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Self-Determination, Dignity and End-of-Life Care

Self-Determination, Dignity and End-of-Life Care
Author: Stefania Negri
Publisher: BRILL
Total Pages: 487
Release: 2012-02-03
Genre: Law
ISBN: 9004223584

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By providing an interdisciplinary reading of advance directives regulation in international, European and domestic law, this book offers new insights into the most controversial legal issues surrounding the debate over dignity and autonomy at the end of life.


Self-determination, Dignity and End-of-life Care

Self-determination, Dignity and End-of-life Care
Author: Stefania Negri
Publisher:
Total Pages: 487
Release: 2011
Genre: Advance directives (Medical care)
ISBN: 9786613599780

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This volume gathers the contributions of leading researchers in the fields of bioethics, medical law and human rights. By providing an interdisciplinary reading of advance directives regulation against the background of European and International law, this book aims to offer new insights into the most controversial legal issues surrounding the theme of dignity and autonomy at the end of life. Cross-cultural perspectives from Europe, the Americas, Australia and China offer a comparative analysis of legal approaches to end-of-life decision-making and care, including the hotly debated issues of euthanasia and assisted suicide, also giving an account of recent developments in domestic legislation and jurisprudence. Special focus is placed on the Italian legal system and its ongoing discussion on advance directives regulation.


Physician-Assisted Death

Physician-Assisted Death
Author: James M. Humber
Publisher: Springer Science & Business Media
Total Pages: 159
Release: 1994-02-04
Genre: Medical
ISBN: 1592594484

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Physician-Assisted Death is the eleventh volume of Biomedical Ethics Reviews. We, the editors, are pleased with the response to the series over the years and, as a result, are happy to continue into a second decade with the same general purpose and zeal. As in the past, contributors to projected volumes have been asked to summarize the nature of the literature, the prevailing attitudes and arguments, and then to advance the discussion in some way by staking out and arguing forcefully for some basic position on the topic targeted for discussion. For the present volume on Physician-Assisted Death, we felt it wise to enlist the services of a guest editor, Dr. Gregg A. Kasting, a practicing physician with extensive clinical knowledge of the various problems and issues encountered in discussing physician assisted death. Dr. Kasting is also our student and just completing a graduate degree in philosophy with a specialty in biomedical ethics here at Georgia State University. Apart from a keen interest in the topic, Dr. Kasting has published good work in the area and has, in our opinion, done an excellent job in taking on the lion's share of editing this well-balanced and probing set of essays. We hope you will agree that this volume significantly advances the level of discussion on physician-assisted euthanasia. Incidentally, we wish to note that the essays in this volume were all finished and committed to press by January 1993.


Meta-Ethnography

Meta-Ethnography
Author: George W. Noblit
Publisher: SAGE
Total Pages: 112
Release: 1988-02
Genre: Social Science
ISBN: 9780803930230

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How can ethnographic studies be generalized, in contrast to concentrating on the individual case? Noblit and Hare propose a new method for synthesizing from qualitative studies: meta-ethnography. After citing the criteria to be used in comparing qualitative research projects, the authors define the ways these can then be aggregated to create more cogent syntheses of research. Using examples from numerous studies ranging from ethnographic work in educational settings to the Mead-Freeman controversy over Samoan youth, Meta-Ethnography offers useful procedural advice from both comparative and cumulative analyses of qualitative data. This provocative volume will be read with interest by researchers and students in qualitative research methods, ethnography, education, sociology, and anthropology. "After defining metaphor and synthesis, these authors provide a step-by-step program that will allow the researcher to show similarity (reciprocal translation), difference (refutation), or similarity at a higher level (lines or argument synthesis) among sample studies....Contain(s) valuable strategies at a seldom-used level of analysis." --Contemporary Sociology "The authors made an important contribution by reframing how we think of ethnography comparison in a way that is compatible with the new developments in interpretive ethnography. Meta-Ethnography is well worth consulting for the problem definition it offers." --The Journal of Nervous and Mental Disease "This book had to be written and I am pleased it was. Someone needed to break the ice and offer a strategy for summarizing multiple ethnographic studies. Noblit and Hare have done a commendable job of giving the research community one approach for doing so. Further, no one else can now venture into this area of synthesizing qualitative studies without making references to and positioning themselves vis-a-vis this volume." -Educational Studies


Physician-assisted Suicide

Physician-assisted Suicide
Author: Gail N. Hawkins
Publisher: Greenhaven Press, Incorporated
Total Pages: 84
Release: 2002
Genre: Juvenile Nonfiction
ISBN:

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Advocates of physician-assisted suicide insist that terminally ill individuals should have the right to choose when to end their suffering. Opponents respond that if the practice becomes acceptable, society will pressure patients into choosing death instead of providing them with quality end-of-life care. This insightful anthology examines the debate over whether medical personnel should be involved in hastening the death of the terminally ill.


