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Refusing Care

Refusing Care
Author: Elyn R. Saks
Publisher: University of Chicago Press
Total Pages: 315
Release: 2010-02-15
Genre: Psychology
ISBN: 0226733998

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It has been said that how a society treats its least well-off members speaks volumes about its humanity. If so, our treatment of the mentally ill suggests that American society is inhumane: swinging between overintervention and utter neglect, we sometimes force extreme treatments on those who do not want them, and at other times discharge mentally ill patients who do want treatment without providing adequate resources for their care in the community. Focusing on overinterventionist approaches, Refusing Care explores when, if ever, the mentally ill should be treated against their will. Basing her analysis on case and empirical studies, Elyn R. Saks explores dilemmas raised by forced treatment in three contexts—civil commitment (forced hospitalization for noncriminals), medication, and seclusion and restraints. Saks argues that the best way to solve each of these dilemmas is, paradoxically, to be both more protective of individual autonomy and more paternalistic than current law calls for. For instance, while Saks advocates relaxing the standards for first commitment after a psychotic episode, she also would prohibit extreme mechanical restraints (such as tying someone spread-eagled to a bed). Finally, because of the often extreme prejudice against the mentally ill in American society, Saks proposes standards that, as much as possible, should apply equally to non-mentally ill and mentally ill people alike. Mental health professionals, lawyers, disability rights activists, and anyone who wants to learn more about the way the mentally ill are treated—and ought to be treated—in the United States should read Refusing Care.


MacArthur Competence Assessment Tool for Treatment (MacCAT-T)

MacArthur Competence Assessment Tool for Treatment (MacCAT-T)
Author: Thomas Grisso
Publisher:
Total Pages: 0
Release: 1998
Genre: Decision making
ISBN: 9781568870410

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The MacArthur Competence Assessment Tool for Treatment (MacCAT-T) is the product of an 8-year study of patients' capacities to make treatment decisions. It is a semi-structured interview that assists clinicians in assessing a patient's competence to consent to treatment. The process provides a patient with information about their medical/psychiatric condition, the type of treatment being recommended, its risks and benefits, as well as other possible treatments and their probable consequences. During this process, the MacCAT-T prompts the clinician to ask questions that assess the patient's understanding, appreciation, and reasoning regarding treatment decisions.The MacCAT-T Manual is a large-format, examiner-friendly field manual for conducting actual competency assessments. The MacCAT-T Record Form is well designed for recording, rating, and summarizing patient responses. The training videotape, Administering the MacCAT-T, demonstrates an actual administration of the test with discussion, comments, and annotations by Drs. Grisso and Appelbaum.The book, Assessing Competence to Consent to Treatment, describes the place of competence in the doctrine of informed consent, analyzes the elements of decision making, and shows how assessments of competence to consent to treatment can be conducted within varied general medical and psychiatric treatment settings. Includes numerous case studies.


Dying in America

Dying in America
Author: Institute of Medicine
Publisher: National Academies Press
Total Pages: 470
Release: 2015-03-19
Genre: Medical
ISBN: 0309303133

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For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.


Unequal Treatment

Unequal Treatment
Author: Institute of Medicine
Publisher: National Academies Press
Total Pages: 781
Release: 2009-02-06
Genre: Medical
ISBN: 030908265X

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Racial and ethnic disparities in health care are known to reflect access to care and other issues that arise from differing socioeconomic conditions. There is, however, increasing evidence that even after such differences are accounted for, race and ethnicity remain significant predictors of the quality of health care received. In Unequal Treatment, a panel of experts documents this evidence and explores how persons of color experience the health care environment. The book examines how disparities in treatment may arise in health care systems and looks at aspects of the clinical encounter that may contribute to such disparities. Patients' and providers' attitudes, expectations, and behavior are analyzed. How to intervene? Unequal Treatment offers recommendations for improvements in medical care financing, allocation of care, availability of language translation, community-based care, and other arenas. The committee highlights the potential of cross-cultural education to improve provider-patient communication and offers a detailed look at how to integrate cross-cultural learning within the health professions. The book concludes with recommendations for data collection and research initiatives. Unequal Treatment will be vitally important to health care policymakers, administrators, providers, educators, and students as well as advocates for people of color.


