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Rethinking Alzheimer's Care

Rethinking Alzheimer's Care
Author: Sam Fazio
Publisher:
Total Pages: 204
Release: 1999
Genre: Health & Fitness
ISBN:

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"Appropriate for any setting, including long-term care, adult day services, or assisted living, this fresh and humanistic approach to Alzheimer's care helps pave the way for profound changes in the way we care."--BOOK JACKET.


The Enduring Self in People with Alzheimer's

The Enduring Self in People with Alzheimer's
Author: Sam Fazio
Publisher:
Total Pages: 175
Release: 2008
Genre: Health & Fitness
ISBN: 9781932529388

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This enlightening book demonstrates unequivocally that a person's unique self persists throughout the course of the disease. Much can be done in care settings to support a person's sense of identity and enrich the lives of people experiencing the many losses associated with dementia. Drawing from a diverse body of research, the book brings together theories and recommendations from the best thinkers and practitioners in multiple disciplines to illustrate the meaning of self and the importance of providing dementia care that recognizes and supports personhood. The Enduring Self provides a foundation for culture change efforts in community-based and residential care settings, showing administrators and care staff how to reframe communication and interactions to build more meaningful relationships with people with Alzheimer's disease. Includes provocative discussion topics at the end of each chapter and a case study for staff training.


Alzheimer's Care

Alzheimer's Care
Author: Nancy J. Wiles
Publisher: Living Plus Healthy Publishing
Total Pages: 86
Release: 2015-03-23
Genre: Health & Fitness
ISBN:

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Alzheimer's disease affects about 13 percent of individuals over the age of 65 and about 50 percent of those over the age of 85. Almost 15 million Americans spend their time caring for a person with Alzheimer’s dementia. If your loved one suffers from this condition or starts to show early warning signs, you are probably very worried and concerned. You are probably wondering: - When the condition would start to impact and change your loved one's life? - How much time would it be before your loved one is no longer able to recognize you? - Is full-time care needed? Or would your loved one be able to live on their own? - Would the Alzheimer's cause your loved one to die earlier than normal? Of course you want the best for your family, and would like to help your loved one and your family cope with this life changing situation as best as possible. "Alzheimer's Care" can help. It will teach you everything you need to know about the signs & symptoms of Alzheimer's disease, how to deal with your emotions, family life, caregiving, and more. Here are just some of the things you will discover in this book: - What are the early signs of Alzheimer's dementia? - What are the 7 stages of Alzheimer's disease? - Important safety issues in the care of Alzheimer's patients. - How to help Alzheimer's patient keep their memories for as long as possible? - What are the feeding & nutrition requirements for someone with Alzheimer's? - How to make eating pleasurable? - Ways to minimize the stress and frustration of family members. - Questions you must ask before selecting a nursing home for long-term care facility for your loved one. - Simple techniques for communicating with Alzheimer's patient without getting frustrated. - How to effectively deal with behavioral problems? - How to improve the quality of life for your loved one? - How to take care of yourself, reduce stress, & prevent burn-out as a caregiver? - And much more...


Never Giving Up & Never Wanting To

Never Giving Up & Never Wanting To
Author: Barry Tutor
Publisher: Trafford Publishing
Total Pages: 241
Release: 2012-10
Genre: Family & Relationships
ISBN: 1466948809

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Like most, I knew about Alzheimer's disease. It causes old people to forget. When my relationship with this disease began, it highlighted how little I knew. Following my widowed mother's Alzheimer's diagnosis, I researched this disease to gain insight about my new role as her caregiver and decision maker. What I learned and experienced during her affliction still left me somewhat unprepared for what was yet to come. Sixteen months following my mother's diagnosis, my dear wife and best friend was diagnosed with early-onset Alzheimer's. Though now I was familiar with this silent killer, my wife's diagnosis set into motion many changes and challenges in our lives. Someone is diagnosed with Alzheimer's every sixty-eight seconds. Currently, Alzheimer's is the only disease in the top-ten causes of death that is on the increase and has no means of prevention and no possible cure. Given these facts, support for those afflicted relies on increasing levels of caregiving as the disease progresses. Let me explain something about this "old folk's disease." Alzheimer's affects more than just parents and grandparents. It is also the disease of siblings, spouses, and children. Alzheimer's forces many families to decide between home versus institutional care. An estimated fifteen million caregivers provide some level of care to the Alzheimer's victims still living at home. No matter what level of care you are providing, the importance of preparation is paramount. Arming yourself with knowledge begins that preparation process. I was unprepared for the roller-coaster ride my life became as the sole caregiver for two Alzheimer's victims. To meet their varied challenges, I adapted and developed multiple techniques for targeted personalized care. If only I knew then what I know now. By sharing my knowledge and experience, I hope to better prepare you for your caregiving journey.


