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Life Quality Outcomes in Children and Young People with Neurological and Developmental Conditions

Life Quality Outcomes in Children and Young People with Neurological and Developmental Conditions
Author: Gabriel M. Ronen
Publisher: Mac Keith Press
Total Pages: 0
Release: 2013-05-20
Genre: Medical
ISBN: 9781908316585

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Clinics in Developmental Medicine Health care professionals need to understand their patients’ views of their condition and its effects on their health and well-being. This book builds on the World Health Organization's concepts of 'health', 'functioning' and 'quality of life' for young people with neurodisabilities: it emphasises the importance of engaging with patients in the identification of both treatment goals and their evaluation. Uniquely, it enables health care professionals to find critically reviewed outcomes-related information. The authors are leaders in their respective research fields and discuss theory, concepts, and evidence, and how these are applied in clinical settings and research applications. Readership: Health care professionals working with children and youth with neurological and developmental conditions, wanting to expand their clinical or research horizons. Frontline service providers, health services and social science researchers, clinical program managers and policy makers concerned with ensuring that their clinical or programmatic services are addressing contemporary issues as effectively as possible. Students in the health professions and others in related fields (such as social work).


Pediatric Neurology Part I

Pediatric Neurology Part I
Author: Gabriel M. Ronen
Publisher: Elsevier Inc. Chapters
Total Pages: 23
Release: 2013-04-24
Genre: Medical
ISBN: 0128077093

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In this chapter we argue that modern thinking about chronic neurological and developmental conditions requires that we recognize all aspects of functioning and quality of life in addition to the biomedical dimensions of these disorders. We find the International Classification of Functioning, Disability, and Health (ICF) a useful framework by which to think about and understand the many dimensions of health; and we appreciate its heuristic value as a stimulus to consider a range of outcomes of these individuals. Quality of Life (QOL) and Health-Related Quality of Life (HRQL) cover the additional perceived dimensions that are so important to patients’ personal valuations, aspirations, and satisfaction about health throughout their lifespan, of which we see QOL being the broader construct. In order to measure outcomes at either the individual clinical or research level it is essential to ask clear and specific questions as a prelude to selecting measures that are appropriate in terms of both their content and their measurement properties. We provide some brief guidelines that we hope will be helpful to readers who wish to expand their activities in measuring clinical outcomes


Neurodevelopmental Disabilities

Neurodevelopmental Disabilities
Author: Dilip R. Patel
Publisher: Springer Science & Business Media
Total Pages: 496
Release: 2011-04-07
Genre: Medical
ISBN: 9400706278

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Increasingly more and more children with developmental disabilities survive into adulthood. Pediatricians and other clinicians are called upon to care for an increasing number of children with developmental disabilities in their practice and thus there is a need for a practical guide specifically written for paediatricians and primary care clinicians that addresses major concepts of neurodevelopmental pediatrics. In the United States, the specialty training leading to a conjoint board certification by the American Board of Pediatrics and American Board of Psychiatry and Neurology, requires a total of 6 years of training (2 years of pediatrics, 1 year of neurology, 18 months of child neurology, 18 months of neurodevelopmental disabilities). As of December 2006, in the US, there were 241 pediatricians and 55 child neurologists certified in the subspecialty of Neurodevelopmental Disabilities. Thus most of the children with developmental disabilities are seen by pediatricians and therefore it is important for these pediatricians to be well informed of common issues in the field. The 60,000 or so pediatricians in the United States (and hundreds more in other countries) are the main target audience for a practical book on neurodevelopmental pediatrics.


Neurological, Psychiatric, and Developmental Disorders

Neurological, Psychiatric, and Developmental Disorders
Author: Institute of Medicine
Publisher: National Academies Press
Total Pages: 458
Release: 2001-01-01
Genre: Medical
ISBN: 0309170931

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Brain disordersâ€"neurological, psychiatric, and developmentalâ€"now affect at least 250 million people in the developing world, and this number is expected to rise as life expectancy increases. Yet public and private health systems in developing countries have paid relatively little attention to brain disorders. The negative attitudes, prejudice, and stigma that often surround many of these disorders have contributed to this neglect. Lacking proper diagnosis and treatment, millions of individual lives are lost to disability and death. Such conditions exact both personal and economic costs on families, communities, and nations. The report describes the causes and risk factors associated with brain disorders. It focuses on six representative brain disorders that are prevalent in developing countries: developmental disabilities, epilepsy, schizophrenia, bipolar disorder, depression, and stroke. The report makes detailed recommendations of ways to reduce the toll exacted by these six disorders. In broader strokes, the report also proposes six major strategies toward reducing the overall burden of brain disorders in the developing world.


