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Perinatal Palliative Care

Perinatal Palliative Care
Author: Erin M. Denney-Koelsch
Publisher: Springer Nature
Total Pages: 443
Release: 2020-02-05
Genre: Medical
ISBN: 3030347516

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This unique book is a first-of-its-kind resource that comprehensively covers each facet and challenge of providing optimal perinatal palliative care. Designed for a wide and multi-disciplinary audience, the subjects covered range from theoretical to the clinical and the practically relevant, and all chapters include case studies that provide real-world scenarios as additional teaching tools for the reader. Perinatal Palliative Care: A Clinical Guide is divided into four sections. Part One provides the foundation, covering an overview of the field, key theories that guide the practice of perinatal palliative care, and includes a discussion of perinatal ethics and parental experiences and needs upon receiving a life-limiting fetal diagnosis. Part Two delves further into practical clinical care, guiding readers through issues of obstetrical management, genetic counseling, neonatal pain management, non-pain symptom management, spiritual care, and perinatal bereavement care. Part Three discusses models of perinatal palliative care, closely examining evidence for different types of PPC programs: from hospital-based programs, to community-based care, and examines issues of interdisciplinary PPC care coordination, birth planning, and team support. Finally, Part Four concludes the book with a close look at special considerations in the field. In this section, racial, ethnic, and cultural perspectives and implications for PPC are discussed, along with lessons in how to provide PPC for a wide-range of clinical and other healthcare workers. The book closes with a look to the future of the field of perinatal palliative care. Thorough and practical, Perinatal Palliative Care: A Clinical Guide is an ideal resource for any healthcare practitioner working with these vulnerable patient populations, from palliative care specialists, to obstetricians, midwifes, neonatologists, hospice providers, nurses, doulas, social workers, chaplains, therapists, ethicists, and child life specialists.


Perinatal Palliative Care

Perinatal Palliative Care
Author: Paola Lago
Publisher: Frontiers Media SA
Total Pages: 116
Release: 2021-08-03
Genre: Medical
ISBN: 2889711412

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Handbook of Perinatal and Neonatal Palliative Care

Handbook of Perinatal and Neonatal Palliative Care
Author: Rana Limbo, PhD, RN, CPLC, FAAN
Publisher: Springer Publishing Company
Total Pages: 440
Release: 2019-11-11
Genre: Medical
ISBN: 082613842X

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The first resource of its kind, this authoritative handbook holistically addresses the multidimensional aspects of perinatal and neonatal palliative care. Written by an interprofessional team of renowned specialists, it is both a text and an evidencebased reference for all members of the palliative care team. This book helps individual team members forge interdisciplinary approaches to care, assess current programs, improve the quality of care, and tailor new models of care. Encompassing the perspectives of numerous multidisciplinary healthcare providers, the book underscores the unique aspects of perinatal and neonatal palliative care, with a focus on improving quality of life, as well as comfort at the end of life. It describes healthcare for neonates and pregnant mothers, care and support of the family, planning and decision-making, and effective support for grief and bereavement, addressing all palliative and neonatal care settings. Other chapters focus on the prenatal period after diagnosis of the expected baby's life-threatening condition. These include such topics as care of the mother, delivering devastating news, and advance care planning. Each chapter contains photos, figures, and/or tables and case studies with clinical implications and critical thinking questions. Also included is an extensive listing of relevant palliative care organizations. Paintings and poetry provide an artistic backdrop to the authors' inspiring words. Key Features: Addresses a growing need for specific provider resources in neonatal palliative care Covers the clinical and emotional aspects of palliative care for babies and their families Abundant resources for effective and compassionate family-centered care Case studies with critical thinking questions Accompanying video clips of healthcare and family interactions Supplemental image bank included


Neonatal Palliative Care for Nurses

Neonatal Palliative Care for Nurses
Author: Alexandra Mancini
Publisher: Springer Nature
Total Pages: 407
Release: 2020-01-22
Genre: Medical
ISBN: 303031877X

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This textbook details the nursing care of babies with life limiting conditions and sets the context within the philosophy of internationally collaborative neonatal palliative care emphasising emotional and practical support for their families. Currently, increasing interest from nursing and medical fields regarding palliative care for babies in the antenatal and neonatal period is evident. This innovative and unique text provides experienced nurses and student nurses alike with realistic guidance in caring for babies with palliative care needs, alongside the crucial support for their families and identifies important strategies for professional self care. Nursing experts in this field collaborated to develop a reference book which supports holistic and integrated clinical practice. Parents’ experiences of what they consider helpful or not so helpful are interwoven throughout the chapter. There is currently no other textbook which offers the above information and guidance specifically for nurses and allied health professionals. As such this book will appeal to all nurses and health professionals working within the neonatal palliative care specialty in a global context.


