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HELP ME! What I Wish Families Knew About ME/CFS

HELP ME! What I Wish Families Knew About ME/CFS
Author: Dr Cherla Meisterman Lisw, PhD
Publisher:
Total Pages: 226
Release: 2020-05-28
Genre:
ISBN: 9781654247492

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HELP ME! What I Wish Families Knew About ME/CFS, subtitled, MYALGIC ENCEPHALOMYELITIS (ME) Also Known As: CHRONIC FATIGUE SYNDROME by Rebecca Susan Culbertson, MSW/LISW. Foreword by Dr. Cherla Meisterman, PhD, LISW. HELP ME! This book pleads for families, partners and friends to educate themselves about this horrific illness that literally rips families apart. Divorce rates are over 75% for couples when a spouse has been diagnosed with ME/CFS. A frightening statistic. This book is written for those who have been diagnosed with Chronic Fatigue Syndrome (CFS), Myalgic Encephalomyelitis (ME), Fibromyalgia, or any other chronic debilitating disease. It is written for those who are in limbo, suffering still without a diagnosis, and this book is also written to educate families and friends of persons with ME/CFS. This book will help you learn how to maintain your dignity while dealing with doctors who doubt your illness. You will discover self reporting charts later in this book for use with family, physicians, employers and others. It is difficult to maintain your self confidence if persons in your life do not understand the current state of your functioning. It is of vital importance to educate those around you, when you are able. This book can be a tool to that end. The book provides information about when and how to apply for disability insurance you certainly deserve. Are you watching your former financial security implode right before your eyes? Learn how to deal with creditors and how to manage financial debt with less stress. The book will teach you techniques that the author has used in her Family Therapy Practice with patients in living lives of positivity, seeking happiness, and practicing humility. Learn methods of living with ME/CFS while still setting life goals to realistically achieve your dreams. And importantly, the book is written from the viewpoint of having been diagnosed with ME/CFS herself, and then filtered through her professional perspective as a psychotherapist. Michael McVicker a Prevention Specialist and Family Therapist, concludes this book, (in Chapter 26) with THE IMPORTANCE OF HAVING A PERSONAL SUPPORT SYSTEM. Michael uses true life storytelling mixed with humor to inform families from his section titled, A VIEW FROM THE SIDELINE. He tells his story from watching (at times helplessly) and supporting his spouse, the author of this book, through the misery this illness brings. He also writes through the lens of being a stepfather to their two teenage sons, and watching their ascent into adulthood. He deals with topics not currently addressed in other ME/CFS literature currently available, including sex and intimacy. Divorce is seldom the most ecological solution to this real life crisis. Divorce only exacerbates the familial problems. Dr. Cherla Meisterman, PhD, LISW, (Dr. Cherla's Musings, Chapter 18) offers methods of treating patients with ME/CFS, and attempts to invite other professional therapists to join her in treating this very needy population. With divorce rates so high, questions arise about why more ME/CFS patients do not seek psychotherapy treatment. To me, as a ME/CFS sufferer, it is very clear. Treatment is financially prohibitive, and more importantly persons with this diagnosis have been told verbally and nonverbally, over and over "it's all in your head". So why would any ME/CFS patient want to go to psychotherapy? ("Why go and prove the wrong headed physicians correct - "it's all in my head"?) If the patient is supported by his or her partner, and if the patient feels believed that their illness is real, then psychotherapy may become an option that could potentially save relationships and lower divorce rates. Dr. Cherla addresses how to go about selecting the best therapist for you, and things to consider prior to making that phone call. There are worksheets included for your written expression, and for use with physicians, family members, and others.


Can I Tell You about ME/Chronic Fatigue Syndrome?

Can I Tell You about ME/Chronic Fatigue Syndrome?
Author: Jacqueline Rayner
Publisher: Can I tell you about
Total Pages: 0
Release: 2014
Genre: Chronic fatigue syndrome
ISBN: 9781849054522

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Mollie and her family help readers to understand what it is like to have ME/CFS and how it can affect their day-to-day family life. They explain what ME/CFS is and how it can affect people in different ways. This illustrated book is packed with accessible information and will be an ideal introduction to this often misunderstood condition.


