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End-of-life Care for Children and Adults with Intellectual and Developmental Disabilities

End-of-life Care for Children and Adults with Intellectual and Developmental Disabilities
Author: Sandra L. Friedman
Publisher: American Association
Total Pages: 0
Release: 2010
Genre: Adulthood
ISBN: 9781935304074

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End-of-life care is the only major reference to systematically explore the unique medical, social, legal, political, and ethical issues to consider while providing care to adults and children with intellectual and developmental disabilities who are facing terminal illness or life-limiting conditions.


End of Life and People with Intellectual and Developmental Disability

End of Life and People with Intellectual and Developmental Disability
Author: Roger J. Stancliffe
Publisher: Springer Nature
Total Pages: 542
Release: 2022-06-11
Genre: Psychology
ISBN: 3030986977

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This book on end of life examines how to include people with intellectual and developmental disability in the inevitability of dying and death. Comprising 17 chapters, it addresses challenging and under-researched topics including suicide, do-not-resuscitate, advance care planning, death doulas and accessible funerals. Topics reflect everyday community, palliative care, hospice and disability services. The book proposes that the rights of people with disabilities should be supported up to and after their death. Going beyond problem identification, the chapters offer positive, evidence-supported responses that translate research to practice, together with practice examples and resources grounded in lived experience. The book is applicable to readers from the disability field, and mainstream health professionals who assist people with disability in emergency care, palliative care or end-of-life planning


Health Care for People with Intellectual and Developmental Disabilities across the Lifespan

Health Care for People with Intellectual and Developmental Disabilities across the Lifespan
Author: I. Leslie Rubin
Publisher: Springer
Total Pages: 2227
Release: 2016-04-25
Genre: Medical
ISBN: 3319180967

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This book provides a broad overview of quality health care for people with intellectual and developmental disabilities (IDD). It focuses on providing the reader a practical approach to dealing with the health and well-being of people with IDD in general terms as well as in dealing with specific conditions. In addition, it offers the reader a perspective from many different points of view in the health care delivery system as well as in different parts of the world. This is the 3rd , and much expanded edition, of a text that was first published in 1989 (Lea and Fibiger). The second edition was published in 2006 (Paul Brookes) and has been used as a formal required text in training programs for physicians, nurses and nurse practitioners as well as by administrators who are responsible for programs serving people with IDD. This book is considered the “Bible” in the field of health care for people with IDD since 1989 when the first edition came out.


Increasing End of Life Care Access for Individuals with Intellectual and Developmental Disabilities

Increasing End of Life Care Access for Individuals with Intellectual and Developmental Disabilities
Author: Karen E. Pekarcik
Publisher:
Total Pages: 248
Release: 2012
Genre:
ISBN:

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This descriptive study identified and prioritized resources desired by professionals for inclusion in a toolkit to support access to palliative and end of life care for individuals with intellectual and developmental disabilities (IDD). A non-random sample of 28 medical, palliative care, hospice and case management professionals across four rural northern California counties completed a survey identifying priorities for information to assist in their efforts to identify needs and refer individuals with IDD to palliative and end of life hospice care. Results of the study indicate that the highest priority of information identified by the respondents is information supporting assessment and communication with individuals with intellectual and developmental disabilities. Additionally, the need for information regarding sharing diagnosis, discussing treatment and end of life processes was indicated as pertinent for supporting this population. Implications of the study indicate a need for a social justice and ethics framework to guide social workers to initiate early discussion and promotion of palliative and end of life care, and facilitate person centered planning for individuals with IDD as a means to increase access to services for which they are historically denied.


Health Care for People with Intellectual and Developmental Disabilities across the Lifespan

Health Care for People with Intellectual and Developmental Disabilities across the Lifespan
Author: I. Leslie Rubin
Publisher: Springer
Total Pages: 0
Release: 2016-05-10
Genre: Medical
ISBN: 9783319180953

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This book provides a broad overview of quality health care for people with intellectual and developmental disabilities (IDD). It focuses on providing the reader a practical approach to dealing with the health and well-being of people with IDD in general terms as well as in dealing with specific conditions. In addition, it offers the reader a perspective from many different points of view in the health care delivery system as well as in different parts of the world. This is the 3rd , and much expanded edition, of a text that was first published in 1989 (Lea and Fibiger). The second edition was published in 2006 (Paul Brookes) and has been used as a formal required text in training programs for physicians, nurses and nurse practitioners as well as by administrators who are responsible for programs serving people with IDD. This book is considered the “Bible” in the field of health care for people with IDD since 1989 when the first edition came out.