Rethinking Alzheimer's

Rethinking Alzheimer's
Author: Susan L. Kocen
Publisher:
Total Pages: 174
Release: 2012
Genre: Alzheimer's disease
ISBN:

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As the growth of our population of people over 80 years old rapidly increases in the coming decades the number of people diagnosed with Alzheimer's will grow accordingly. In our 21st century enlightened world, the body and our experiences of it have been shaped by the dominant paradigms of knowledge that we exist within. Current attitudes towards Alzheimer's are shaped by biomedicine and pathology, with management of the illness, and research into cures dominating the literature. In this drastic simplification of our bodily and psychological processes lives the marginalization of a varied diversity of experience, unexpressed cultural opinions, intricacies of power/knowledge structures, and most significantly the activity, ideas, and convictions of the person or people having the experience. The question this interdisciplinary thesis asked is whether there may be meaning for the individual, the family and carers, and the larger culture, within the experience of Alzheimer's disease, and if so, what that might be and how might it be understood. A review of interdisciplinary literature included research from numerous scholarly disciplines. The literature revealed how we shape our experience of reality by the neglect and marginalization of aspects of reality that do not meet the culture's preferred ideals. The literature also revealed Alzheimer's to be a multi-leveled experience affecting not only the diagnosed persons, but also the family, carers, friends, larger society and culture within which those experiencing the Alzheimer's process reside. The impact, therefore, of the Alzheimer's diagnosis affects increasing numbers of people, and demands our attention on the many levels on which it has its effects. As Alzheimer's and dementia become more apparent in our lives it is time to rethink how we have framed and contextualized this process of our later years, and the solutions we offer to it. This thesis proposes we reconsider our language and attitudes towards the extreme and altered states of Alzheimer's processes, and encourages us to explore the unexpected opportunities and values that the Alzheimer's process brings to our individual, communal and societal norms.


Reconsidering Dementia Narratives

Reconsidering Dementia Narratives
Author: Rebecca Bitenc
Publisher: Routledge
Total Pages: 300
Release: 2019-07-05
Genre: Social Science
ISBN: 0429619502

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Reconsidering Dementia Narratives explores the role of narrative in developing new ways of understanding, interacting with, and caring for people with dementia. It asks how the stories we tell about dementia – in fiction, life writing and film – both reflect and shape the way we think about this important condition. Highlighting the need to attend to embodied and relational aspects of identity in dementia, the study further outlines ways in which narratives may contribute to dementia care, while disputing the idea that the modes of empathy fostered by narrative necessarily bring about more humane care practices. This cross-medial analysis represents an interdisciplinary approach to dementia narratives which range across auto/biography, graphic narrative, novel, film, documentary and collaborative storytelling practices. The book aims to clarify the limits and affordances of narrative, and narrative studies, in relation to an ethically driven medical humanities agenda through the use of case studies. Answering the key question of whether dementia narratives align with or run counter to the dominant discourse of dementia as ‘loss of self’, this innovative book will be of interest to anyone interested in dementia studies, ageing studies, narrative studies in health care, and critical medical humanities.


Life at Home for People with a Dementia

Life at Home for People with a Dementia
Author: Ruth Bartlett
Publisher: Routledge
Total Pages: 142
Release: 2018-06-14
Genre: Social Science
ISBN: 1351619691