Chronic Fatigue Syndrome/ME

Chronic Fatigue Syndrome/ME
Author: Elizabeth Turp
Publisher: Jessica Kingsley Publishers
Total Pages: 176
Release: 2011-04-15
Genre: Health & Fitness
ISBN: 9780857003478

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People with Chronic Fatigue Syndrome (CFS)/ME experience extreme tiredness and a range of other symptoms, including pain, headaches, impaired concentration and memory, anxiety, sleep problems, and palpitations. The condition can affect all areas of a sufferer's life and, in turn, the lives of those who are close to them. This book provides the families and friends of people with CFS/ME with an accessible introduction to the condition, and explains what can be done to support those who have it. It offers useful advice on how to help a loved one cope with the illness, and suggests ways to help them with everyday issues such as personal hygeine, nutrition, finances, and relationships. Recognising that coping with the impact of CFS/ME can be just as difficult for the relatives and friends of those with the condition, it addresses the emotional, social, and practical aspects of having a loved one with CFS/ME, explains how to understand the changes in their relationship with the sufferer, how to manage stress, and where to go for further help and support. The book also includes detailed case studies and practical advice from a wide range of people with mild, moderate, and severe CFS/ME, and their loved ones. This book offers much-needed information and support to the friends, families, and carers of people with CFS/ME. It will also be a useful resource for health professionals who wish to deepen their understanding of CFS/ME, including home helps, care staff, counsellors, therapists, doctors, and nurses.


Finding Strength in Weakness

Finding Strength in Weakness
Author: Lynn Vanderzalm
Publisher: Zondervan
Total Pages: 292
Release: 1995
Genre: Health & Fitness
ISBN: 9780310200048

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Chronic Fatigue Immune Deficiency Syndrome (CFIDS) is not the 'Yuppie flu.' It is a debilitating, incurable illness that hijacks the body's immune system and drains the life out of its victims, often leaving them incapacitated for years. While researchers around the globe explore the causes of treatments for CFIDS, the men, women and children who suffer with the illness grapple with questions like: -Will I ever be normal again? -Of what value am I now that I can't work or go to school anymore? -How will CFIDS affect my marriage and my family? How will CFIDS affect my ability even to consider marriage or having children? -How do I glorify God in the midst of a debilitating illness and pain? Lynn Vanderzalm and her teenage daughter, Alisa, have battled CFIDS for over seven years. In Finding Strength in Weakness, Vanderzalm shares her family's struggles and questions-along with those of 70 other men, women, and children-while offering direction, encouragement, and hope to the countless families who battle with the 'mystery illness of the nineties.'


Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Author: Institute of Medicine
Publisher: National Academies Press
Total Pages: 304
Release: 2015-03-16
Genre: Medical
ISBN: 0309316928

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Myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are serious, debilitating conditions that affect millions of people in the United States and around the world. ME/CFS can cause significant impairment and disability. Despite substantial efforts by researchers to better understand ME/CFS, there is no known cause or effective treatment. Diagnosing the disease remains a challenge, and patients often struggle with their illness for years before an identification is made. Some health care providers have been skeptical about the serious physiological - rather than psychological - nature of the illness. Once diagnosed, patients often complain of receiving hostility from their health care provider as well as being subjected to treatment strategies that exacerbate their symptoms. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome proposes new diagnostic clinical criteria for ME/CFS and a new term for the illness - systemic exertion intolerance disease(SEID). According to this report, the term myalgic encephalomyelitis does not accurately describe this illness, and the term chronic fatigue syndrome can result in trivialization and stigmatization for patients afflicted with this illness. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome stresses that SEID is a medical - not a psychiatric or psychological - illness. This report lists the major symptoms of SEID and recommends a diagnostic process.One of the report's most important conclusions is that a thorough history, physical examination, and targeted work-up are necessary and often sufficient for diagnosis. The new criteria will allow a large percentage of undiagnosed patients to receive an accurate diagnosis and appropriate care. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome will be a valuable resource to promote the prompt diagnosis of patients with this complex, multisystem, and often devastating disorder; enhance public understanding; and provide a firm foundation for future improvements in diagnosis and treatment.


