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Developing a Protocol for Observational Comparative Effectiveness Research: A User's Guide

Developing a Protocol for Observational Comparative Effectiveness Research: A User's Guide
Author: Agency for Health Care Research and Quality (U.S.)
Publisher: Government Printing Office
Total Pages: 204
Release: 2013-02-21
Genre: Medical
ISBN: 1587634236

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This User’s Guide is a resource for investigators and stakeholders who develop and review observational comparative effectiveness research protocols. It explains how to (1) identify key considerations and best practices for research design; (2) build a protocol based on these standards and best practices; and (3) judge the adequacy and completeness of a protocol. Eleven chapters cover all aspects of research design, including: developing study objectives, defining and refining study questions, addressing the heterogeneity of treatment effect, characterizing exposure, selecting a comparator, defining and measuring outcomes, and identifying optimal data sources. Checklists of guidance and key considerations for protocols are provided at the end of each chapter. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews. More more information, please consult the Agency website: www.effectivehealthcare.ahrq.gov)


Patient-Reported Outcomes in Performance Measurement

Patient-Reported Outcomes in Performance Measurement
Author: David Cella
Publisher: RTI Press
Total Pages: 97
Release: 2015-09-17
Genre: Medical
ISBN: 193483114X

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Patient-reported outcomes (PROs) are measures of how patients feel or what they are able to do in the context of their health status; PROs are reports, usually on questionnaires, about a patient's health conditions, health behaviors, or experiences with health care that individuals report directly, without modification of responses by clinicians or others; thus, they directly reflect the voice of the patient. PROs cover domains such as physical health, mental and emotional health, functioning, symptoms and symptom burden, and health behaviors. They are relevant for many activities: helping patients and their clinicians make informed decisions about health care, monitoring the progress of care, setting policies for coverage and reimbursement of health services, improving the quality of health care services, and tracking or reporting on the performance of health care delivery organizations. We address the major methodological issues related to choosing, administering, and using PROs for these purposes, particularly in clinical practice settings. We include a framework for best practices in selecting PROs, focusing on choosing appropriate methods and modes for administering PRO measures to accommodate patients with diverse linguistic, cultural, educational, and functional skills, understanding measures developed through both classic and modern test theory, and addressing complex issues relating to scoring and analyzing PRO data.


Measuring the Quality of Health Care

Measuring the Quality of Health Care
Author: The National Roundtable on Health Care Quality
Publisher: National Academies Press
Total Pages: 42
Release: 1999-02-23
Genre: Medical
ISBN: 0309570689

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The National Roundtable on Health Care Quality was established in 1995 by the Institute of Medicine. The Roundtable consists of experts formally appointed through procedures of the National Research Council (NRC) who represent both public and private-sector perspectives and appropriate areas of substantive expertise (not organizations). From the public sector, heads of appropriate Federal agencies serve. It offers a unique, nonadversarial environment to explore ongoing rapid changes in the medical marketplace and the implications of these changes for the quality of health and health care in this nation. The Roundtable has a liaison panel focused on quality of care in managed care organizations. The Roundtable convenes nationally prominent representatives of the private and public sector (regional, state and federal), academia, patients, and the health media to analyze unfolding issues concerning quality, to hold workshops and commission papers on significant topics, and when appropriate, to produce periodic statements for the nation on quality of care matters. By providing a structured opportunity for regular communication and interaction, the Roundtable fosters candid discussion among individuals who represent various sides of a given issue.


Mental Health Outcome Measures

Mental Health Outcome Measures
Author: Graham Thornicroft
Publisher: Springer Science & Business Media
Total Pages: 367
Release: 2012-12-06
Genre: Medical
ISBN: 3642802028

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Mental Health Outcome Measures provides an authoritative review of measurement scales currently available to assess the outcomes of mental health service intervention. The excerpt of summaries by leading writers in the field assess the contributions of scale in areas including mental state examination, quality of life, patient satisfaction, needs assessments, measurement of service cost, global functioning scales, and social disability. These chapters provide a critical appraisal of how far such scales have been shown to be reliable and valid, and provide valuable insights in to their ease of use. This book will provide an invaluable reference manual for those who want to take research on mental health services, and for those who need to interpret this research for policy, planning, and clinical practice.


Outcome Measures and Evaluation in Counselling and Psychotherapy

Outcome Measures and Evaluation in Counselling and Psychotherapy
Author: Chris Evans
Publisher: SAGE
Total Pages: 130
Release: 2021-09-29
Genre: Psychology
ISBN: 1473922925

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This book sets in context the role of outcome measurement research - taking you step-by-step through the research process and beyond to consider the wider professional and ethical issues involved. This book will provide you with everything you need to know and more, helping you develop the skills and knowledge you need to become a successful research-informed practitioner. Written for trainees and counselling and psychotherapy practitioners, this book: - Provides you with a brief overview and history of research and measurement in mental health contexts. - Sets out a framework for understanding the core features of outcome measures and their scope. - Takes you step-to-step through the process of implementing a SMART outcome evaluation. - Addresses the benefits and limitations of outcome measures research for the individual client, practitioner and service provider. Packed full of case studies, activities and tools for real-life practice, this book throws a life belt to all counselling and psychotherapy trainees and practitioners looking to make the best start in their research-informed career. Chris Evans is Visiting Professor at the University of UDLA, Ecuador and an Honorary Professor at the University of Roehampton. Jo-anne Carlyle is Director of PSYCTC.com


