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Living with Haemophilia

Living with Haemophilia
Author: Peter Jones
Publisher: Oxford University Press, USA
Total Pages: 418
Release: 1998
Genre: Family & Relationships
ISBN: 9780192629616

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Living With Haemophilia has established itself as the complete guide to haemophilia and related inherited bleeding disorders. Written primarily for affected families, the book also provides a useful and up-to-date guide for doctors, paramedical staff including nurses and physiotherapists, andteachers. It explains the inheritance of haemophilia, bleeding episodes and how to control them, safe treatment including home therapy and prophylaxis and the prospects for a genetic cure. Now available in paperback, this book will continue to be an essential purchase for all those affectedwhether directly or indirectly by haemophilia.


Living with Haemophilia

Living with Haemophilia
Author: C. Jones
Publisher: Springer Science & Business Media
Total Pages: 177
Release: 2012-12-06
Genre: Medical
ISBN: 9401196451

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, For the most part we. the haemophiliacs present at this Congress. have come from the great metropolitan centres with their advanced medical and social programmes for sufferers of haemophilia. We. the fortunate from the haemophilia oasis. have much to learn from each other. This is important. but even more important is the urgency to convey your knowledge. your skills. your experience and your dedication to the haemophiliacs in the desert: 'We can only begin to understand the condition. the life of a sufferer. by comparing him to a soldier in the trenches of World War I. In the trenches the soldier seldom forgets that the next moment may bring death or crippling. The haemophiliac is literally in the trenches. The soldier may be spared injury. but pain awaits the haemophiliac. Fear. moreover, is paramount to the pain. As in the trenches. the anxiety can be more oppressive than the wound. Waiting to go over the top imposes a greater strain than the actual charge. For the soldiers that survived World War I in the trenches. 4 years seemed eternity; the haemophiliac never leaves the battlefield: Opening Address, Frank Schnabel. World Federation of Hemophilia. Copenhagen. June 25th. 1963. War can come to an oasis, peace can come to the trenches. With this book, Dr Peter Jones has joined the international struggle. Carefully, concisely and cogently. the text offers a grand strategy. With allies like Dr Jones we will, one day, achieve victory. Frank Schnabel, Chairman.


Living with Haemophilia

Living with Haemophilia
Author: Peter Jones
Publisher: OUP Oxford
Total Pages: 344
Release: 2002-05-16
Genre: Medical
ISBN: 019101561X

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Living with haemophilia has established itself as the complete guide to haemophilia and related disorders. Written primarily for affected families, the. book also provides a useful and up-to-date guide for doctors, paramedical staff, including nurses and physiotherapists, and teachers. It explains the inheritance of haemophilia, bleeding episodes and how to control them, safe treatment including home therapy and prophylaxis, and the prospects for a genetic cure. Other coverage includes · Sex and family planning · Childhood with haemophilia · Education and employment · Sports and travel · Previous side effects of treatment including HIV and AIDS Sensitively and clearly written at an appropriate level for those with haemophilia, their families and friends. This book aims to dispel the myths and raise awareness of the realities of haemophilia. It takes a positive approach to physical development and encourages the pursuit of healthy, active and fruitful living. Peter Jones shows how, with the right care, the person with haemophilia can live an active and normal life. He addresses all the questions that those with haemophilia or those caring for them need to know the answers to, with humour and genuine concern. He has worked with those affected by it for over 30 years and this book contains his wealth of experience. "All of those who come into contact with haemophilia should read this book" Journal of the Royal College of Physicians Features include · Bullet pointed lists of dos and don'ts for those caring for haemophilic children · Boxes containing key information · Clear simple drawings showing treatments and exercises


Congenital Bleeding Disorders

Congenital Bleeding Disorders
Author: Akbar Dorgalaleh
Publisher: Springer
Total Pages: 397
Release: 2018-07-25
Genre: Medical
ISBN: 3319767232

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This book describes in detail the clinical presentation, diagnosis, and management of a wide range of congenital bleeding disorders. It will assist readers in overcoming the significant challenges involved in clinical and laboratory diagnosis and in providing effective clinical care that makes optimal use of new products, including recombinant factor concentrate. The coverage ranges from hemophilia A and B and von Willebrand disease to rare bleeding disorders such as congenital factor V, factor X, factor XI, and factor XIII deficiency and inherited platelet function disorders. The exceptional attention to rarer conditions is of particular importance given the considerable risk of overlooking them during diagnosis, with potential consequences for disease-related morbidity and mortality. The authors are acknowledged specialists in the field from across the world who have particular expertise in the disorder that they discuss. The book will be of value to hematologists, oncologists, pediatricians, laboratory specialists and technicians, general physicians, and trainees.


Living with Haemophilia

Living with Haemophilia
Author: Peter Jones
Publisher: Oxford University Press
Total Pages: 346
Release: 2002-05-16
Genre: Health & Fitness
ISBN: 9780192632296

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Living with haemophilia has established itself as the complete guide for people who suffer from haemophilia and their families. Sensitively and clearly written, it takes a positive approach to physical development and encourages the pursuit of healthy, active and fruitful living. Peter Jones shows how, with the right care, the person with haemophilia can live an active and normal life.


