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Children and Youth with Complex Cerebral Palsy

Children and Youth with Complex Cerebral Palsy
Author: Laurie Glader
Publisher: Mac Keith Press
Total Pages: 0
Release: 2019-02-26
Genre: Medical
ISBN: 9781909962989
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Children with complex cerebral palsy (typically, but not always, GMFCS levels IV and V) require skilled management and extensive expertise which can be overwhelming or intimidating for many clinical practitioners. This book explores management of the many medical comorbidities these children encounter, including orthopedic concerns, mobility and equipment needs, cognition and sensory impairment, difficult behaviors, seizures, respiratory complications and nutritional challenges, among many others. Summary points at the end of each chapter provide at-a-glance access to key recommendations. In addition, an Appendix provides adaptable care tools to guide clinicians in evaluation, preventive care and crisis management. Importantly, the book includes contributions from parents of children with cerebral palsy and youth with cerebral palsy, providing unique and critical wisdom for family-centred care. Parents and families of children and youth with complex cerebral palsy will particularly appreciate the inclusion of chapters on adolescence, transition to adulthood, and growing up, growing well with cerebral palsy.

Children and Youth with Complex Cerebral Palsy

Children and Youth with Complex Cerebral Palsy
Author: Laurie J. Glader
Publisher:
Total Pages: 405
Release: 2018
Genre: MEDICAL
ISBN: 9781909962996
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This is the first book to focus exclusively on the management of the many medical comorbidities encountered by children and adolescents with more complex presentations of cerebral palsy.

Cerebral Palsy

Cerebral Palsy
Author: Freeman Miller
Publisher: JHU Press
Total Pages: 537
Release: 2006-05-08
Genre: Health & Fitness
ISBN: 0801883547
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When a child has a health problem, parents want answers. But when a child has cerebral palsy, the answers don't come quickly. A diagnosis of this complex group of chronic conditions affecting movement and coordination is difficult to make and is typically delayed until the child is eighteen months old. Although the condition may be mild or severe, even general predictions about long-term prognosis seldom come before the child's second birthday. Written by a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children, this authoritative resource provides parents and families with vital information that can help them cope with uncertainty. Thoroughly updated and revised to incorporate the latest medical advances, the second edition is a comprehensive guide to cerebral palsy. The book is organized into three parts. In the first, the authors describe specific patterns of involvement (hemiplegia, diplegia, quadriplegia), explain the medical and psychosocial implications of these conditions, and tell parents how to be effective advocates for their child. In the second part, the authors provide a wealth of practical advice about caregiving from nutrition to mobility. Part three features an extensive alphabetically arranged encyclopedia that defines and describes medical terms and diagnoses, medical and surgical procedures, and orthopedic and other assistive devices. Also included are lists of resources and recommended reading.

Family Needs of Parents of Children and Youth with Cerebral Palsy

Family Needs of Parents of Children and Youth with Cerebral Palsy
Author: Nihad A. Almasri
Publisher: Universal-Publishers
Total Pages:
Release: 2010-08-30
Genre:
ISBN: 1599423588
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It is important for professionals who provide medical, rehabilitation, educational, and community services for children and youth with cerebral palsy to provide a quality medical home, family-centered, and needs-based services to address their needs and improve child and family well-being. Knowledge regarding determinants and unique profiles of needs for families of children and youth with cerebral palsy is limited. The aims of this research were to (1) test structural equation models of determinants of three types of family needs of parents of children and youth with cerebral palsy; (2) identify and describe unique profiles of family needs; and (3) examine whether profiles of needs are differentiated based on child, family, and service characteristics. Participants were 579 parents of children and youth with cerebral palsy. Children/youth and their parents completed a modified version of the Family Needs Survey, Family Environment Scale, Coping Inventory, Children's Assessment of Participation and Enjoyment, Measure of Processes of Care, and Services questionnaire. Research assistants determined the Gross Motor Function Classification System levels of the children. The structural models explained 23% of variance in needs related to child condition, 43% of variance in needs related to community and financial resources, and 33% of variance in needs related to family functioning. The determinants of the three models included different combinations of services (accessibility, coordination, processes), family (relationships, income), and child (gross motor function, adaptive behavior, communication problems) characteristics. K-means cluster analysis indicated four unique profiles of needs: Low Needs, Needs Related to Child Health Condition, Needs Related to Community and Financial Resources, and High Needs. Profile membership was differentiated based on child gross motor function and adaptive behavior, family relationships and income, and access to and coordination of services. Families who were included in the profile of low needs commonly reported accessible, coordinated, and family-centered care. The results emphasize the importance of providing medical and family-centered services to address the unique needs of families of children and youth with cerebral palsy. Service providers are encouraged to engage families in expressing their needs, collaborate with families in identifying resources to meet needs, and guide families in navigating complex service systems to address needs.