Improving Diagnosis in Health Care

Improving Diagnosis in Health Care
Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
Total Pages: 473
Release: 2015-12-29
Genre: Medical
ISBN: 0309377722

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Getting the right diagnosis is a key aspect of health care - it provides an explanation of a patient's health problem and informs subsequent health care decisions. The diagnostic process is a complex, collaborative activity that involves clinical reasoning and information gathering to determine a patient's health problem. According to Improving Diagnosis in Health Care, diagnostic errors-inaccurate or delayed diagnoses-persist throughout all settings of care and continue to harm an unacceptable number of patients. It is likely that most people will experience at least one diagnostic error in their lifetime, sometimes with devastating consequences. Diagnostic errors may cause harm to patients by preventing or delaying appropriate treatment, providing unnecessary or harmful treatment, or resulting in psychological or financial repercussions. The committee concluded that improving the diagnostic process is not only possible, but also represents a moral, professional, and public health imperative. Improving Diagnosis in Health Care, a continuation of the landmark Institute of Medicine reports To Err Is Human (2000) and Crossing the Quality Chasm (2001), finds that diagnosis-and, in particular, the occurrence of diagnostic errorsâ€"has been largely unappreciated in efforts to improve the quality and safety of health care. Without a dedicated focus on improving diagnosis, diagnostic errors will likely worsen as the delivery of health care and the diagnostic process continue to increase in complexity. Just as the diagnostic process is a collaborative activity, improving diagnosis will require collaboration and a widespread commitment to change among health care professionals, health care organizations, patients and their families, researchers, and policy makers. The recommendations of Improving Diagnosis in Health Care contribute to the growing momentum for change in this crucial area of health care quality and safety.


Against Medical Advice

Against Medical Advice
Author: Luanne Linnard-Palmer
Publisher: Sigma Theta Tau
Total Pages: 193
Release: 2021-10-25
Genre: Medical
ISBN: 1646480503

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Refusal, delay, or limitation of medical treatments, including vaccines, is an increasing phenomenon facing nurses and other healthcare practitioners daily. When a patient or family refuses treatment—maybe even lifesaving treatment—because it is contrary to their social, religious, or cultural beliefs, it can plunge healthcare providers, families, and patients into a difficult, emotionally charged conversation. Complex and diverse ethical dilemmas such as this can profoundly impact the health, welfare, and mental and emotional well-being of everyone involved. What’s more, today’s nurses and healthcare professionals will almost inevitably face this situation or one like it. Against Medical Advice details many of the medical, legal, social, cultural, and religious factors associated with treatment refusals. Authors Luanne Linnard-Palmer and Ellen Christiansen prepare healthcare professionals to compassionately assess and understand people’s beliefs, cultures, and philosophical perspectives. Their proven strategies and step-by-step examples guide providers to consider the patient’s and family’s point of view, share concerns with other healthcare team members, and negotiate the best possible outcome for all involved. TABLE OF CONTENTS Chapter 1: When Medical Treatment and Patient Needs Clash Chapter 2: Overview and Reasons for Treatment Refusals Chapter 3: Childhood Vaccines, Hesitancy, and Refusals Chapter 4: Pediatric Healthcare, Ethics, and Children’s Rights Chapter 5: Legal Implications and Consent: Informed Consent, Assent, and Parental Permission Chapter 6: Legal Perspectives of Treatment Refusal: Refusal Defined Chapter 7: In the Name of Religion: Historical Influences to Legal Exemptions Chapter 8: Adult Medical Treatment Refusals, Limitations, and Delays Chapter 9: Overview of Religious Doctrines Chapter 10: The Importance of Cultural Competence Chapter 11: Professional Groups’ Reactions to Treatment Refusal: Nursing, Medicine, Researchers, and Journalists Chapter 12: Overview of Professional Interventions: Power Distance, Negotiation, and Safety Appendix A: Reasons for Parental Decisions to Refuse Medical Treatment Appendix B: Guidelines for Staff Facing Parental Refusal of Pediatric Vaccines or Medical Treatments Appendix C: Guidelines for Staff Facing Adult Refusal of Medical Treatments Appendix D: Loss of Parental Guardianship: Court Overriding of a Parent’s Right to Refuse Medical Treatment Appendix E: Common Concerns About Vaccine Administration Appendix F: Pandemics and Trust in Rapid Vaccine Creation, Distribution, and Mandates Appendix G: Best Interest and the Law: Should State Statutes on Child Abuse Be Modified? Appendix H: Spiritual Abuse Defined Appendix I: Resources for More Information AVAILABLE ON THE SIGMA REPOSITORY · Chapter 2: Overview and Reasons for Treatment Refusals · AMA Quick Facts ABOUT THE AUTHORS Luanne Linnard-Palmer, EdD, RN, CPN, is a Professor of Nursing at Dominican University of California in San Rafael, California, and a Pediatric Educational Consultant and Pediatric Clinical Nurse at Sutter Health’s California Pacific Medical Center in San Francisco. Ellen Christiansen, DNP, RN, FNP-BC, PHNA-BC, is an Associate Professor of Nursing at Dominican University of California, where she teaches Community and Public Health Nursing.


