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An Adolescent's Guide to ME/CFS

An Adolescent's Guide to ME/CFS
Author: Vidhima Shetty
Publisher:
Total Pages: 122
Release: 2018-08
Genre: Medical
ISBN: 9780999516232

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A brief book on ME to provide young people and their parents an excellent overview of what this disease is including its history and possible causes. While there is still no cure, there are coping strategies that can help patients better adjust to one of the more debilitating illnesses that affect thousands of youth in our country.


Chronic Fatigue Syndrome Treatment

Chronic Fatigue Syndrome Treatment
Author: Erica F. Verrillo
Publisher: Macmillan
Total Pages: 436
Release: 1998-02-15
Genre: Health & Fitness
ISBN: 9780312180669

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Combining a self-help manual, personal histories of chronic fatigue sufferers and a dictionary of symptoms and treatments, this comprehensive volume details every facet of the disease and thoroughly discusses every treatment currently available--from diagnosis to symptoms to traditional and alternative therapies to support groups.


Managing ME/CFS

Managing ME/CFS
Author: Rosamund Vallings
Publisher:
Total Pages: 136
Release: 2015-08
Genre:
ISBN: 9781877429149

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Adolescence and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Adolescence and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Author: Roberto Patarca Montero
Publisher: CRC Press
Total Pages: 220
Release: 2001-01-03
Genre: Health & Fitness
ISBN: 9780789008749

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How thorough is your understanding of ME/CFS? Adolescence and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Journeys with the Dragon examines the firsthand experiences of four young women stricken with this stigmatized chronic illness and offers advice and support for the victims, as well as for their family and friends. The book focuses on the ways they cope with a stigmatizing chronic illness during adolescence and the impact it has on their lives. It offers a personal “guide to survival” that will appeal to adolescent patients and parents, and it provides a window into the psychosocial implications of illness that is well-suited to professionals. Providing a description of symptoms that vary in intensity every day, such as fatigue, migraine headaches, muscle pain and/or weakness, cognitive dysfunction, and more, this valuable book also gives suggestions on how to cope with this disease as it looks at these patients’experiences from a psychological perspective. You will find reassurance, support, and an increase in knowledge as you become familiar with ME/CFS, and you will learn how real people are living with and managing this illness with strength and courage. Comprehensive and compelling, Adolescence and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome will appeal both to experts and novices. A chronology of the participants’experiences in their own words is followed by scientific discussion of an inductively derived theory that applies to that patient. Some of the areas that Adolescence and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome focuses on are: the role of stigma for patients and their families family interaction chronic illness management peer concerns development of the self interaction with broader institutions such as medical, educational, and insurance/government disability programs Adolescence and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome also addresses issues and topics that need to be explored in the future in order to help individuals and families lead easier and more independent lives.


Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Author: Institute of Medicine
Publisher: National Academies Press
Total Pages: 251
Release: 2015-03-16
Genre: Medical
ISBN: 0309316928

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Myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are serious, debilitating conditions that affect millions of people in the United States and around the world. ME/CFS can cause significant impairment and disability. Despite substantial efforts by researchers to better understand ME/CFS, there is no known cause or effective treatment. Diagnosing the disease remains a challenge, and patients often struggle with their illness for years before an identification is made. Some health care providers have been skeptical about the serious physiological - rather than psychological - nature of the illness. Once diagnosed, patients often complain of receiving hostility from their health care provider as well as being subjected to treatment strategies that exacerbate their symptoms. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome proposes new diagnostic clinical criteria for ME/CFS and a new term for the illness - systemic exertion intolerance disease(SEID). According to this report, the term myalgic encephalomyelitis does not accurately describe this illness, and the term chronic fatigue syndrome can result in trivialization and stigmatization for patients afflicted with this illness. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome stresses that SEID is a medical - not a psychiatric or psychological - illness. This report lists the major symptoms of SEID and recommends a diagnostic process.One of the report's most important conclusions is that a thorough history, physical examination, and targeted work-up are necessary and often sufficient for diagnosis. The new criteria will allow a large percentage of undiagnosed patients to receive an accurate diagnosis and appropriate care. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome will be a valuable resource to promote the prompt diagnosis of patients with this complex, multisystem, and often devastating disorder; enhance public understanding; and provide a firm foundation for future improvements in diagnosis and treatment.


Pediatric Chronic Fatigue Syndrome

Pediatric Chronic Fatigue Syndrome
Author: Kenny De Meirleir
Publisher: CRC Press
Total Pages: 146
Release: 2007-02-07
Genre: Medical
ISBN: 9780789035325