A Dignified Ending

A Dignified Ending
Author: Lewis M. Cohen, MD
Publisher: Rowman & Littlefield
Total Pages: 385
Release: 2019-07-12
Genre: Self-Help
ISBN: 1538115751

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Each year, more than one million people and their loved-ones arrive at a decision to cease attempts at curative medical treatments and shift to hospice care, while one-in-five Americans now live in in geographical regions that have established lawful protocols allowing medical aid in dying—also known as assisted suicide. In this powerful new work, Lew Cohen, a psychiatrist and palliative medicine researcher, reveals a self-determination movement that empowers people to shape the timing and circumstances of their deaths, decriminalizes laws threatening those who help them, and passes assisted dying legislature. He offers a vivid tapestry woven from the candid, inspirational, and graphic stories of individuals who sought to choreograph how they would die. There is nothing simple about these decisions, and A Dignified Ending tackles the intricacies of timing, the presence of dementia and other dire but not terminal conditions, the legal risks, as well as the mixed reactions of the disability community. Cohen illuminates the evolution of right-to-die organizations in the United States, and the impact of activists like Jack Kevorkian, Derek Humphrey, Faye Girsh, Cody Curtis, and Brittany Maynard. The decision to conclude one’s life with a planned death is an emotionally polarizing subject. Nonetheless, the public increasingly wants to control how they die. This requires that people formulate their end-of-life preferences and not wait until the last moment to communicate these with physicians and families. A Dignified Ending conveys truthful and nuanced accounts of men and women who chose to die, and stories of the activists—proponents and opponents— who promote this growing right-to-die movement.


Self-Determination, Dignity and End-of-Life Care

Self-Determination, Dignity and End-of-Life Care
Author: Stefania Negri
Publisher: Martinus Nijhoff Publishers
Total Pages: 488
Release: 2012-02-03
Genre: Law
ISBN: 9004223576

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By providing an interdisciplinary reading of advance directives regulation in international, European and domestic law, this book offers new insights into the most controversial legal issues surrounding the debate over dignity and autonomy at the end of life.


Approaching Death

Approaching Death
Author: Committee on Care at the End of Life
Publisher: National Academies Press
Total Pages: 457
Release: 1997-10-30
Genre: Medical
ISBN: 0309518253

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When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."


Dignity in Dying

Dignity in Dying
Author: Peter M Abraham
Publisher: Independently Published
Total Pages: 0
Release: 2024-08-08
Genre: Medical
ISBN:

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In Dignity in Dying, Peter M. Abraham, BSN, RN, offers a compassionate and comprehensive guide to Voluntary Stopping Eating and Drinking (VSED) as an end-of-life option. This book is essential for anyone considering VSED, whether facing a terminal illness or experiencing unbearable suffering. Abraham provides a clear and empathetic exploration of VSED, emphasizing autonomy, dignity, and comfort. The book begins by explaining what VSED is and how it differs from euthanasia and physician-assisted suicide. It is a legal and natural option, allowing individuals to control their dying process. Through real-life case studies, Abraham illustrates the profound impact of VSED on patients and their families, offering insights into the emotional and ethical considerations involved. Readers will find practical guidance on preparing for VSED, including the importance of medical consultation, legal considerations, and the role of advance directives. Abraham emphasizes the need for a robust support system, highlighting the roles of healthcare professionals, families, and caregivers in ensuring a peaceful and dignified experience. The book also delves into the physical process of VSED, providing a detailed overview of the stages and symptoms to expect. Abraham offers strategies for managing symptoms such as thirst, delirium, and anxiety, ensuring that comfort is maintained throughout the process. The book underscores the importance of palliative and hospice care, which can provide essential support and symptom management. Ethical considerations are thoughtfully addressed, with discussions on autonomy, self-determination, and the ethical debates surrounding VSED. Abraham provides a balanced perspective, acknowledging the complexity of these issues while advocating for informed and compassionate decision-making. Dignity in Dying is a valuable resource for patients, families, and healthcare providers. It empowers readers to make informed choices about end-of-life care, respecting individual values and wishes. With warmth and empathy, Abraham guides readers through the challenging journey of VSED, offering support and understanding every step of the way. Whether you are a caregiver, a healthcare professional, or someone considering VSED, this book provides the knowledge and reassurance needed to navigate this profoundly personal decision. Dignity in Dying is a testament to the power of choice and the importance of dignity in the final stages of life.


Dying in America

Dying in America
Author: Institute of Medicine
Publisher: National Academies Press
Total Pages: 470
Release: 2015-03-19
Genre: Medical
ISBN: 0309303133

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For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.