Advances Of Health Care Transition For Patients With Childhood Onset Chronic Diseases International Perspectives Volume Ii PDF Download

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Health Care Transition

Health Care Transition
Author: Albert C. Hergenroeder
Publisher: Springer
Total Pages: 394
Release: 2018-05-03
Genre: Medical
ISBN: 3319728687

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This comprehensive book thoroughly addresses all aspects of health care transition of adolescents and young adults with chronic illness or disability; and includes the framework, tools and case-based examples needed to develop and evaluate a Health Care Transition (HCT) planning program that can be implemented regardless of a patient’s disease or disability. Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is a uniquely inclusive resource, incorporating youth/young adult, caregiver, and pediatric and adult provider voices and perspectives. Part I of the book opens by defining Health Care Transition, describing the urgent need for comprehensive transition planning, barriers to HCT and then offering a framework for developing and evaluating health care transition programs. Part II focuses on the anatomic and neuro-chemical changes that occur in the brain during adolescence and young adulthood, and how they affect function and behavior. Part III covers the perspectives of important participants in the HCT transition process – youth and young adults, caregivers, and both pediatric and adult providers. Each chapter in Part IV addresses a unique aspect of developing HCT programs. Part V explores various examples of successful transition from the perspective of five key participants in the transition process - patients, caregivers, pediatric providers, adult providers and third party payers. Related financial matters are covered in part VI, while Part VII explores special issues such as HCT and the medical home, international perspectives, and potential legal issues. Models of HCT programs are presented in Part VIII, utilizing an example case study. Representing perspectives from over 75 authors and more than 100 medical centers in North America and Europe, Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is an ideal resource for any clinician, policy maker, caregiver, or hospitalist working with youth in transition.


Transition from Pediatric to Adult Healthcare Services for Adolescents and Young Adults with Long-term Conditions

Transition from Pediatric to Adult Healthcare Services for Adolescents and Young Adults with Long-term Conditions
Author: Cecily L. Betz
Publisher: Springer Nature
Total Pages: 344
Release: 2019-11-30
Genre: Medical
ISBN: 3030233847

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This book offers essential information on interventions and actions that enable and promote transition experiences for adolescents and young adults. It provides guidance on appropriate strategies that bring together these groups and caregivers in the context of transition preparation, and those which optimize adolescents’ and young adults’ ability to self-manage their healthcare. The health care transition for adolescents and young adults has gained more attention given the improved survival rates, including for those with long-term conditions. It is now estimated that more than 90% of children diagnosed with a long-term condition will survive into adulthood. The significant change in survival requires concomitant services to facilitate adolescents’ and young adults’ successful transition to adult health care, therefore providers need education, knowledge and skills to support healthcare transition services. A recent US national survey demonstrated only 10% of parents/caregivers reported that their children received transition preparation services. This book is targeted at nurses and pediatric and adult health care providers of different disciplines seeking guidance on which interventions are available, how they can be used, advantages and challenges, and how best to promote a seamless transition for all adolescents and young adults with long-term conditions. It provides several examples of transition programmes and initiatives worldwide. There is an increasing focus on how nurses can support transition but little guidance on what is effective and what has been tried. This book will fill a gap by addressing all of these issues outlined above and by providing worked examples from leading nurse researchers and academics worldwide.


Care of Adults with Chronic Childhood Conditions

Care of Adults with Chronic Childhood Conditions
Author: Mariecel Pilapil
Publisher: Springer
Total Pages: 436
Release: 2016-11-24
Genre: Medical
ISBN: 3319438271

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This book addresses the unique healthcare needs of adults with chronic childhood illnesses. It presents a model of primary and secondary prevention for emerging adulthood—primary prevention in which all young adults are screened for high-risk behaviors and health needs and secondary prevention in which young adults with chronic childhood conditions are optimized through coordinated care, connections to community resources and social/family support. This book is organized in five parts. Part I provides a detailed overview of the health care transition from pediatrics to adult medicine from both a policy and practice perspective. In Part II, the concept of emerging adulthood as a developmental period is explored and strategies for providing improved comprehensive care for this age group are discussed. Part III reviews specific chronic childhood conditions, such as attention-deficit/hyperactivity disorder, autism, cystic fibrosis, and diabetes mellitus, and offers clinical cases and summary reports that can be used as a quick guides to each condition. In Part IV, additional clinical considerations that are not necessarily condition-specific but are highly relevant to the care of young adults with chronic childhood conditions are examined. Part V describes the socio-legal issues involved in caring for this population. Care of Adults with Chronic Childhood Conditions provides primary care providers with a new framework for the care of young adults and identifies opportunities to influence patient health outcomes over a life trajectory.