Understanding and Treating Chronic Fatigue

Understanding and Treating Chronic Fatigue
Author: Joel L. Young
Publisher: Bloomsbury Publishing USA
Total Pages: 167
Release: 2020-08-19
Genre: Health & Fitness
ISBN:

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Some doctors still think Chronic Fatigue Syndrome is a "fake" diagnosis. In this book, Joel Young, MD, presents the research, experience, and treatments that prove otherwise. Millions of Americans experience chronic fatigue syndrome (CFS), a continuous exhaustion and a feeling comparable to that of having just run a marathon when all they have done is a daily living task, such as taking a shower or getting dressed. Doctors don't have tests for CFS, and some think it's a faux or psychological disorder. Joel Young, MD, in this heavily researched book, explains why it is a true physical illness and how it may be treated. He details how he successfully treats the symptoms, which can include severe fatigue, "brain fog," chronic pain, and sleep problems. Unlike doctors who recommend exercise, supplements, or opioid medications, Young integrates such options as long-acting stimulants, meditation, and dietary changes to reduce fatigue, as well as non-opioid drugs, medical marijuana, and self-help options including yoga for the associated chronic pain.


Can I tell you about ME/Chronic Fatigue Syndrome?

Can I tell you about ME/Chronic Fatigue Syndrome?
Author: Jacqueline Rayner
Publisher: Jessica Kingsley Publishers
Total Pages: 64
Release: 2014-01-21
Genre: Health & Fitness
ISBN: 0857008269

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Meet Mollie – a woman with an illness called ME (Myalgic Encephalomyelitis) or CFS (Chronic Fatigue Syndrome), and her family, Mike, Ellie and Eric. Mollie and her family help readers to understand what ME/CFS is, what it is like to have it and how it can affect their family life. Mollie can't always do things that other mums do because of her illness, which can sometimes be frustrating, but they share strategies that help them all to cope. The family also explain how ME/CFS can affect different people in different ways. This illustrated book is an ideal introduction to this often misunderstood condition. It shows family, friends and anyone who knows someone with the condition how they can support someone with ME/CFS, and their family.


Girl in the Window

Girl in the Window
Author: Penny Joelson
Publisher: Electric Monkey
Total Pages: 352
Release: 2018-08-09
Genre:
ISBN: 9781405286169

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See the world from another unique perspective in the thrilling new novel from the author of I Have No Secrets .Nothing ever happens on Kasia's street. Kasia would know because her illness makes her spend days stuck at home, watching the world outside from her bedroom window. So when she sees what looks like a kidnapping, she's not sure whether she can believe her own eyes... There was a girl in the window opposite - she must have seen it too. When Kasia goes to find her she is told the most shocking thing of all: there is no girl.An eye-opening and compulsive page-turner for readers aged 12 and up.


Joyful Recovery from Chronic Fatigue Syndrome/Me

Joyful Recovery from Chronic Fatigue Syndrome/Me
Author: Sasha Allenby
Publisher: Strategic Book Publishing
Total Pages: 170
Release: 2008-07
Genre: Self-Help
ISBN: 1606931458

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Drawing on cutting-edge science, this empowering book teaches solution-focused approaches to overcoming Chronic Fatigue Syndrome and Myalgic Encephalomyelitis through world-renowned Emotional Freedom Techniques.


Missed Diagnoses Myalgic Encephalomyelitis & Chronic Fatigue Syndrome Second Edition

Missed Diagnoses Myalgic Encephalomyelitis & Chronic Fatigue Syndrome Second Edition
Author: Byron Hyde MD
Publisher: Lulu.com
Total Pages: 148
Release: 2010
Genre: Chronic fatigue syndrome
ISBN: 055732517X

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A few notes on this NEW revised and expanded edition which includes Dr. Hyde's chapter from the new Puri & Treasaden textbook:"Thirty years ago when a patient presented to a hospital clinic with unexplained fatigue, any medical school physician would have told the students to search for an occult malignancy, cardiac or other organ disease or chronic infection. The concept that there is an entity called chronic fatigue syndrome has totally altered that essential medical guideline. Patients are now being diagnosed with CFS as though it were a disease. It is not. It is a patchwork of symptoms that could mean anything. The original concepts of searching for occult disease are relevant to patients today with CFS, ME and other fatiguing illnesses. Furthermore, because you do not find pathology does not mean there is none."- Byron Hyde