Spastic Diplegia--Bilateral Cerebral Palsy

Spastic Diplegia--Bilateral Cerebral Palsy
Author: Lily Collison MA MSc
Publisher:
Total Pages: 368
Release: 2020-02-05
Genre: Family & Relationships
ISBN: 9781952181009
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"A must-read for professionals, parents, and the individual with CP."-Deborah Gaebler-Spira, MDAn empowering and evidence-based guide for living a full life with spastic diplegia-bilateral cerebral palsy."This detailed and practical book on spastic diplegia, written by a parent in conjunction with medical practitioners at Gillette, is simply brilliant and fills a huge gap."-Lori Poliski, parentCerebral palsy (CP) is the most common cause of childhood-onset lifelong physical disability. Approximately one-third of those with CP have the subtype spastic diplegia-also known as bilateral spastic CP, or simply bilateral CP. An estimated 6 million worldwide have spastic diplegia. Until now, there has been no book focused on this condition to help this large group of people. This book focuses on the motor problems-problems with bones, muscles, and joints, and their impact on walking. The Gross Motor Function Classification System (GMFCS) is a five-level system that indicates the severity of the condition. This book is relevant to those at GMFCS levels I to III: those who are capable of walking independently or with a handheld mobility device. These three levels account for the majority of people with spastic diplegia.The book addresses how spastic diplegia develops over the lifespan and explains the evidence-based, best-practice treatments. It empowers parents of young children, and adolescents and adults with the condition, to become better advocates and co-decision makers in the medical process. The focus of this optimistic, yet practical book is on maximizing activity and participation-living life to its fullest. Health care professionals, educators, students, and extended family members will also benefit from reading this book. Indeed, while this book focuses on spastic diplegia, much of what is addressed also applies to other forms of spastic CP at GMFCS levels I to III, namely hemiplegia and quadriplegia.Written by Lily Collison, a parent of a son with spastic diplegia and a medical sciences graduate, in close collaboration with senior medical experts from Gillette Children's Specialty Healthcare-a world-renowned center of excellence for CP treatment-this is an excellent, long-needed resource for spastic diplegia.

Cerebral Palsy

Cerebral Palsy
Author: Bernard Dan
Publisher: Mac Keith Press
Total Pages: 0
Release: 2015-01-12
Genre: Medical
ISBN: 9781909962385
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The only complete, scientifically rigorous, fully integrated reference giving a wide ranging and in-depth perspective on cerebral palsy and related neurodevelopment disabilities. It considers all aspects of cerebral palsy from the causes to clinical problems and their implications for individuals. Leading scientists present the evidence on the role of pre-term birth, inflammation, hypoxia, endocrinological and other pathways. They explore opportunities for neuroprotection leading to clinical applications. An international team of experts provides clinicians and researchers with key information on the mechanisms underlying impairments in movement, development, cognition, communication, vision, feeding, behaviour, sexuality, and musculoskeletal deformities. They present a wide range of person-centred assessment approaches, including clinical evaluation, measurement scales, neuroimaging and gait analysis. The principles of multi-disciplinary management are presented, in terms of therapist intervention, medication and surgery. The perspective of the book spans the lifelong course of cerebral palsy, taking into account worldwide differences in socio-economic and cultural factors. Many chapters are illustrated with clinical vignettes enabling direct translation into practice. Full integrated colour, with extensive cross-referencing make this a highly attractive and useful reference.

Improving Hand Function in Children with Cerebral Palsy

Improving Hand Function in Children with Cerebral Palsy
Author: Ann-Christin Eliasson
Publisher: Mac Keith Press
Total Pages: 0
Release: 2008-12-03
Genre: Medical
ISBN: 9781898683537
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Clinics in Developmental Medicine No. 178 For most children with cerebral palsy, the extent to which they can use their hands is critical to their overall development. Over the last two decades there have been major advances in the understanding of hand function. Particularly in children with cerebral palsy, assessment of hand function has become more exact and the range of possible interventions has expanded. Changes in treatment approaches can be seen in neurorehabilitation, orthopaedic management, developmental pediatrics and rehabilitation including occupational and physical therapy practices. In this book, selected experts from around the world in the fields of neuroimaging, neurology, orthopaedics, anatomy, motor control and motor learning provide fundamental theoretical information for the development of hand function in children with cerebral palsy. The book also shows how theory can be translated into practice by clinicians who provide assessment and intervention services to improve hand use in this population in sections written by researchers in occupational and physical therapy. Linking different fields of knowledge, this book highlights new perspectives and provides the best evidence for different types of intervention. By focusing only on hand function this essential book highlights new concepts for clinicians and others working towards the overall well-being of children with cerebral palsy.

ICF Core Sets

ICF Core Sets
Author: Jerome Bickenbach
Publisher: Hogrefe & Huber Publishing
Total Pages: 0
Release: 2012
Genre: Classification
ISBN: 9780889374317
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ICF Research Branch in cooperation with the WHO Collaborating Centre for the Family of International Classifications in Germany (at DIMDI) Practical, standardized tools to assess and document functioning, disability, and health according to the WHO ICF in a variety of health conditions and settings The WHO's International Classification of Functioning, Disability and Health (ICF) is the accepted common framework for understanding and documenting functioning and disability. The ICF Core Sets selected for this book have now been developed to facilitate the standardized use of the ICF in real-life clinical practice and thus improve quality of care. By using this collection of clear checklists, definitions, and forms, clinicians will quickly and easily be able to assess clients with a range of typical health conditions at different stages and in a variety of health care contexts. This manual: * Introduces the concepts of functioning and disability * Describes how and why the ICF Core Sets have been developed * Shows, step-by-step, how to apply the ICF Core Sets in clinical practice * Includes all 31 ICF Core Sets plus documentation forms (more than 1,400 pages of printable PDFs) on a CD-ROM. This manual is inherently multi-professional and will be of benefit not only for practitioners working in various health care contexts but also for students and teachers.

Ballerina Dreams

Ballerina Dreams
Author: Lauren Thompson
Publisher: Macmillan
Total Pages: 52
Release: 2007-10-02
Genre: Biography & Autobiography
ISBN: 9780312370299
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The inspiring story of five little girls whose ballerina dreams come true with the help of their dedicated teacher.

Parenting Matters

Parenting Matters
Author: National Academies of Sciences, Engineering, and Medicine
Publisher: National Academies Press
Total Pages: 525
Release: 2016-11-21
Genre: Social Science
ISBN: 0309388570
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Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.