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Ethical Conduct of Clinical Research Involving Children

Ethical Conduct of Clinical Research Involving Children
Author: Institute of Medicine
Publisher: National Academies Press
Total Pages: 445
Release: 2004-07-09
Genre: Medical
ISBN: 0309133386

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In recent decades, advances in biomedical research have helped save or lengthen the lives of children around the world. With improved therapies, child and adolescent mortality rates have decreased significantly in the last half century. Despite these advances, pediatricians and others argue that children have not shared equally with adults in biomedical advances. Even though we want children to benefit from the dramatic and accelerating rate of progress in medical care that has been fueled by scientific research, we do not want to place children at risk of being harmed by participating in clinical studies. Ethical Conduct of Clinical Research Involving Children considers the necessities and challenges of this type of research and reviews the ethical and legal standards for conducting it. It also considers problems with the interpretation and application of these standards and conduct, concluding that while children should not be excluded from potentially beneficial clinical studies, some research that is ethically permissible for adults is not acceptable for children, who usually do not have the legal capacity or maturity to make informed decisions about research participation. The book looks at the need for appropriate pediatric expertise at all stages of the design, review, and conduct of a research project to effectively implement policies to protect children. It argues persuasively that a robust system for protecting human research participants in general is a necessary foundation for protecting child research participants in particular.


E Is for Ethics

E Is for Ethics
Author: Ian James Corlett
Publisher: Simon and Schuster
Total Pages: 130
Release: 2011-07-19
Genre: Education
ISBN: 1416596550

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A collection of 26 fun, simple and original stories, each centering on a different positive value, for parents to read to their children.


Ethics, Conflict and Medical Treatment for Children E-Book

Ethics, Conflict and Medical Treatment for Children E-Book
Author: Dominic Wilkinson
Publisher: Elsevier Health Sciences
Total Pages: 192
Release: 2018-08-05
Genre: Medical
ISBN: 0702077828

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What should happen when doctors and parents disagree about what would be best for a child? When should courts become involved? Should life support be stopped against parents’ wishes? The case of Charlie Gard, reached global attention in 2017. It led to widespread debate about the ethics of disagreements between doctors and parents, about the place of the law in such disputes, and about the variation in approach between different parts of the world. In this book, medical ethicists Dominic Wilkinson and Julian Savulescu critically examine the ethical questions at the heart of disputes about medical treatment for children. They use the Gard case as a springboard to a wider discussion about the rights of parents, the harms of treatment, and the vital issue of limited resources. They discuss other prominent UK and international cases of disagreement and conflict. From opposite sides of the debate Wilkinson and Savulescu provocatively outline the strongest arguments in favour of and against treatment. They analyse some of the distinctive and challenging features of treatment disputes in the 21st century and argue that disagreement about controversial ethical questions is both inevitable and desirable. They outline a series of lessons from the Gard case and propose a radical new ‘dissensus’ framework for future cases of disagreement. This new book critically examines the core ethical questions at the heart of disputes about medical treatment for children. The contents review prominent cases of disagreement from the UK and internationally and analyse some of the distinctive and challenging features around treatment disputes in the 21st century. The book proposes a radical new framework for future cases of disagreement around the care of gravely ill people.


The Ethics of Research with Children and Young People

The Ethics of Research with Children and Young People
Author: Priscilla Alderson
Publisher: SAGE Publications
Total Pages: 177
Release: 2011-02-09
Genre: Education
ISBN: 0857021370

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Ethical questions are at the centre of research with children and young people. This clear and practical text informs students and researchers about the relevant laws and guidelines and current debates in research ethics. Priscilla Alderson and Virginia Morrow cover ethics at every stage of research, and with all kinds of young research participants, particularly those who are vulnerable or neglected. They break down the process of research into ten stages, each with its own set of related questions and problems, and they show how these need to be addressed. This practical book is essential reading for anyone who conducts or reviews research with children or young people. Priscilla Alderson is Emerita Professor of Childhood Studies at the Institute of Education University of London. Virginia Morrow is Senior Research Officer in the Department of International Development, University of Oxford.


Children on Demand

Children on Demand
Author: Thomas R. Frame
Publisher: UNSW Press
Total Pages: 228
Release: 2008
Genre: Health & Fitness
ISBN: 9780868409108

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"This is a book that starts of by acknowledging the pain of infertility for many people and then examines the options for conceiving that have developed so rapidly since Louise Brown the first 'test tube baby' was born 30 years ago. Tom Frame argues that ethics, law and community desires haven't been able to keep up with technological advancement, and that this is a problem. He starts by looking at adoption, and includes details about his own experience as an adoptee. He writes about sperm and egg donors, asking whether it's fair that they be allowed to remain anonymous; he writes about IVF and surrogacy and finishes by writing about cases where women have asked to use the dead husbands' stored sperm to become pregnant. He looks at science, religion, philosophy, ethics but his starting point is always 'what's best for the child'. His view that the ideal family is a mother, a father and a child will create some controversy."--Provided by publisher.