The SAGE Encyclopedia of Intellectual and Developmental Disorders

The SAGE Encyclopedia of Intellectual and Developmental Disorders
Author: Ellen Braaten
Publisher: SAGE Publications
Total Pages: 1928
Release: 2018-01-29
Genre: Psychology
ISBN: 1483392287

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This encyclopedia provides an inter-disciplinary approach, discussing the sociocultural viewpoints, policy implications, educational applications and ethical issues involved in a wide range of disorders and interventions.


Intellectual Disabilities: Health and Social Care Across the Lifespan

Intellectual Disabilities: Health and Social Care Across the Lifespan
Author: Fintan Sheerin
Publisher: Springer Nature
Total Pages: 254
Release: 2023-06-19
Genre: Medical
ISBN: 3031274962

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This textbook provides nurses, allied health and social care professionals with the background knowledge necessary to support individuals with intellectual disabilities and their families. It is a unique and viable resource which is particularly timely, as recent decades have seen a significant change in the demographics and associated care and support needs of this population. The textbook is laid into four sections to provide a logical structure for the content with chapters developing key topic areas relevant to the field. The introductory section sets the overall context for the book and considers the importance of developing an understanding of intellectual disability as a core concept identifying philosophies and models of service that underpin health and social care across the lifespan. Communication as a basis for caring and the overall concept of person-centred caring in a multidisciplinary context is considered. The second section explores key concepts from birth to adulthood exploring the nature of intellectual disability, the child with intellectual disability and other related neurodevelopmental conditions. The third section explores adulthood to older age and considers specific health care needs, understanding behaviour and other fundamental concepts including mental health, ageing and palliative care. The fourth and final section explores the integration of health and social care addressing such issues as supporting and enabling families, education, employment, and sexuality and relationships. Edited by experienced and widely respected professionals, this textbook is written by international practitioners, educators and researchers who all play critical roles in working with individuals with intellectual disability and their families.


The Hastings Center Guidelines for Decisions on Life-Sustaining Treatment and Care Near the End of Life

The Hastings Center Guidelines for Decisions on Life-Sustaining Treatment and Care Near the End of Life
Author: Nancy Berlinger
Publisher:
Total Pages: 265
Release: 2013-07-11
Genre: Education
ISBN: 019997456X

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This major new work updates and significantly expands The Hastings Center's 1987 Guidelines on the Termination of Life-Sustaining Treatment and Care of the Dying. Like its predecessor, this second edition will shape the ethical and legal framework for decision-making on treatment and end-of-life care in the United States. This groundbreaking work incorporates 25 years of research and innovation in clinical care, law, and policy. It is written for physicians, nurses, and other health care professionals and is structured for easy reference in difficult clinical situations. It supports the work of clinical ethicists, ethics committee members, health lawyers, clinical educators, scholars, and policymakers. It includes extensive practical recommendations. Health care reform places a new set of challenges on decision-making and care near the end of life. The Hastings Center Guidelines are an essential resource.


Supporting People with Intellectual Disabilities Experiencing Loss and Bereavement

Supporting People with Intellectual Disabilities Experiencing Loss and Bereavement
Author: Sue Read
Publisher: Jessica Kingsley Publishers
Total Pages: 282
Release: 2014-08-21
Genre: Social Science
ISBN: 0857007262

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Exploring contemporary theory and practice surrounding loss and bereavement for people with intellectual disabilities (ID), this book brings together international contributors with a range of academic, professional and personal experience. This authoritative edited book looks at diverse experiences of loss across this population whether it be loss due to transition, the loss or death of others, or facing their own impending death. The book begins by offering theoretical perspectives on loss and compassion, bereavement, disenfranchised grief, spirituality, and psychological support. It then addresses contemporary practice issues in health and social care contexts and explores loss for specific communities with ID including children, individuals with autism, those in forensic environments, and those at the end of life. Identifying inherent challenges that arise when supporting individuals with ID experiencing loss, and providing evidence and case studies to support best practice approaches, this book will be valuable reading for students, academics and professionals in the fields of disability, health and social care.


Love, Learning Disabilities and Pockets of Brilliance

Love, Learning Disabilities and Pockets of Brilliance
Author: Sara Ryan
Publisher: Jessica Kingsley Publishers
Total Pages: 178
Release: 2020-09-21
Genre: Psychology
ISBN: 1787751929

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This is a book written to celebrate the humanity of people, and to share experiences of what brilliant care and support can look like for families with learning disabled or autistic children and adults. Sara Ryan steers clear of jargon and 'doublespeak' to conjure authentic experiences of families. Speaking with families and professionals, she conveys the love, laughter and joy which binds families and the harsh realities many face; of separation from loved ones, substandard care and frustration and helplessness in the face of inflexible services. From their experiences, Sara looks to capture those pockets of brilliance that families have encountered, and which outstanding practitioners have pioneered, for us all to learn from. We know so much about what support and services should look like in order to enable flourishing lives - this book aims to help families and professionals to achieve it, together.