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Privacy Research and Best Practices

Privacy Research and Best Practices
Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
Total Pages: 67
Release: 2016-02-24
Genre: Computers
ISBN: 0309389224

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Recent disclosures about the bulk collection of domestic phone call records and other signals intelligence programs have stimulated widespread debate about the implications of such practices for the civil liberties and privacy of Americans. In the wake of these disclosures, many have identified a need for the intelligence community to engage more deeply with outside privacy experts and stakeholders. At the request of the Office of the Director of National Intelligence, the National Academies of Sciences, Engineering, and Medicine convened a workshop to address the privacy implications of emerging technologies, public and individual preferences and attitudes toward privacy, and ethical approaches to data collection and use. This report summarizes discussions between experts from academia and the private sector and from the intelligence community on private sector best practices and privacy research results.


Protecting Data Privacy in Health Services Research

Protecting Data Privacy in Health Services Research
Author: Institute of Medicine
Publisher: National Academies Press
Total Pages: 208
Release: 2001-01-13
Genre: Computers
ISBN: 0309071879

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The need for quality improvement and for cost saving are driving both individual choices and health system dynamics. The health services research that we need to support informed choices depends on access to data, but at the same time, individual privacy and patient-health care provider confidentiality must be protected.


Digital Privacy

Digital Privacy
Author: Alessandro Acquisti
Publisher: CRC Press
Total Pages: 494
Release: 2007-12-22
Genre: Business & Economics
ISBN: 1420052187

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During recent years, a continuously increasing amount of personal data has been made available through different websites around the world. Although the availability of personal information has created several advantages, it can be easily misused and may lead to violations of privacy. With growing interest in this area, Digital Privacy: Theory, Technologies, and Practices addresses this timely issue, providing information on state-of-the-art technologies, best practices, and research results, as well as legal, regulatory, and ethical issues. This book features contributions from experts in academia, industry, and government.


Engaging Privacy and Information Technology in a Digital Age

Engaging Privacy and Information Technology in a Digital Age
Author: National Research Council
Publisher: National Academies Press
Total Pages: 450
Release: 2007-06-28
Genre: Computers
ISBN: 0309134005

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Privacy is a growing concern in the United States and around the world. The spread of the Internet and the seemingly boundaryless options for collecting, saving, sharing, and comparing information trigger consumer worries. Online practices of business and government agencies may present new ways to compromise privacy, and e-commerce and technologies that make a wide range of personal information available to anyone with a Web browser only begin to hint at the possibilities for inappropriate or unwarranted intrusion into our personal lives. Engaging Privacy and Information Technology in a Digital Age presents a comprehensive and multidisciplinary examination of privacy in the information age. It explores such important concepts as how the threats to privacy evolving, how can privacy be protected and how society can balance the interests of individuals, businesses and government in ways that promote privacy reasonably and effectively? This book seeks to raise awareness of the web of connectedness among the actions one takes and the privacy policies that are enacted, and provides a variety of tools and concepts with which debates over privacy can be more fruitfully engaged. Engaging Privacy and Information Technology in a Digital Age focuses on three major components affecting notions, perceptions, and expectations of privacy: technological change, societal shifts, and circumstantial discontinuities. This book will be of special interest to anyone interested in understanding why privacy issues are often so intractable.


Privacy, Big Data, and the Public Good

Privacy, Big Data, and the Public Good
Author: Julia Lane
Publisher: Cambridge University Press
Total Pages: 343
Release: 2014-06-09
Genre: Computers
ISBN: 1107067359

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Data access is essential for serving the public good. This book provides new frameworks to address the resultant privacy issues.


Human Factors in Privacy Research

Human Factors in Privacy Research
Author: Nina Gerber
Publisher: Springer Nature
Total Pages: 380
Release: 2023-09-17
Genre: Psychology
ISBN: 303128643X

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This book covers topics needed to be considered in research around usable privacy. The book starts from a psychological perspective and introduces readers to basic behavioral theories and models that can explain end-user privacy behavior (including the “privacy paradox”) on a theoretical level. Subsequently, an introduction to different study methods (e.g., experiment, survey, interviews, co-creation) used in usable privacy research is given. Based on this, different methodological aspects, such as identifying appropriate questionnaires, and applying User-Centered Design, will be discussed. Finally, the book describes application areas for privacy research such as dark patterns and presents solutions for privacy protection, e.g., regarding consent-giving and PETs. The book aims to bring together the different research approaches to the topic of usable privacy, which often originate from computer science, psychology, and law, and provide a methodologically sound basis for researchers who want to delve deeper into this topic. This is an open access book.


OECD Health Policy Studies Health Data Governance Privacy, Monitoring and Research

OECD Health Policy Studies Health Data Governance Privacy, Monitoring and Research
Author: OECD
Publisher: OECD Publishing
Total Pages: 202
Release: 2015-10-05
Genre:
ISBN: 9264244565

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This report identifies eight key data governance mechanisms to maximise benefits to patients and to societies from the collection, linkage and analysis of health data, and to minimise risks to both patient privacy and the security of health data.


Privacy, Confidentiality, and Health Research

Privacy, Confidentiality, and Health Research
Author: William W. Lowrance
Publisher: Cambridge University Press
Total Pages: 203
Release: 2012-06-21
Genre: Law
ISBN: 1139510827

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The potential of the e-health revolution, increased data sharing, database linking, biobanks and new techniques such as geolocation and genomics to advance human health is immense. For the full potential to be realized, though, privacy and confidentiality will have to be dealt with carefully. Problematically, many conventional approaches to such pivotal matters as consent, identifiability, and safeguarding and security are inadequate. In many places, research is impeded by an overgrown thicket of laws, regulations, guidance and governance. The challenges are being heightened by the increasing use of biospecimens, and by the globalization of research in a world that has not globalized privacy protection. Drawing on examples from many developed countries and legal jurisdictions, the book critiques the issues, summarizes various ethics, policy, and legal positions (and revisions underway), describes innovative solutions, provides extensive references and suggests ways forward.


Principles and Practice of Clinical Research

Principles and Practice of Clinical Research
Author: John I. Gallin
Publisher: Academic Press
Total Pages: 824
Release: 2017-11-17
Genre: Science
ISBN: 0128499044

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Principles and Practice of Clinical Research, Fourth Edition has been thoroughly revised to provide a comprehensive look at both the fundamental principles and expanding practice of clinical research. New to this edition of this highly regarded reference, authors have focused on examples that broadly reflect clinical research on a global scale while including a discussion of international regulations, studies, and implications. In addition to key topics such as bioethics, clinical outcome data, cultural diversity, protocol guidelines, and “omic platforms, this edition contains new chapters devoted to electronic health records and information resources for clinical researchers, as well as the many opportunities associated with big data. Covering a vast number of topics and practical advice for both novice and advanced clinical investigators, this book is a highly relevant and essential resource for all those involved in conducting research. Features input from experts in the field dedicated to translating scientific research from bench to bedside and back Provides expanded coverage of global clinical research Contains hands-on, practical suggestions, illustrations, and examples throughout Includes new chapters on the international regulation of drugs and biologics, the emergence of the important role of comparative effectiveness research and how to identify clinical risks and manage patient safety in a clinical research setting