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Help young CFS sufferers cope with this debilitating illness Chronic Fatigue Syndrome (CFS) is a debilitating illness that can have devastating effects for those afflicted, especially children and adolescents. Pediatric Chronic Fatigue Syndrome discusses this growing problem and its many facets in depth, including the mounting prevalence of incidents in the population and detailed explanations of diagnostic criteria. Case studies are provided to illustrate the issues those afflicted with CFS face, such as increasing isolation, decreasing school attendance, the length of time it typically takes to get diagnosed, and the impact on leisure activities. Current criteria for CFS were designed for use in adults, with few studies done on assessing how appropriate these criteria are for children and adolescents. Pediatric Chronic Fatigue Syndrome provides the criteria for first-time diagnosis of pediatric CFS and includes practical recommendations developed by the International Association of Chronic Fatigue Syndrome Pediatric Case Definition Working Group. This book closely examines the potential impact that Chronic Fatigue Syndrome has on child and adolescent functioning, psychological factors, social factors, and the suffering endured from symptoms. Guidelines are provided on ways ME-CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) can be addressed in primary practice. Topics in Pediatric Chronic Fatigue Syndrome include: ME/CFS CACFS (Chronic Fatigues Syndrome in Children and Adolescents) the common problem of Munchausen-by-proxy research on the psychosocial, family, and physical functioning comparing children and adolescents with CFS and those without CFS using theory in clinical practice guidelines on how ME/CFS can be addressed in primary practice overview of CFS aspects for healthcare professionals who may be called on to diagnose or treat the illness and more Pediatric Chronic Fatigue Syndrome is timely, important information for health professionals, researchers, counselors, caregivers, parents of children and adolescents with CFS, and patients with CFS.


A Physiotherapist's Guide to Understanding and Managing ME/CFS

A Physiotherapist's Guide to Understanding and Managing ME/CFS
Author: Karen Leslie
Publisher: Jessica Kingsley Publishers
Total Pages: 322
Release: 2023-08-21
Genre: Medical
ISBN: 1839971444

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Myalgic encephalomyelitis, also known as Chronic Fatigue Syndrome, is a deeply complex and multi-system condition which has historically suffered from a lack of awareness within physiotherapy education and practice. Similarities in presentation between this condition and Long Covid make this comprehensive and evidence-based guide for physiotherapists even more timely and important. This guide includes an in-depth explanation and history of ME/CFS whilst also describing symptoms, varying degrees of severity, and how to manage ME/CFS in children. It also provides detailed management advice and discussion on how the information can directly inform physiotherapy practice, supplemented with patient case studies.


Girl in the Window

Girl in the Window
Author: Penny Joelson
Publisher: Electric Monkey
Total Pages: 352
Release: 2018-08-09
Genre:
ISBN: 9781405286169

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See the world from another unique perspective in the thrilling new novel from the author of I Have No Secrets .Nothing ever happens on Kasia's street. Kasia would know because her illness makes her spend days stuck at home, watching the world outside from her bedroom window. So when she sees what looks like a kidnapping, she's not sure whether she can believe her own eyes... There was a girl in the window opposite - she must have seen it too. When Kasia goes to find her she is told the most shocking thing of all: there is no girl.An eye-opening and compulsive page-turner for readers aged 12 and up.


Advances In ME/CFS Research and Clinical Care

Advances In ME/CFS Research and Clinical Care
Author: Kenneth J. Friedman
Publisher: Frontiers Media SA
Total Pages: 266
Release: 2019-11-25
Genre:
ISBN: 2889632067

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In 2015, the Institute of Medicine (USA) issued a report critical of the research effort and clinical care for ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome) formerly known as Chronic Fatigue Syndrome (CFS) and Chronic Fatigue Immune Deficiency Syndrome (CFIDS). While worldwide investigation into the cause and nature of ME/CFS remains disproportionately small, and treatment remains symptomatic and controversial, modest research continues in all aspects of this disease: epidemiology, possible infectious origins and other triggers, possible involvement of genetics, metabolism, and microbiome, influence of co-morbid conditions, and more. Treatment of patients consists of providing symptomatic relief. Guidance in doing so is provided for the clinician. School-age children require not only treatment but, as revealed in a 25-year retrospective study, continued engagement with peers and social activity. This e-book explores the breadth and depth of current ME/CFS research and clinical care. Its impact for other chronic, complex illnesses should not be overlooked.


Overcoming Chronic Fatigue in Young People

Overcoming Chronic Fatigue in Young People
Author: Katharine Rimes
Publisher: Routledge
Total Pages: 140
Release: 2015-07-03
Genre: Psychology
ISBN: 1317605373

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Overcoming Chronic Fatigue in Young People provides an effective evidence-based, step-by-step guide to managing and overcoming chronic fatigue. The highly-experienced experts Katharine Rimes and Trudie Chalder, present an accessible and practical manual aimed at young people, with downloadable material (available online) to support recovery. The book also includes a guide for parents and a helpful resources section. It is recommended for any young person struggling with chronic fatigue, as well as parents and professionals. Currently, there is no other evidence-based self-help guide available on chronic fatigue aimed at young people. This innovative book contains detailed advice for tailoring a fatigue recovery programme to the individual and shows the health professional how to do this. Topics covered include: Sleep, exercise, coping with stress and school. Based on cognitive behaviour therapy, a treatment approach supported by research evidence, Katherine Rimes and Trudie Chalder have used this guide in specialist CFS / ME service for many years with positive results as reported by both patients and parents. Overcoming Chronic Fatigue in Young People is aimed at young people with CFS / ME but people with chronic fatigue caused by other conditions will also find it invaluable. It is an essential resource for parents, families and health care professionals in the treatment of their clients.