive and compelling book on one of today's most prevalent illnesses. In 2020, an estimated 5.8 million Americans had Alzheimer’s, and more than half a million died because of the disease and its devastating complications. 16 million caregivers are responsible for paying as much as half of the $226 billion annual costs of their care. As more people live beyond their seventies and eighties, the number of patients will rise to an estimated 13.8 million by 2050. Part case studies, part meditation on the past, present and future of the disease, The Problem of Alzheimer's traces Alzheimer’s from its beginnings to its recognition as a crisis. While it is an unambiguous account of decades of missed opportunities and our health care systems’ failures to take action, it tells the story of the biomedical breakthroughs that may allow Alzheimer’s to finally be prevented and treated by medicine and also presents an argument for how we can live with dementia: the ways patients can reclaim their autonomy and redefine their sense of self, how families can support their loved ones, and the innovative reforms we can make as a society that would give caregivers and patients better quality of life. Rich in science, history, and characters, The Problem of Alzheimer's takes us inside laboratories, patients' homes, caregivers’ support groups, progressive care communities, and Jason Karlawish's own practice at the Penn Memory Center.


The Poetics and Politics of Alzheimer’s Disease Life-Writing

The Poetics and Politics of Alzheimer’s Disease Life-Writing
Author: Martina Zimmermann
Publisher: Springer
Total Pages: 172
Release: 2017-06-07
Genre: Literary Criticism
ISBN: 3319443887

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This book is open access under a CC BY 4.0 license. This is the first book-length exploration of the thoughts and experiences expressed by dementia patients in published narratives over the last thirty years. It contrasts third-person caregiver and first-person patient accounts from different languages and a range of media, focusing on the poetical and political questions these narratives raise: what images do narrators appropriate; what narrative plot do they adapt; and how do they draw on established strategies of life-writing. It also analyses how these accounts engage with the culturally dominant Alzheimer’s narrative that centres on dependence and vulnerability, and addresses how they relate to discourses of gender and aging. Linking literary scholarship to the medico-scientific understanding of dementia as a neurodegenerative condition, this book argues that, first, patients’ articulations must be made central to dementia discourse; and second, committed alleviation of caregiver burden through social support systems and altered healthcare policies requires significantly altered views about aging, dementia, and Alzheimer’s patients.


The Inheritance

The Inheritance
Author: Niki Kapsambelis
Publisher: Simon and Schuster
Total Pages: 407
Release: 2017-03-07
Genre: Biography & Autobiography
ISBN: 1451697333

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This gripping story of the doctors at the forefront of Alzheimer’s research and the courageous North Dakota family whose rare genetic code is helping to understand our most feared diseases is “excellent, accessible...A science text that reads like a mystery and treats its subjects with humanity and sympathy” (Library Journal, starred review). Every sixty-nine seconds, someone is diagnosed with Alzheimer’s disease. Of the top ten killers, it is the only disease for which there is no cure or treatment. For most people, there is nothing that they can do to fight back. But one family is doing all they can. The DeMoe family has the most devastating form of the disease that there is: early onset Alzheimer’s, an inherited genetic mutation that causes the disease in one hundred percent of cases, and has a fifty percent chance of being passed onto the next generation. Of the six DeMoe children whose father had it, five have inherited the gene; the sixth, daughter Karla, has inherited responsibility for all of them. But rather than give up in the face of such news, the DeMoes have agreed to spend their precious, abbreviated years as part of a worldwide study that could utterly change the landscape of Alzheimer’s research and offers the brightest hope for future treatments—and possibly a cure. Drawing from several years of in-depth research with this charming and upbeat family, journalist Niki Kapsambelis tells the story of Alzheimer’s through the humanizing lens of these ordinary people made extraordinary by both their terrible circumstances and their bravery. “A compelling narrative…and an educational and emotional chronicle” (Kirkus Reviews, starred review), their tale is intertwined with the dramatic narrative history of the disease, the cutting-edge research that brings us ever closer to a possible cure, and the accounts of the extraordinary doctors spearheading these groundbreaking studies. From the oil fields of North Dakota to the jungles of Colombia, this inspiring race against time redefines courage in the face of this most pervasive and mysterious disease.