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Living with Illness: Jasper's Story - Living with Cystic Fibrosis

Living with Illness: Jasper's Story - Living with Cystic Fibrosis
Author: Andy Glynne
Publisher: Franklin Watts
Total Pages: 0
Release: 2017-08-10
Genre: Cystic fibrosis
ISBN: 9781445156040

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In this powerful story, told in his own words, Jasper explains what it means to grow up with cystiuc fibrosis. Read about what cystic fibrosis is, the treatment he receives and how it affects his daily life.


Not a Wasted Breath

Not a Wasted Breath
Author: LaRecea Tabor Gibbs
Publisher: Tate Publishing
Total Pages: 282
Release: 2010-12-14
Genre: Biography & Autobiography
ISBN: 1616639350

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'Sis, the worst thing CF [cystic fibrosis] can do is kill me. It can't stop me from living.' Todd Gibbs spoke those words once to his sister and he proved that statement true time and time again. Though cystic fibrosis did kill him five days after his thirty-first birthday, the living he did showed that he had won the battle, even if CF eventually won the war. Not a Wasted Breath is not just a story about living with a fatal disease or waiting for a transplant. That was only a part of Todd's life. He never allowed his illness to rule his life, even in the face of over eighty hospitalizations. This is truly a story about how others perceived Todd, how they were affected by his presence in their lives, and how Todd viewed himself and his existence. In a poignant compilation of thoughts, memories, articles, and journal entries, LaRecea Gibbs, Todd's mother, creates a touching tableau of a life well spent that will inspire anyone to overcome personal obstacles through faith, determination, courage, and most of all, humor. Join mother and author LaRecea Gibbs in an inspiring biography which shows that though Todd's life was short, he never wasted a single breath. This Book is an inspiration to all readers in appreciating the gift of life. The account is thorough, has depth of development, is authentic, and puts us inside the people involved. Not a Wasted Breath enables readers to travel along emotionally. As a result, we count our own blessings. John Hagaman, Professor of English, Western Kentucky University, Director of WKU Writing Project.


The Power of Two

The Power of Two
Author: Isabel Stenzel Byrnes
Publisher: University of Missouri Press
Total Pages: 361
Release: 2014-10-14
Genre: Biography & Autobiography
ISBN: 0826273424

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For most people, a diagnosis of cystic fibrosis means the certainty of a life ended too soon. But for Isabel Stenzel Byrnes and Anabel Stenzel, twin girls with the disease, what began as a family’s stubborn determination grew into a miracle. The tragedy of CF has been touchingly recounted in such books as Frank Deford’s Alex: The Life of a Child, but The Power of Two is the first book to portray the symbiotic relationship of twins who share this life-threatening disease through adulthood.Isabel and Anabel tell of their lifelong struggle to pursue normal lives with cystic fibrosis while grappling with the realization that they will die young. Their story reflects the physical and emotional challenges of a particularly aggressive form of CF and is an honest and gripping portrayal of the daily struggle associated with long-term hospitalization, the impact of chronic illness on marriage and family, and the importance of a support network to continuing survival. Born in 1972, seventeen years before scientists discovered the genetic mutation that causes CF, the Stenzel twins endured the daily regimen of chest percussion, frequent doctor visits, and lengthy hospitalizations. But in the face of innumerable setbacks, their deep-seated dependence on each other allowed them to survive long enough to reap the benefits of the miraculous lung transplants that marked a turning point in their lives: “We have an old life—one of growing up with chronic illness—and anew life—one of opportunities and gifts we have never imagined before.” In this memoir, they pay tribute to the people who shaped their experience. These two remarkable sisters have much to teach about the power of perseverance—and about the ultimate power of hope.


Every Precious Breath

Every Precious Breath
Author: Tom Valenta
Publisher: Michelle Anderson Publishing
Total Pages: 207
Release: 2012-07-01
Genre: Chronically ill
ISBN: 9780855724078

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Tom Valenta tells the story of his two grandsons and discovers that people living with cystic fibrosis and their families are very special people. Their ability to overcome hardships, endure pain and laugh at adversity is inspirational.


It’s Been a Good Life, Dad

It’s Been a Good Life, Dad
Author: Jerry E. Hendon
Publisher: iUniverse
Total Pages: 406
Release: 2016-01-07
Genre: Biography & Autobiography
ISBN: 1491778385

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It’s Been a Good Life, Dad!—My Son’s Struggle with Cystic Fibrosis portrays a young man—Kevin Hendon—who lived his eighteen years with cystic fibrosis ever present. The author, Jerry E. Hendon, tells the story of his son’s life in the first part of this biography. He presents the disease’s harsh truths and the severe limits—and of medicine’s ability to respond to the disease’s challenges. With equal clarity, though, he reveals the energy and determination his son showed in the face of his diagnosis. In the second part of It’s Been a Good Life, Dad!, Kevin’s poetry takes center stage. He shares his feelings of isolation and frustration. He ruminates on love, lust, and romance. He expresses his observations about friends and school. He reflects on the place of religion and family in his life. The final two sections of the book sample the recollections of people who knew Kevin and share the abiding influences of Kevin’s spirit in the wider community of those his life has touched. Whether you have cystic fibrosis or know someone who lives with this disease, you might find yourself turning the pages of this portrayal and feeling the temptation to echo the author’s despair when he said, “What a miserable life!” But in the face of this disease and in response to such tugs to give in to despair, Kevin’s responds, “Oh, no. It’s been a good life .... It’s been a good life.”