Pediatric Palliative Care

Pediatric Palliative Care
Author: Betty Ferrell
Publisher:
Total Pages: 161
Release: 2016
Genre: Family & Relationships
ISBN: 0190244186

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Pediatric palliative care is a field of significant growth as health care systems recognize the benefits of palliative care in areas such as neonatal intensive care, pediatric ICU, and chronic pediatric illnesses. Pediatric Palliative Care, the fourth volume in the HPNA Palliative Nursing Manuals series, highlights key issues related to the field. Chapters address pediatric hospice, symptom management, pediatric pain, the neonatal intensive care unit, transitioning goals of care between the emergency department and intensive care unit, and grief and bereavement in pediatric palliative care. The content of the concise, clinically focused volumes in the HPNA Palliative Nursing Manuals series is one resource for nurses preparing for specialty certification exams and provides a quick-reference in daily practice. Plentiful tables and patient teaching points make these volumes useful resources for nurses.


A Gift of Time

A Gift of Time
Author: Amy Kuebelbeck
Publisher: JHU Press
Total Pages: 445
Release: 2023-09-05
Genre: Family & Relationships
ISBN: 1421446715

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Now updated and expanded—a gentle and comprehensive guide for parents expecting a baby with a prenatal diagnosis of a life-limiting condition. When prenatal testing reveals that a baby is expected to die before or shortly after birth, many parents choose to proceed with the pregnancy and embrace the time they are able to have with their baby, before birth as well as afterward. With compassion and support, A Gift of Time walks these parents step-by-step through this challenging and emotional experience—from receiving the diagnosis to coping with the pregnancy and making plans for the baby's birth and peaceful death. The second edition of this gentle guide offers inspiration and reassurance through the voices of numerous parents who have walked this path with their beloved baby. Their moving experiences are stories not only of grief but of joy and peace. This edition: • Expands the content substantially to incorporate new research and guidelines • Features additional vignettes from more than 160 parents about their experiences and coping strategies • Offers encouragement and more practical ideas for moving forward, including updated guidance for decision-making and ideas for embracing the time with the baby, from before birth to after death • Describes the importance of perinatal hospice and palliative care, which has continued to grow worldwide since the first edition was published, and how to access this care Drawing from parent experiences and published research, this new edition is full of practical suggestions for parents as well as health care professionals. Caring and thoughtful, A Gift of Time helps parents navigate this difficult news and the journey that follows.


A Virtue-Based Defense of Perinatal Hospice

A Virtue-Based Defense of Perinatal Hospice
Author: Aaron D Cobb
Publisher: Routledge
Total Pages: 196
Release: 2021-09-30
Genre:
ISBN: 9781032177588

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This book develops a virtue-based defense of the value of perinatal hospice. Engaging with important themes from the work of MacIntyre and Adams, it shows how perinatal hospice manifests virtues crucial to meeting the needs of families in these difficult circumstances.


Palliative Care for Infants, Children, and Adolescents

Palliative Care for Infants, Children, and Adolescents
Author: Brian S. Carter
Publisher: JHU Press
Total Pages: 769
Release: 2011-10-15
Genre: Medical
ISBN: 1421402130

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There are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition. Written by leading researchers, clinicians from relevant disciplines, family members, and advocates, this practical guide provides professionals involved in pediatric palliative and end-of-life care with comprehensive information in a single volume. Thoroughly updated and expanded, this edition includes chapters addressing the unique challenges facing children with HIV/AIDS and their families, care in home and ICU settings, difficult decision-making processes, and the importance of communication with the child and family, as well as completely new chapters on spiritual dimensions of care and educational and advocacy initiatives. Intended for primary care physicians, pediatric practitioners and specialists, home care and hospice personnel, pastoral counselors, and affected families, the book includes useful resource and reference material and practical, hands-on tips. With contributions from an international group of expert educators, clinicians, and parents, this book takes a truly interdisciplinary approach to pediatric palliative care, presenting best practices, clear instruction, and the latest information and research for anyone involved in pediatric palliative and end-of-life care.


Waiting with Gabriel

Waiting with Gabriel
Author: Amy Kuebelbeck
Publisher: Loyola Press
Total Pages: 194
Release: 2003
Genre: Biography & Autobiography
ISBN: 9780829416039

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Amy Kuebelbeck shares how she and her husband made the decision to forgo extreme measures to save her son Gabriel after learning at five months pregnant he suffered from hypoplastic left heart syndrome and discusses how they prepared for his inevitable death after being born.


Pediatric Palliative Care

Pediatric Palliative Care
Author: Lindsay B. Ragsdale
Publisher: Oxford University Press
Total Pages: 230
Release: 2020-02-03
Genre: Medical
ISBN: 0190051876

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The first volume in the "What Do I Do Now?: Palliative Care" series, Pediatric Palliative Care uses a case-based palliative care approach to cover common and important topics in the examination, investigation, and management of children with serious illness. Each chapter provides a discussion of the diagnosis, key points to remember, and selected references for further reading. The book addresses a wide range of topics, including the goals of care, symptom management, care for neonatal and adolescent populations, and the emotional, social, cultural and spiritual needs of ill children and their families. Written by authors from a variety of fields such as nursing, chaplaincy, social work, and psychology, this book is suited for pediatricians, palliative care and hospice providers, nurses, and allied health practitioners. Pediatric Palliative Care is an engaging collection of thought-provoking cases which clinicians can utilize when they encounter difficult patients. The volume is also a self-assessment tool that tests the reader's ability to answer the question, "What do I do now?"