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| Author | : Denise Dew-Hughes |
| Publisher | : Routledge |
| Total Pages | : 209 |
| Release | : 2003-12-16 |
| Genre | : Education |
| ISBN | : 1134378114 |
This book provides invaluable information, support and guidance on educating a child with Fragile X, background on the origins of this syndrome, and what the implications are for such a child's teaching and learning.
| Author | : Hull Learning Services |
| Publisher | : Routledge |
| Total Pages | : 52 |
| Release | : 2014-07-10 |
| Genre | : Education |
| ISBN | : 1134021860 |
Off-the-shelf support containing all the vital information practitioners need to know about Fragile X Syndrome, this book includes: * Definition of Fragile X Syndrome and its educational implications * Ideas on how to improve access to the curriculum * Advice on how to manage support staff * Guidance on coordinating home and school liaison
| Author | : Suzanne Saunders |
| Publisher | : Routledge |
| Total Pages | : 149 |
| Release | : 2013-10-18 |
| Genre | : Education |
| ISBN | : 1134102291 |
Fragile X Syndrome is thought to be the most common inherited cause of learning difficulties. However many people have never heard of it and those who have, including many of the professionals who work with those affected by it, have little knowledge or understanding of the condition. This book brings up to date research with information and advice from teachers who are discovering, first hand, the best ways of educating children with Fragile X. It is much needed support and advice that will help teachers to understand the child with Fragile X and encourage maximum educational progress. / While the book is aimed at teachers, it is also an excellent resource for parents, therapists and any professional working with a child who has Fragile X.
| Author | : Randi Jenssen Hagerman |
| Publisher | : |
| Total Pages | : 481 |
| Release | : 1996 |
| Genre | : Fragile X syndrome |
| ISBN | : 9780801853883 |
This new edition of Fragile X Syndrome includes updated information on the latest research findings -- especially in molecular biology -- as well as new photographs highlighting clinical features and thorough coverage of treatment and intervention, diagnosis, and research. Praise for the first edition: "Answers nearly all the questions that parents or clinicians might raise about fragile X syndrome....Can be recommended confidently as a thoroughly up-to-date, reliable, and informative account of the condition." -- Lancet "The clinical and cytogenetic material in this book is excellent and provides a strong background for physicians and students... Fragile X Syndrome still presents the best comprehensive treatment of this complex disorder. Physicians, students, and other interested professionals can either read this book from cover to cover or select the chapters that interest or apply to them." -- New England Journal of Medicine
| Author | : Marilyn Morgan MS Ed. |
| Publisher | : AuthorHouse |
| Total Pages | : 112 |
| Release | : 2005-04 |
| Genre | : Family & Relationships |
| ISBN | : 1420829505 |
"The Broken Toy: A Story of a Fragile X Syndrome Child" is an inspirational account detailing the trials and triumphs of raising a special needs child. The goal is to help each and every parent with the courage, common sense, appropriate education, and love needed in raising their son or daughter. Determination and years of training resulted in an adult filled with hope, ability, and the opportunity for a productive life. This emotional tale of one child with a "disability" will serve as support for all parents. The Broken Toy details an engrossing and absorbing description of a special child's development from infancy to adulthood. The author's common sense approach to parenting will assist all parents in their life-long journey.