The Fight of My Life

The Fight of My Life
Author: William Mahaney
Publisher:
Total Pages: 228
Release: 2012-08-10
Genre:
ISBN: 9781470136574

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Born with cystic fibrosis, I am no stranger to hospitals, physical exams, PFT's and various other procedures that determined the illness I have and the extend of its' impact on my life. I kept many of my hospital reports, the various test results and procedures I have had throughout the years, including notes I had written and thoughts about these experiences. During the thirty days I was in Cleveland Clinic for my double lung transplant surgery and recovery my wife started a blog informing friends and relatives on my triumphs and setbacks. After my recovery I visited the nurses and respiratory therapists at Women and Children's Hospital of Buffalo, NY. One of the nurse's suggested I write a book on my experiences which I readily dismissed, but...that suggestion got me thinking, and over the course of several months I began to believe writing a book wasn't such a crazy idea. I reflected on the times in my life I could have used a base of reference to more easily comprehend and understand what I have been going through all these years. During my "tune-ups" I often wondered what was going through the mind of the CF patient in the room next to mine on the10th floor of the Women and Children's Hospital of Buffalo. Did they have the same issues, problems and fears that I had? How were they dealing with their disease? What were their concerns? Were they sicker or healthier than I was? So, here it is, on paper, my experience living with cystic fibrosis. It's not an extensive day by day diary of my life but it tells a pretty complete story. I know my experiences with this disease differ from other CF'ers, and however unique we all are, there is, still, many similarities and I know those with CF who read this will be able to relate to my story as if it was their own.


Living on Borrowed Time

Living on Borrowed Time
Author: Debbie Pitts
Publisher: Author House
Total Pages: 202
Release: 2007-01-19
Genre: Health & Fitness
ISBN: 1452033463

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My book tells how I have struggled to live from day to day since my being diagnosed at six months of age. So you know I have lived a long time with this disease. It hadn't been easy.


Always Another Mountain, Living With Cystic Fibrosis

Always Another Mountain, Living With Cystic Fibrosis
Author: Benjamin Easterday
Publisher: Lulu.com
Total Pages: 148
Release: 2018-04-05
Genre: Biography & Autobiography
ISBN: 1387717227

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Always Another Mountain is the whimsical life story of David Foster, an adventurer, an outdoors man, and a man afflicted with the debilitating lung disorder Cystic Fibrosis. This book is adapted from the screenplay and draws the reader in through film styled scene descriptions. The story is an inspirational love story with many notes of humor that will leave you the reader with a full range of emotions. David had a passion for life and a love of the outdoors which transcended the physical limitations brought on by this incurable disease. Foster wanted to leave this world better than he found it, and wanted his life to serve as an inspiration not only for those suffering from CF, but for all of us. This is a story that touches on triumphs and tragedies that all those afflicted with cystic fibrosis must face during their shortened lives, and specifically David FosterÕs life. ""I'm just like anyone else, I just cough a little more"" -DavidFoster


Living with Cystic Fibrosis

Living with Cystic Fibrosis
Author: Susan Heinrichs Gray
Publisher:
Total Pages: 40
Release: 2003
Genre: Juvenile Nonfiction
ISBN: 9781567661057

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The chronic condition of cystic fibrosis is explained to help children better understand and cope with the condition and to educate regarding the prospects of a cure.


The CF Warrior Project Volume 2

The CF Warrior Project Volume 2
Author: Andy C. Lipman
Publisher: Booklogix
Total Pages: 0
Release: 2023-02-07
Genre: Biography & Autobiography
ISBN: 9781665304023

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The CF Warrior Project, Volume 2: Celebrating Our Cystic Fibrosis Community is a first-of-its-kind, inspirational book that details the lives of both people who live with the life-changing diagnosis of cystic fibrosis along with those who have made a difference in the CF community by advocating for those who fight the disease. Andy Lipman, the author and a CF warrior himself, created this series of memoirs in memory of someone who advocated for him-his mother, Eva-who inspired people inside and outside the CF community to fight for their dreams. Stories include people who once lived with a childhood disease now living into their fifties, sixties, and seventies thanks in large part to various scientific breakthroughs; parents who have turned unfathomable circumstances into impactful legacies in honor and, in some cases, in memory of their children; and celebrities who have used their influence to bring awareness to a disease and hope to a community that is so passionate to cure it. If you are looking for an inspirational series of stories of people who are making every breath count, The CF Warrior Project, Volume 2: Celebrating Our Cystic Fibrosis Community is the book for you.