Cancer Care for the Whole Patient

Cancer Care for the Whole Patient
Author: Institute of Medicine
Publisher: National Academies Press
Total Pages: 455
Release: 2008-03-19
Genre: Medical
ISBN: 0309134161

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Cancer care today often provides state-of-the-science biomedical treatment, but fails to address the psychological and social (psychosocial) problems associated with the illness. This failure can compromise the effectiveness of health care and thereby adversely affect the health of cancer patients. Psychological and social problems created or exacerbated by cancer-including depression and other emotional problems; lack of information or skills needed to manage the illness; lack of transportation or other resources; and disruptions in work, school, and family life-cause additional suffering, weaken adherence to prescribed treatments, and threaten patients' return to health. Today, it is not possible to deliver high-quality cancer care without using existing approaches, tools, and resources to address patients' psychosocial health needs. All patients with cancer and their families should expect and receive cancer care that ensures the provision of appropriate psychosocial health services. Cancer Care for the Whole Patient recommends actions that oncology providers, health policy makers, educators, health insurers, health planners, researchers and research sponsors, and consumer advocates should undertake to ensure that this standard is met.


For-Profit Enterprise in Health Care

For-Profit Enterprise in Health Care
Author: Institute of Medicine
Publisher: National Academies Press
Total Pages: 580
Release: 1986-01-01
Genre: Medical
ISBN: 0309036437

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"[This book is] the most authoritative assessment of the advantages and disadvantages of recent trends toward the commercialization of health care," says Robert Pear of The New York Times. This major study by the Institute of Medicine examines virtually all aspects of for-profit health care in the United States, including the quality and availability of health care, the cost of medical care, access to financial capital, implications for education and research, and the fiduciary role of the physician. In addition to the report, the book contains 15 papers by experts in the field of for-profit health care covering a broad range of topicsâ€"from trends in the growth of major investor-owned hospital companies to the ethical issues in for-profit health care. "The report makes a lasting contribution to the health policy literature." â€"Journal of Health Politics, Policy and Law.


Fundamentals of Palliative Care for Student Nurses

Fundamentals of Palliative Care for Student Nurses
Author: Megan Rosser
Publisher: John Wiley & Sons
Total Pages: 307
Release: 2014-11-03
Genre: Medical
ISBN: 1118437802

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Fundamentals of Palliative Care for Student Nurses is a thorough yet accessible introduction and overview of a key area of the nursing programme. This textbook clearly explains the palliation of symptoms and the social context of death and dying. Engaging with the latest guidelines and curriculum, it highlights the practical and communicative skills required for induction programmes and continuing professional development. KEY FEATURES: A full-colour, student-friendly, introduction to the essentials of palliative, or end of life care A topical and timely subject area, explored clearly and concisely Full of interactive pedagogy and features, including quizzes, multiple choice questions, vignettes/case studies and activities Features a companion website with links to further reading, additional activities and resources, and self-testing interactive multiple choice questions Fundamentals of Palliative Care for Student Nurses focuses on this area with expert knowledge and compassion, preparing students in order to help them provide the best possible care for their patients and their families.


Refusing Death

Refusing Death
Author: Nadia Y. Kim
Publisher: Stanford University Press
Total Pages: 451
Release: 2021-06-01
Genre: Social Science
ISBN: 1503628183

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The industrial-port belt of Los Angeles is home to eleven of the top twenty oil refineries in California, the largest ports in the country, and those "racist monuments" we call freeways. In this uncelebrated corner of "La La Land" through which most of America's goods transit, pollution is literally killing the residents. In response, a grassroots movement for environmental justice has grown, predominated by Asian and undocumented Latin@ immigrant women who are transforming our political landscape—yet we know very little about these change makers. In Refusing Death, Nadia Y. Kim tells their stories, finding that the women are influential because of their ability to remap politics, community, and citizenship in the face of the country's nativist racism and system of class injustice, defined not just by disproportionate environmental pollution but also by neglected schools, surveillance and deportation, and political marginalization. The women are highly conscious of how these harms are an assault on their bodies and emotions, and of their resulting reliance on a state they prefer to avoid and ignore. In spite of such challenges and contradictions, however, they have developed creative, unconventional, and loving ways to support and protect one another. They challenge the state's betrayal, demand respect, and, ultimately, refuse death.