| Author | : Philip Wilson |
| Publisher | : |
| Total Pages | : 98 |
| Release | : 1994 |
| Genre | : Education |
| ISBN | : 9780915667239 |
| Author | : Donna Cutler-Landsman |
| Publisher | : Plural Publishing |
| Total Pages | : 404 |
| Release | : 2020-01-01 |
| Genre | : Medical |
| ISBN | : 1635501717 |
The 22q11.2 deletion syndrome, also known as velo-cardio-facial syndrome and DiGeorge syndrome, is relatively new. The genetic test to determine if a child has it has only been available since 1994. Educating Children with Velo-Cardio-Facial Syndrome, 22q11.2 Deletion Syndrome, and DiGeorge Syndrome, Third Edition, effectively blends the thoughtful research that has transpired within the past 25 years with practical and current educational strategies to better meet the needs of children with the 22q11.2 deletion syndrome and other developmental disabilities. With its expanded content, as well as new contributions from some of the most highly regarded experts in the field, Educating Children with Velo-Cardio-Facial Syndrome, 22q11.2 Deletion Syndrome, and DiGeorge Syndrome, Third Edition is an essential resource for teachers, parents, physicians, and therapists of children with this complicated learning profile. To first address the scientific information that is needed to understand the syndrome and the implications of current research, expert contributors present the results of current studies involving brain abnormalities, language/learning profiles, medical needs, and psychiatric and behavioral difficulties. These valuable chapters are written in a reader-friendly manner to help parents, professionals, and teachers gain useful and necessary comprehension of the unique characteristics of the 22q11.2DS population. The second part of the book is a practical guide to educating a child with 22q11.2DS from birth through adulthood. Divided into the various stages of development from preschool to adulthood, it includes information regarding the necessary tests special education teams should run, typical difficulties associated with learning, changes that occur with ability as the child matures, and behavioral problems in the school setting. New to the Third Edition: * Addition of recent research studies since 2012 * Current research and treatment options for mental health issues * Expanded and enhanced coverage of bullying and the social/emotional aspects of the syndrome * Discussion on the possibility of cognitive decline and how to address this at school * More information on Common Core State Standards and standardized testing for children with disabilities, including a section on understanding test scores * Homeschooling and other placement alternatives * Executive functioning deficits, their impact in the classroom, and approaches to use * Dealing with problem behaviors such as withdrawal and school refusal * Cognitive remediation and new treatment strategies * New math and reading remediation techniques * New options for programming and post-secondary placements
| Author | : |
| Publisher | : |
| Total Pages | : |
| Release | : 2004 |
| Genre | : |
| ISBN | : |
Recent research on cognitive behavioral profiles for specific genetic syndromes, such as fragile X syndrome, has generated information that special educators can incorporate into their teaching practices, though few studies have assessed their use of this information. This cross-sectional study surveyed special educators to characterize what fragile X specific information they had acquired, what they found most useful, and what information dissemination strategies they preferred. Approximately half of the 271 participants had some information related to fragile X syndrome and 80.8% expressed interest in incorporating fragile X syndrome information into their teaching. Over 50% perceived the topics of teaching strategies, behavioral interventions, and cognitive behavioral profiles as very useful. Teachers prefer to receive information through printed material, internet resources, professional workshops and other teachers.
| Author | : National Research Council |
| Publisher | : National Academies Press |
| Total Pages | : 324 |
| Release | : 2001-11-11 |
| Genre | : Medical |
| ISBN | : 0309210011 |
Autism is a word most of us are familiar with. But do we really know what it means? Children with autism are challenged by the most essential human behaviors. They have difficulty interacting with other people-often failing to see people as people rather than simply objects in their environment. They cannot easily communicate ideas and feelings, have great trouble imagining what others think or feel, and in some cases spend their lives speechless. They frequently find it hard to make friends or even bond with family members. Their behavior can seem bizarre. Education is the primary form of treatment for this mysterious condition. This means that we place important responsibilities on schools, teachers and children's parents, as well as the other professionals who work with children with autism. With the passage of the Individuals with Disabilities Education Act of 1975, we accepted responsibility for educating children who face special challenges like autism. While we have since amassed a substantial body of research, researchers have not adequately communicated with one another, and their findings have not been integrated into a proven curriculum. Educating Children with Autism outlines an interdisciplinary approach to education for children with autism. The committee explores what makes education effective for the child with autism and identifies specific characteristics of programs that work. Recommendations are offered for choosing educational content and strategies, introducing interaction with other children, and other key areas. This book examines some fundamental issues, including: How children's specific diagnoses should affect educational assessment and planning How we can support the families of children with autism Features of effective instructional and comprehensive programs and strategies How we can better prepare teachers, school staffs, professionals, and parents to educate children with autism What policies at the federal, state, and local levels will best ensure appropriate education, examining strategies and resources needed to address the rights of children with autism to appropriate education. Children with autism present educators with one of their most difficult challenges. Through a comprehensive examination of the scientific knowledge underlying educational practices, programs, and strategies, Educating Children with Autism presents valuable information for parents, administrators, advocates, researchers, and policy makers.
| Author | : Joanne Erwick Roberts |
| Publisher | : CLI |
| Total Pages | : 332 |
| Release | : 2008 |
| Genre | : Medical |
| ISBN | : |
Written by leading experts, this is the most up-to-date resource on speech and language assessment and intervention for professionals working with infants to adults with Down Syndrome and Fragile X Syndrome.