Handbook of Quality of Life for Individuals with Autism Spectrum Disorder

Handbook of Quality of Life for Individuals with Autism Spectrum Disorder
Author: Justin B. Leaf
Publisher: Springer Nature
Total Pages: 477
Release: 2022-06-01
Genre: Psychology
ISBN: 3030985075

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This handbook offers a comprehensive examination of wide-ranging issues relevant to adults diagnosed with autism spectrum disorder. Coverage includes a detailed review of such issues as psychiatric comorbidity, family relationships, education, living in different settings (e.g., group homes, community), meaningful and effective interventions, functional goals (e.g., social, language, vocational, and adaptive behaviors), and curriculum. In addition the book provides unique perspectives of parents as well as individuals diagnosed with autism spectrum disorder who have reached adulthood. Key areas of coverage include: Transitioning adults diagnosed with autism spectrum disorder from educational settings to vocational settings. Strategies that can help create independence for adults diagnosed with autism spectrum disorder. Effective approaches to address issues relating to sexuality for adults diagnosed with autism spectrum disorder. The effectiveness of early intensive behavioral intervention to help adults diagnosed with autism spectrum disorder. Handbook of Quality of Life for Individuals with Autism Spectrum Disorder is an essential reference for researchers, professors, and graduate students as well as clinicians, therapists, and related professionals in clinical child and school psychology, social work, behavioral therapy and related disciplines, including clinical medicine, clinical nursing, counseling, speech and language pathology, and special education.


Transitioning Care from Pediatric to Adult Pulmonology

Transitioning Care from Pediatric to Adult Pulmonology
Author: Cynthia D. Brown
Publisher: Springer Nature
Total Pages: 169
Release: 2021-04-28
Genre: Medical
ISBN: 3030686884

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This book addresses an unmet need in the care of adolescents and young adults with lung disease. The increasing survival of young adults with childhood-onset pulmonary conditions is a testament to major advances in treatments and health care delivery. With the increase in survival of children with chronic respiratory conditions, there is a need for formalized transition programs to integrate adolescents and young adults into the adult model of care. This book helps fill gaps in knowledge to best achieve that initiative. This book takes a comprehensive approach to transition care in pulmonary medicine by satisfying the following objectives: 1) Understand the barriers and developmental challenges in the transition from pediatric to adult care for patients with chronic childhood-onset pulmonary disease; 2) Learn about successful evidence based transition models in pulmonary disease populations, focusing on key process and outcome measures for success; and 3) Develop knowledge to design, implement, and measure a transition program based on evidence and expert opinion. In the first section, the book outlines general principles of transition care that are applicable to all patients regardless of underlying disease process and describe best practices for performing necessary research in transition care. In the second section, the book explores psychosocial factors known to play a role in affecting transition outcomes, including parental support, psychological development, and socioeconomic factors. In the final section, transition outcomes and best practices in specific respiratory diseases are outlined. With a focus on populations with chronic pulmonary disease, this book highlights the challenges and barriers of transition, reviews model systems to understand the essential components of a transition program, and provides evidence-based information to navigate these barriers and achieve successful outcomes during transition to adulthood. This is an ideal guide for pediatric and adult pulmonary providers caring for patients who are transition age, as well as multidisciplinary care team members who work with these providers in care models on transition projects to improve the transition process.


