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My Journey with Long Covid

My Journey with Long Covid
Author: Mirko Niederprüm
Publisher: via tolino media
Total Pages: 21
Release: 2023-03-02
Genre: Fiction
ISBN: 375790950X

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Through my own experiences with Long Covid, I have learned the importance of listening to my body's needs and not pushing myself too hard. I have also learned how crucial it is to receive good medical care and how challenging it can be to obtain it at times. However, through my support group and exchanging with other Long Covid patients, I was able to focus on the positive aspects of life and concentrate on my recovery. We supported and motivated each other and shared information on what we could do to alleviate our symptoms and improve our lives. I encourage all Long Covid patients not to be discouraged and to focus on their recovery. Together, we can support each other. As a Long Covid patient, I want to encourage others and emphasize the importance of paying attention to this disease. Long Covid is a serious illness that is often not fully understood. It is important that we support each other and listen to the experiences of others to better manage our symptoms. Supporting each other and raising awareness of this illness can help others understand how serious it is and how important it is to treat it.


The Long COVID Reader

The Long COVID Reader
Author: Mary Ladd
Publisher: Long Hauler Publishing
Total Pages: 242
Release: 2023-11-15
Genre: Biography & Autobiography
ISBN:

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COVID-19 is possibly the world’s biggest mass-disabling event. This ambitious book gives a humanized view of chronic illness while offering a poignant reminder of the millions of people with long COVID. The collection is rich with living history from the stories, essays, and poems of 45 long haulers. Writer Mary Ladd, a one-time Anthony Bourdain collaborator, leads the team behind an accessible paperback, offering tales of persisting symptoms and navigating the healthcare system to poignant reflections on grief, loss, and hope. This anthology is a must-read for anyone seeking a deeper understanding of the long-term effects of COVID-19. * Featuring Andrew David King, Pato Hebert, Nina Storey, Emily Pinkerton, Morgan Stephens, Nikki Stewart, Sonya Huber, Ann E. Wallace, Alexis Misko, and others. * Uses a patient-centric, experiential literary approach that is brave and insightful. * A powerful testament to human resilience, strength, and solidarity. “Being part of the first-ever Long COVID Reader is significant because the pandemic was a first for the world, and our stories matter. This book is meaningful as it enables the forgotten Long COVID community to break their silence and contributes to the next phase of my healing journey." —Dr. Sabrina McQueen Johnson, wife, mother, and retired school principal. "Surviving COVID was a gift of new life. As a long hauler, I am reminded of that every day. The Long COVID Reader will be a gift that keeps on giving to others." —Steven Lewis, author, poet, a former mentor at Empire State College, and current Sarah Lawrence College Writing Institute faculty. "I want to share my story so no other woman is made to believe her symptoms are all in her head. May our narratives provide solidarity for patients, information for caregivers and providers, and increased awareness and urgency for action from the masses." —Haley Nelson, age 19. She was athletic, academic, and animated before Long-COVID, ME/CFS, POTS, and small fiber neuropathy uprooted her life. Fans of The Invisible Kingdom: Reimagining Chronic Illness, The Long Haul, and The Long COVID Survival Guide will love this book. This book is a must-read for * Anyone experiencing long COVID symptoms * Caregivers, family, friends, and anyone looking to understand long COVID * Medical professionals and researchers


The Long Covid Self-Help Guide

The Long Covid Self-Help Guide
Author: The Specialists from the Post-Covid Clinic, Oxford
Publisher: Bloomsbury Publishing
Total Pages: 209
Release: 2022-03-17
Genre: Health & Fitness
ISBN: 1399402005

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The first practical, accessible self-help guide to managing symptoms of Long Covid More than 1 million people suffer from Long Covid in the UK (with 400,000 people suffering symptoms for over a year), and many more globally. Yet there is no clear guidance available to the general public, and lots of misinformation out there. This handbook cuts through the confusing advice. Written by the medical experts working with Long Covid patients at one of the first specialist clinics set up, it is filled with helpful case studies and was written with the involvement of real Long Covid sufferers. The focus is on self-management with a simple, consistent message about improving symptoms. Each chapter takes a different issue in turn and offers clear, friendly guidance on key areas such as breathlessness, psychological aspects, brain fog, fatigue, returning to exercise and returning to work.