Children, Ethics, and Modern Medicine

Children, Ethics, and Modern Medicine
Author: Richard B. Miller
Publisher: Indiana University Press
Total Pages: 324
Release: 2003-06-18
Genre: Medical
ISBN: 0253109922

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"Because the discipline of medical ethics has developed with autonomy as its foundation, the field has ignored pediatric ethics. The book is resoundingly successful in its effort to rectify this problem.... [A] pleasure to read." -- Eric D. Kodish, M.D., Director, Rainbow Center for Pediatric Ethics, Case Western Reserve University Using a form of medical ethnography to investigate a variety of pediatric contexts, Richard B. Miller tests the fit of different ethical approaches in various medical settings to arrive at a new paradigm for how best to care for children. Miller contends that the principle of beneficence must take priority over autonomy in the treatment of children. Yet what is best for the child is a decision that doctors cannot make alone. In making and implementing such decisions, Miller argues, doctors must become part of a "therapeutic alliance" with families and the child undergoing medical care to come up with the best solution. Children, Ethics, and Modern Medicine combines strong philosophical argumentation with firsthand knowledge of the issues facing children and families in pediatric care. This book will be an invaluable asset to medical ethicists and practitioners in pediatric care, as well as parents struggling with ethical issues in the care of their children.


Ethics and Research with Children

Ethics and Research with Children
Author: Eric Kodish
Publisher: Oxford University Press, USA
Total Pages: 345
Release: 2018-12-14
Genre: Medical
ISBN: 0190647256

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Fundamental questions about the morality of pediatric medical research persist despite years of debate and the establishment of strict codes of ethics. Is it ever permissible to use a child as a means to an end? How much authority should parents have over decisions about research involving their children? Should children or their parents be paid for participation in research? Most importantly, how can the twin goals of access to the benefits of clinical research and protection from research risk be reconciled? Promoting more thoughtful attention to the complex ethical problems that arise when research involves children, this fully updated new edition of Ethics and Research with Children presents 14 case studies featuring some of the most challenging and fascinating ethical dilemmas in pediatric research. Each chapter begins with a unique case vignette, followed by rich discussion and incisive ethical analysis. Chapters represent a host of current controversies and are contributed by leading scholars from a variety of disciplines that must grapple with how to best protect children from research risk while driving innovation in the fight against childhood diseases. Chapters end with questions for discussion, providing faculty and students with accessible starting points from which to explore more in depth the thorny issues that are raised. In the final chapter, the editors provide a synthesis and summary that serve as a capstone and companion to the case-based chapters. Unique in its specific focus on research, Ethics and Research with Children provides a balanced and thorough account of the enduring dilemmas that arise when children become research subjects, and will be essential reading for those involved with pediatric research in any context.


Ethics and the Early Childhood Educator

Ethics and the Early Childhood Educator
Author: Stephanie Feeney
Publisher:
Total Pages: 145
Release: 2018
Genre: Early childhood education
ISBN: 9781938113338

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"New foreword by Rhian Evans Allvin"--Cover.


Ethics in Pediatrics

Ethics in Pediatrics
Author: Ian Mitchell
Publisher: Springer Nature
Total Pages: 464
Release: 2020-01-01
Genre: Philosophy
ISBN: 3030226174

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This book offers easy access to the everyday ethics problems that occur in the medical care of children. It contains practical guidance on how physicians and other healthcare practitioners may manage both straightforward and complex ethics problems. The book provides a readable and comprehensive introduction to ethics issues for beginners and is also extremely valuable to experienced practitioners.This work covers important "classical" ethical issues such as privacy, confidentiality, truth telling, and discusses the elements of the relationships that might exist between parents and healthcare providers. However, the book also provides a resource for new and emerging areas of bioethics. These include issues arising in the new population of children who are beginning to survive the neonatal and infant periods with a multitude of problems – “children with medical complexity". Finally, it also includes a section on the advantages and pitfalls of social media use.


Ethics in Child Health

Ethics in Child Health
Author: Peter L. Rosenbaum
Publisher: Mac Keith Press
Total Pages: 0
Release: 2016-10-17
Genre: Medical
ISBN: 9781909962637

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Have you ever Wondered how to deal with a family that repeatedly fails to keep clinic appointments? Disagreed with colleagues over a proposed course of treatment for a child? Considered ways to 'bump' a child on a waiting to speed up their assessment? These are a few of the scenarios faced by clinicians in neurodisability on a daily basis. Ethics in Child Health explores the ethical dimensions of these issues that have either been ignored or not recognised. Each chapter is built around a scenario familiar to clinicians and is discussed with respect to how ethical principles can be utilised to inform decision-making. Useful "Themes for Discussion" are provided at the end of each chapter to help professionals and students develop practical ethical thinking. Ethics in Child Health offers a set of principles that clinicians, social workers and policy-makers can utilise in their respective spheres of influence.