Raising a Child with Hemophilia

Raising a Child with Hemophilia
Author: Laureen Kelley
Publisher:
Total Pages:
Release: 2016-04-01
Genre:
ISBN: 9781938851056

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A parenting book covering medical, consumer, emotional and practical child-rearing aspects of raising a child with hemophilia.


Hemophilia and Von Willebrand Disease

Hemophilia and Von Willebrand Disease
Author: David Green
Publisher: Academic Press
Total Pages: 286
Release: 2018-06-14
Genre: Science
ISBN: 0128129557

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Hemophilia and Von Willebrand Disease: Factor VIII and Von Willebrand Factor serves as a must-have reference on the important role these essential blood-clotting proteins play in research and clinical medicine. Clinicians and researchers face the daily challenge of staying current on the vast amounts of research that is now generated. The reference to Janus in the title refers to the two roles of the Factor VIII/Von Willebrand Factor Complex: initiation of coagulation and propagation of clot formation. The complex prevents bleeding in hemophilia and Von Willebrand disease but also augments arterial and venous thrombosis. Presents one source of information on Hemophilia and Von Willebrand Disease, as well as Factor VIII and Von Willebrand Factor, eliminating the search through hundreds of journal articles Combines the multi-disciplinary research that is generated from Factor VIII/Von Willebrand Factor – hematology, drug discovery, genetics, cell biology, and oncology Delves into unanswered questions and future directions of this important blood-clotting complex


Birth Defects in India

Birth Defects in India
Author: Anita Kar
Publisher: Springer Nature
Total Pages: 362
Release: 2021-07-08
Genre: Medical
ISBN: 9811615543

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This book presents the epidemiology of birth defects and their public health and social implications in India. As neglected childhood disorders, birth defects remain invisible in global maternal and child health dialogues. Birth defects services are emerging in India. This book approaches birth defects from a public health perspective, identifying the core functions of a birth defects service. Keeping in mind the complex task of providing multidisciplinary services for children with disabilities and complex medical conditions, the book examines the basic public health activities that have been put in place to address these conditions in India. The book describes birth defects surveillance and the challenges of acquiring accurate and timely data on birth defects against the background of India’s mixed health system. It discusses opportunities for prevention of birth defects and describes the structure and function of an emergent genetic service. It explores issues related to an integrated service for children with special healthcare needs, such as screening, early intervention, and rehabilitation. Furthermore, it describes the impact of these conditions on caregivers, including birth defects stigma. This book not only addresses a knowledge gap in the field of public health in India, but also explores the broader issues of services for children with disabilities and disabling conditions in low and low-middle income settings where access to health care is not universal. Given the depth and breadth of its coverage, the book offers an essential resource for birth defects researchers, researchers in the field of maternal and child health, public health/ global health, disability researchers, and researchers from the fields of rehabilitation sciences, nursing and anthropology. This book will be a valuable read for social medicine/community medicine departments, global health courses, and public health schools in India and other low middle-income countries.


Injection of Life

Injection of Life
Author: Robert Weatherall
Publisher:
Total Pages: 113
Release: 2015-10-30
Genre: Brothers
ISBN: 9781925388152

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My Autobiography is of my brothers and myself living with Haemophilia through our lives. I am the oldest and only one left to tell this story of us three boys growing up, and our family experience. It hasn't been easy back in the fifties & sixties as there was not much and technology around for us Haemophiliacs until the mid-sixties. My brothers had a restricted life, because of the lack of technology to help them through their sickness. But we hope there might be a cure for us soon. It may not be around for me, but for the young one, you don't know what technology has in store in the future.Wayne John d. 1994 Aged 32 Died of Aids


Have His Carcase

Have His Carcase
Author: Dorothy L. Sayers
Publisher: Open Road Media
Total Pages: 666
Release: 2012-07-31
Genre: Fiction
ISBN: 1453258914

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Lord Peter Wimsey and Harriet Vane investigate a dead body on the beach in this “nearly perfect detective story” by the author of Busman’s Honeymoon (Saturday Review). Harriet Vane has gone on vacation to forget her recent murder trial and, more importantly, to forget the man who cleared her name—the dapper, handsome, and maddening Lord Peter Wimsey. She is alone on a beach when she spies a man lying on a rock, surf lapping at his ankles. She tries to wake him, but he doesn’t budge. His throat has been cut, and his blood has drained out onto the sand. As the tide inches forward, Harriet makes what observations she can and photographs the scene. Finally, she goes for the police, but by the time they return the body has gone. Only one person can help her discover how the poor man died at the beach: Lord Peter, the amateur sleuth who won her freedom and her heart in one fell swoop. Have His Carcase is the 8th book in the Lord Peter Wimsey Mysteries, but you may enjoy the series by reading the books in any order. This ebook features an illustrated biography of Dorothy L. Sayers including rare images from the Marion E. Wade Center at Wheaton College.