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Life at Home for People with a Dementia provides an evidence-based and readable account of improving life at home for people with a dementia and their families. There are estimated to be 47 million people with a dementia worldwide, the majority of whom will live, or want to live, in their own home. Yet there is a major shortcoming in available knowledge on what life is like for people with a dementia living at home. Most research focuses on care in hospitals or care homes, and takes a medical perspective. This book bridges this gap in knowledge by providing a comprehensive and critical overview of the best available evidence on enabling people with a dementia to live well at home from the viewpoint of those living with the condition, and in the context of global policy drivers on ageing and health, as well as technological advances. The book includes chapters on citizenships – that is, the diversity of people living with a dementia – enabling life at home, rethinking self-management, the ethics and care of people with a dementia at home, technological care and citizenship, and sharing responsibilities. It concludes with a care manifesto in which we set out a vision for improving life at home for people with a dementia that covers the areas of professional practice, education and care research. By covering a wide range of interrelated topics to advance understanding and practice as to how people with a dementia from diverse backgrounds can be supported to live well at home, this book provides a synthesised, critical and readable understanding of the complexities and risks involved.


Dementia Care

Dementia Care
Author: Mala Kapur Shankardass
Publisher: Springer Nature
Total Pages: 412
Release: 2021-09-03
Genre: Medical
ISBN: 9811638640

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This book discusses the contemporary medico-social, psychological, legal, and therapeutic concerns related to people affected by dementia as a patient or as a caregiver. It provides global emerging responses to dementia. It highlights different dimensions of dementia in terms of issues, concerns, policies, and strategies all around the globe. The contributing authors present issues from cross-cultural education visible in dementia studies and discuss the power of music, art therapy, artistic collaborations, and many innovative practices in dealing with dementia. Written by international specialists from various disciplines, the chapters include challenges and emerging issues related to the role of family caregivers, the concern with vulnerability to elder abuse and neglect, and the role of technology in dementia care. The book provides a diverse perspective to dementia care not covered in such a broad way by any other books on the topic. This book is intended for academics from a wide range of fields such as sociology, geriatrics, community medicine, public health, clinical psychology, social work all of which, collectively, bear on the problem and the solutions for better dementia care.


Meet Me Where I Am

Meet Me Where I Am
Author: Mary Ann Drummond
Publisher: Morgan James Publishing
Total Pages: 140
Release: 2018-08-07
Genre: Medical
ISBN: 1683509595

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Me Where I Am provides knowledge and essential tools to lovingly, confidently and, above all, successfully care for those who live with Alzheimer’s and related dementias. Over 5 million Americans currently live with Alzheimer’s disease. Along with them, 15 million unpaid caregivers seek knowledge and resources to assist them in the journey. The unique care principles found in Meet Me Where I Am help mitigate depression, decrease anxiety, and allow for successful relationships as long as possible in the dementia journey. Mary Ann Drummond, RN credits her unique care philosophy to the greatest teachers of all—the many individuals living with Alzheimer’s and related dementias she has had the pleasure of caring for over the years. Imbuing practical tips with wisdom, respect, and sensibility, Drummond comes full circle by sharing what happened when her own mentor fell prey to the disease. Meet Me Where I Am is a road map that teaches caregivers how to focus on the possibilities, discover the joy in the journey, and prepare for the road ahead.


(Re)designing the Continuum of Care for Older Adults

(Re)designing the Continuum of Care for Older Adults
Author: Farhana Ferdous
Publisher: Springer Nature
Total Pages: 375
Release: 2023-01-27
Genre: Medical
ISBN: 3031209702

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This book broadens the visioning on new care environments that are designed to be inclusive, progressive, and convergent with the needs of an aging population. The contents cover a range of long-term care (LTC) settings in a single collection to address the needs of a wide audience. Due to the recent COVID-19 pandemic, rethinking the spatial design of care facilities in order to prepare for future respiratory and contagious pathogens is one of the prime concerns across the globe, along with social connectedness and autonomy in care settings. This book contributes to the next generation of knowledge and understanding of the growing field of the design of technology, programs, and environments for LTC that are more effective in infection prevention and control as well as social connectedness. To address these issues, the chapters are organized in four sections: Part I: Home- and community-based care; Part II: Facility-based care; Part III: Memory care and end-of-life care; and Part IV: Evidence-based applied projects and next steps. (Re)designing the Continuum of Care for Older Adults: The Future of Long-Term Care Settings is an essential resource for researchers, practitioners, educators, policymakers, and students associated with LTC home and healthcare settings. With diverse topics in theory, substantive issues, and methods, the contributions from notable researchers and scholars cover a range of innovative programming, environments, and technologies which can impact the changing needs and support for older adults and their families across the continuum of care.