The Long Covid Handbook

The Long Covid Handbook
Author: Gez Medinger
Publisher: Random House
Total Pages: 213
Release: 2022-10-20
Genre: Health & Fitness
ISBN: 1804941387

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Understand, manage, and treat Long Covid. Reports suggest that over 100m people around the world are living with Long Covid (more than 1.5m in the UK) yet reliable, clear information and guidance remains scarce. This book is the definitive guide to understanding, managing and treating the condition. Written by the world's leading immunologist Professor Danny Altmann and expert patient Gez Medinger, The Long Covid Handbook translates cutting-edge science, patient-led research and practical guidance with clarity. This book will equip you with expert information and advice on: - Long Covid's 200 symptoms, which include fatigue, brain fog, breathlessness and more - Tips for recovery - Which treatments are most effective and why - Who is most susceptible to the condition and why - What we can learn about Long Covid from other chronic illnesses - The impact on mental health This is the essential guide for anyone living with the condition, as well as clinicians seeking to better understand this little-understood illness.


The Long COVID Survival Guide: How to Take Care of Yourself and What Comes Next - Stories and Advice from Twenty Long-Haulers and Experts

The Long COVID Survival Guide: How to Take Care of Yourself and What Comes Next - Stories and Advice from Twenty Long-Haulers and Experts
Author: Fiona Lowenstein
Publisher: The Experiment, LLC
Total Pages: 308
Release: 2022-11-08
Genre: Health & Fitness
ISBN: 161519911X

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The first patient-to-patient guide for people living with Long COVID—with expert advice on getting diagnosed, dealing with symptoms, accessing resources and accommodations, and more. “The Long COVID Survival Guide aims to give people struggling with long COVID practical solutions and emotional support to manage their illness.”—NPR, It’s Been a Minute For people living with Long COVID, navigating the uncharted territory of this new chronic illness can be challenging. With over two hundred unique symptoms, and with doctors continuing to work toward a cure, people experiencing Long COVID are often left with more questions than answers. A support group in book form, The Long COVID Survival Guide is here to help. Twenty contributors—from award-winning journalists, neuroscientists, and patient-researchers to corporate strategists, activists, and artists—share their stories and insight on topics including: getting diagnosed finding a caregiver confronting medical racism and gaslighting navigating employment issues dealing with fatigue and brain fog caring for your mental health, and more. This vital resource provides the answers and reassurance you need, to take care of yourself and prepare for what comes next. Contributors: Karyn Bishof, JD Davids, Pato Hebert, Heather Hogan, Monique Jackson, Naina Khanna, Lisa McCorkell, Karla Monterroso, Dona Kim Murphey, Padma Priya, David Putrino, Yochai Re’em, Rachel Robles, Alison Sbrana, Chimére L. Smith, Letícia Soares, Morgan Stephens, and Terri L. Wilder


The Long Haul

The Long Haul
Author: Ryan Prior
Publisher: MIT Press
Total Pages: 337
Release: 2024-03-05
Genre: Medical
ISBN: 0262548151

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How survivors of the Covid-19 pandemic battling long-term disabling conditions are fighting for recognition and research—and helping to transform healthcare for many overlooked diseases. To the world’s public health authorities, Covid-19 would be either a deadly disease for some or a simple respiratory illness for most, its symptoms clearing up in just a matter of weeks. But then tens of millions around the world got sick and stayed sick. With scientists and doctors caught off guard, these Long Covid patients often found solace only with one another, organizing support groups across oceans and continents while ill in bed. In The Long Haul, CNN journalist Ryan Prior weaves his own life, the stories of activist patients, and the latest science into a captivating tale of regular people crying out for care that actually works. What Covid “long haulers” found was that their new illness was not so new. In fact, it resembled other post-viral syndromes: difficult to treat and neglected by science. In riveting and accessible prose, Prior follows an innovative band of patients who took matters into their own hands and researched the disease themselves, thereby flipping the script and illustrating a new paradigm for research. In these unprecedented times, the CDC and the WHO came to them. As Covid continues to circulate, its long-term effects could grow as well, weighing on the healthcare system for decades to come. But, as Prior shows, getting Long Covid treatments right could help revolutionize care for all complex and chronic illnesses.


39 Days

39 Days
Author: P.W. Hemsing
Publisher:
Total Pages: 0
Release: 2023
Genre: COVID-19 (Disease)
ISBN:

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Unravelling Long COVID

Unravelling Long COVID
Author: Don Goldenberg
Publisher: John Wiley & Sons
Total Pages: 261
Release: 2022-11-21
Genre: Science
ISBN: 1119891329