Children with Developmental Coordination Disorder

Children with Developmental Coordination Disorder
Author: David Sugden
Publisher: John Wiley & Sons
Total Pages: 338
Release: 2005-01-28
Genre: Education
ISBN:

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The term Developmental Coordination Disorder (DCD) is used to describe a group of children who have difficulty. with tasks involving movement such that it interferes with their daily living or academic progress. As with other developmental disorders such as autistic spectrum disorder, attention deficit disorder and dyslexia, DCD is now a prominent concern of both researchers and practitioners. This text is aimed at both researchers and professionals who work in a practical manner with the condition and includes professionals in health, occupational therapists, physiotherapists, health visitors, paediatricians, and - in the educational field - teachers and others who are in daily contact with the children - their parents. The essence of the text is that work with children should be guided by research evidence driving the clinical practice which in turn raisies more questions for research. The authors in this text have both experience in research and are engaged in the day-to-day clinical work with children and bring both of these to bear in the chapters they have written.


Disease Control Priorities, Third Edition (Volume 4)

Disease Control Priorities, Third Edition (Volume 4)
Author: Vikram Patel
Publisher: World Bank Publications
Total Pages: 307
Release: 2016-03-10
Genre: Medical
ISBN: 1464804281

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Mental, neurological, and substance use disorders are common, highly disabling, and associated with significant premature mortality. The impact of these disorders on the social and economic well-being of individuals, families, and societies is large, growing, and underestimated. Despite this burden, these disorders have been systematically neglected, particularly in low- and middle-income countries, with pitifully small contributions to scaling up cost-effective prevention and treatment strategies. Systematically compiling the substantial existing knowledge to address this inequity is the central goal of this volume. This evidence-base can help policy makers in resource-constrained settings as they prioritize programs and interventions to address these disorders.


Disease Control Priorities, Third Edition (Volume 8)

Disease Control Priorities, Third Edition (Volume 8)
Author: Donald A. P. Bundy
Publisher: World Bank Publications
Total Pages: 977
Release: 2017-11-20
Genre: Medical
ISBN: 1464804397

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More children born today will survive to adulthood than at any time in history. It is now time to emphasize health and development in middle childhood and adolescence--developmental phases that are critical to health in adulthood and the next generation. Child and Adolescent Health and Development explores the benefits that accrue from sustained and targeted interventions across the first two decades of life. The volume outlines the investment case for effective, costed, and scalable interventions for low-resource settings, emphasizing the cross-sectoral role of education. This evidence base can guide policy makers in prioritizing actions to promote survival, health, cognition, and physical growth throughout childhood and adolescence.


Outcomes in Neurodevelopmental and Genetic Disorders

Outcomes in Neurodevelopmental and Genetic Disorders
Author: Patricia Howlin
Publisher: Cambridge University Press
Total Pages: 306
Release: 2002-07-25
Genre: Family & Relationships
ISBN: 9780521797214

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Succinct, up-to-date research summaries and practical guidelines for intervention in and management of a variety of developmental and genetic disorders.


Health Measurement Scales

Health Measurement Scales
Author: David L. Streiner
Publisher: Oxford University Press
Total Pages: 481
Release: 2024-02-29
Genre: Medical
ISBN: 0192869485

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A new edition of this practical guide for clinicians and researchers who wish to develop tools to measure subjective states, attitudes, or non-tangible outcomes in their patients, ideal for those who have no knowledge of statistics.


Transforming the Workforce for Children Birth Through Age 8

Transforming the Workforce for Children Birth Through Age 8
Author: National Research Council
Publisher: National Academies Press
Total Pages: 587
Release: 2015-07-23
Genre: Social Science
ISBN: 0309324882

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Children are already learning at birth, and they develop and learn at a rapid pace in their early years. This provides a critical foundation for lifelong progress, and the adults who provide for the care and the education of young children bear a great responsibility for their health, development, and learning. Despite the fact that they share the same objective - to nurture young children and secure their future success - the various practitioners who contribute to the care and the education of children from birth through age 8 are not acknowledged as a workforce unified by the common knowledge and competencies needed to do their jobs well. Transforming the Workforce for Children Birth Through Age 8 explores the science of child development, particularly looking at implications for the professionals who work with children. This report examines the current capacities and practices of the workforce, the settings in which they work, the policies and infrastructure that set qualifications and provide professional learning, and the government agencies and other funders who support and oversee these systems. This book then makes recommendations to improve the quality of professional practice and the practice environment for care and education professionals. These detailed recommendations create a blueprint for action that builds on a unifying foundation of child development and early learning, shared knowledge and competencies for care and education professionals, and principles for effective professional learning. Young children thrive and learn best when they have secure, positive relationships with adults who are knowledgeable about how to support their development and learning and are responsive to their individual progress. Transforming the Workforce for Children Birth Through Age 8 offers guidance on system changes to improve the quality of professional practice, specific actions to improve professional learning systems and workforce development, and research to continue to build the knowledge base in ways that will directly advance and inform future actions. The recommendations of this book provide an opportunity to improve the quality of the care and the education that children receive, and ultimately improve outcomes for children.