Tracking Mental Health Outcomes

Tracking Mental Health Outcomes
Author: Donald E. Wiger
Publisher: John Wiley & Sons
Total Pages: 308
Release: 2001-03-30
Genre: Medical
ISBN:

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This book provides therapists guidance on choosing the best outcomes- tracking methods and instruments. It explains how to integrate them into everyday clinical procedures and use the data they supply to improve the quality of care and comply with insurance and regulatory agency requirements. Both intraclient and normative approaches are described. Case studies illustrate how to perform and document outcomes assessment. Wiger is a practicing psychologist. Solberg teaches at the Minnesota School of Professional Psychology. Annotation copyrighted by Book News Inc., Portland, OR.


Measuring the Impact of Interprofessional Education on Collaborative Practice and Patient Outcomes

Measuring the Impact of Interprofessional Education on Collaborative Practice and Patient Outcomes
Author: Institute of Medicine
Publisher: National Academies Press
Total Pages: 183
Release: 2015-12-15
Genre: Medical
ISBN: 0309372852

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Interprofessional teamwork and collaborative practice are emerging as key elements of efficient and productive work in promoting health and treating patients. The vision for these collaborations is one where different health and/or social professionals share a team identity and work closely together to solve problems and improve delivery of care. Although the value of interprofessional education (IPE) has been embraced around the world - particularly for its impact on learning - many in leadership positions have questioned how IPE affects patent, population, and health system outcomes. This question cannot be fully answered without well-designed studies, and these studies cannot be conducted without an understanding of the methods and measurements needed to conduct such an analysis. This Institute of Medicine report examines ways to measure the impacts of IPE on collaborative practice and health and system outcomes. According to this report, it is possible to link the learning process with downstream person or population directed outcomes through thoughtful, well-designed studies of the association between IPE and collaborative behavior. Measuring the Impact of Interprofessional Education on Collaborative Practice and Patient Outcomes describes the research needed to strengthen the evidence base for IPE outcomes. Additionally, this report presents a conceptual model for evaluating IPE that could be adapted to particular settings in which it is applied. Measuring the Impact of Interprofessional Education on Collaborative Practice and Patient Outcomes addresses the current lack of broadly applicable measures of collaborative behavior and makes recommendations for resource commitments from interprofessional stakeholders, funders, and policy makers to advance the study of IPE.


Rehabilitation in Movement Disorders

Rehabilitation in Movement Disorders
Author: Robert Iansek
Publisher: Cambridge University Press
Total Pages: 263
Release: 2013-05-23
Genre: Medical
ISBN: 110701400X

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Provides a broad overview of current rehabilitation approaches, emphasizing the need for interdisciplinary management and focussing on deliverable outcomes.


Registries for Evaluating Patient Outcomes

Registries for Evaluating Patient Outcomes
Author: Agency for Healthcare Research and Quality/AHRQ
Publisher: Government Printing Office
Total Pages: 396
Release: 2014-04-01
Genre: Medical
ISBN: 1587634333

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This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.


Best Care at Lower Cost

Best Care at Lower Cost
Author: Institute of Medicine
Publisher: National Academies Press
Total Pages: 437
Release: 2013-05-10
Genre: Medical
ISBN: 0309282810

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America's health care system has become too complex and costly to continue business as usual. Best Care at Lower Cost explains that inefficiencies, an overwhelming amount of data, and other economic and quality barriers hinder progress in improving health and threaten the nation's economic stability and global competitiveness. According to this report, the knowledge and tools exist to put the health system on the right course to achieve continuous improvement and better quality care at a lower cost. The costs of the system's current inefficiency underscore the urgent need for a systemwide transformation. About 30 percent of health spending in 2009-roughly $750 billion-was wasted on unnecessary services, excessive administrative costs, fraud, and other problems. Moreover, inefficiencies cause needless suffering. By one estimate, roughly 75,000 deaths might have been averted in 2005 if every state had delivered care at the quality level of the best performing state. This report states that the way health care providers currently train, practice, and learn new information cannot keep pace with the flood of research discoveries and technological advances. About 75 million Americans have more than one chronic condition, requiring coordination among multiple specialists and therapies, which can increase the potential for miscommunication, misdiagnosis, potentially conflicting interventions, and dangerous drug interactions. Best Care at Lower Cost emphasizes that a better use of data is a critical element of a continuously improving health system, such as mobile technologies and electronic health records that offer significant potential to capture and share health data better. In order for this to occur, the National Coordinator for Health Information Technology, IT developers, and standard-setting organizations should ensure that these systems are robust and interoperable. Clinicians and care organizations should fully adopt these technologies, and patients should be encouraged to use tools, such as personal health information portals, to actively engage in their care. This book is a call to action that will guide health care providers; administrators; caregivers; policy makers; health professionals; federal, state, and local government agencies; private and public health organizations; and educational institutions.