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Unravelling Long COVID An authoritative medical reference on the various ways in which Long-COVID presents and an in-depth discussion of its mechanisms and potential therapeutic options. Unravelling Long COVID aims to provide a better awareness and understanding of the persistent health problems that can arise following SARS-CoV-2 infection. Variously described as Long-COVID, Long-Haulers’ Syndrome, and Post-Acute Sequelae of SARS-CoV-2, this newly-designated disorder is estimated to have affected somewhere between 50 to 250 million people. It is in fact considered by many as the next global public health disaster. With such a broad and important topic, the authors of Unravelling Long COVID have focused primarily on two major problems in the current understanding of Long-COVID: 1.) the failure to distinguish patients with organ damage—here called Long-COVID Disease – and those with unexplained, persistent symptoms—what is termed Long-COVID syndrome, and 2.) the failure of current medical approaches to comprehend and treat those persistent unexplained symptoms. Unravelling Long COVID is: One of the first books focused specifically on defining and understanding Long-COVID with the goal of establishing optimal management A unique reference to distinguish patients with organ damage caused by Long-COVID disease from those with unexplained, persistent symptoms that manifest as Long-COVID syndrome An in-depth exploration of neuroimmune pathways to help clarify the previously unexplained symptoms of Long-COVID Unravelling Long COVID isan essential reference for anyone interested in Long-COVID and the impact that this condition has had on the population. It will be a useful resource for both patients suffering from the Long-Covid syndrome, their physicians and for the growing number of Long-COVID clinics that have been established across the US, the UK, and other countries. This book is paired with a long-COVID blog, updated regularly by the authors, so the reader will be kept up to date with new clinical and research findings, in real time. To visit this site, follow this link: unravellinglongcovid.com – providing the latest information on long-COVID


Clearing the Fog

Clearing the Fog
Author: James C. Jackson
Publisher: Little, Brown Spark
Total Pages: 271
Release: 2023-05-09
Genre: Health & Fitness
ISBN: 0316530298

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“An essential guide” (Mark Hyman, author of Young Forever) to navigating life with the cognitive and mental health impairments that often accompany Long Covid. Early in the Covid-19 pandemic, the shocking mortality figures obscured the fact that death is not the only adverse outcome of the virus. Today, as many as 30 percent of Covid-19 survivors still experience symptoms long after their acute illness has passed, with cognitive and mental health problems especially prominent. For long haulers, this struggle with Long Covid has irrevocably changed their lives. Many have lost their ability to work, attend school, and look after their children. They often feel misunderstood and dismissed by others. Their once-full lives are now filled only with doctors' appointments that seem more and more futile. In Clearing the Fog, neuropsychologist Dr. James C. Jackson offers people suffering from Long Covid and their families a roadmap to help them manage their “new normal.” Focusing on cognitive impairment and mental health issues, he shows readers: The ways in which they can manifest and disrupt Suggestions for how and when to seek professional evaluations Science-based treatment options and strategies, Information on navigating health care systems and disability insurance Validation and hope as patients wrestle with their new diagnosis In addition, Dr. Jackson shares his own experience with chronic illness, relating to long haulers with vulnerability and compassion. Through moving stories as well as hands-on guidance, Clearing the Fog will help long haulers understand their current situation while offering multiple ways to address it, make sense of it, and move through it with the goal of thriving instead of merely surviving.


Understanding the Behavioral and Medical Impact of Long COVID

Understanding the Behavioral and Medical Impact of Long COVID
Author: Leonard A. Jason
Publisher: Taylor & Francis
Total Pages: 298
Release: 2023-04-13
Genre: Health & Fitness
ISBN: 1000874737

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Understanding the Behavioral and Medical Impact of Long COVID serves to expand the research around the illness in order to enable health care researchers and practitioners to address the questions that are imperative to individuals suffering from this condition. Through its multi-faceted approach, the book puts forth a maturation of research and interventions that are theoretically sound, empirically valid, innovative, and creative in the Long COVID area. As a scholarly and scientific compilation of Long COVID symptoms and related disorders, this book offers unparalleled insight into the critical developments across medical areas treating this illness. It helps to fill the space that the pandemic had created for knowledge of the condition, and contributes to the emerging emphasis on translational research blending the social sciences and biological fields. By putting forth the most optimal medical care practices in the treatment of complex Long COVID symptoms, this practical anthology will serve as a guide for practicing clinicians in assessment as well as treatment. It will also benefit researchers aiming to gain more understanding of Long COVID through its discussion around the critical developments in other medical areas treating the condition, and paves the way for the collaboration and future research needed to best support the global effort to mitigate the effects of this illness. This book will be essential reading for academics, practitioners, and researchers. It will appeal to individuals engaging with the fields of medicine, public policy, psychology, and for researchers looking to gain clarity about our current understanding of Long COVID. It will further be of interest to public/government agencies, nonprofit organizations, and the general public wanting to gain more information about these ambiguous and evasive symptoms.