Epidemiology of Chronic Disease: Global Perspectives

Epidemiology of Chronic Disease: Global Perspectives
Author: Randall E. Harris
Publisher: Jones & Bartlett Learning
Total Pages: 957
Release: 2019-04-11
Genre: Medical
ISBN: 1284197034

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Epidemiology of Chronic Disease: Global Perspectives is the most current and authoritative resource on the epidemiology, etiology, pathogenesis, risk factors and preventive factors of over 50 major chronic diseases and conditions. This comprehensive text provides readers with an excellent basis for examining current hypotheses regarding chronic disease epidemiology.


A Caring Advanced Practice Nursing Model

A Caring Advanced Practice Nursing Model
Author: Lisbeth Maria Fagerström
Publisher: Springer Nature
Total Pages: 248
Release: 2021-06-30
Genre: Medical
ISBN: 303053555X

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This book introduces readers to the basics of Advanced Practice Nursing (APN), which offers expanded clinical competence that can help improve the quality of health and care services. The book offers a range of perspectives on APN, APN models, APN education, challenges in the implementation of APN in new countries, as well as a description of the APN role, including areas of expertise. These core areas of the Caring APN model (clinical nursing practice; ethical decision-making; coaching and teaching; consultation; collaboration; case management; leadership; research and development) are described, together with the role of APN in acute care and primary healthcare service contexts. The book also explores the connection between epistemology, a three-dimensional view of knowledge (epistêmê, technê and phronesis) and a caritative perspective, as well as central theoretical aspects of nursing, e.g. health, holism and ethics/ethos. All research should be grounded in theoretical perspectives, and here we highlight the value of a caring and person-centered philosophy in advanced practice nursing. Through its specific focus on the central, generic theoretical features of nursing science that deepen the role of APN and the scope of practice and APN research and education, the content presented here will help any researcher, teacher or student understand the importance of epistemological issues for research, education and clinical practice in this field. Moreover, it can be used when designing Master’s programs in Advanced Practice Nursing, making the book a valuable resource for the international nursing community.


Developmental Transitions

Developmental Transitions
Author: Sarah Crafter
Publisher: Routledge
Total Pages: 196
Release: 2019-03-14
Genre: Psychology
ISBN: 1317231481

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How can we make sense of change and stability through the lifespan of human development? What role does personal experience, our relationships with others, and historical and sociocultural contexts play in shaping these changes? This is the first book to offer an integrative overview of the range of developmental transitions which occur through the lifespan. Bringing together different theoretical and conceptual perspectives and a broad range of empirical research including quantitative and qualitative approaches, this book encompasses a range of complex transitional forms. Covering topics such as health transitions, transitions in friendships and romantic relationships, career transitions, and societal transitions, this book takes the reader beyond a focus on childhood and adolescence, to look at the whole lifespan. Reflecting a perspective that takes into account a sociocultural past and present, this book seeks to show how transitions can be viewed as both an experience of uncertainty and possibility. Transitions perform important functions and present psychosocial opportunities. Developmental Transitions is essential reading for all undergraduate and graduate students of developmental and cultural psychology and is also a valuable resource for academics and practitioner audiences interested in stability and change as people age.


Behavioral Diabetes

Behavioral Diabetes
Author: Alan M. Delamater
Publisher: Springer Nature
Total Pages: 522
Release: 2020-01-16
Genre: Psychology
ISBN: 3030332861

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This book presents an up-to-date review of behavioral factors in diabetes management across the lifespan: an update on medical management, epidemiology, and prognosis, and utilize an ecological framework to address various aspects of diabetes management for children and adults on the individual, social, community and medical system, and policy levels. The individual level examines biobehavioral and neuroendocrine factors for their role in the etiology of diabetes, as well as various demographic factors involved in health disparities, and specific psychological issues including distress and quality of life, depression and anxiety, eating disorders, and intervention approaches. Zooming out, the social level addresses the role of social support and family influences as well as group and family interventions to promote more effective diabetes management. The community level addresses medical system factors including the patient-physician relationship and transition programs, as well as community and school-based prevention programs. Finally, chapters also address how the policy level impacts diabetes management considering the role of health care, insurance, and school and workplace policy. Topics featured in this book include: Neuroendocrine and biobehavioral influences on diabetes Eating disorders in individuals with diabetes Family influences and family therapies for children and adults with diabetes Depression and anxiety in children and adults with diabetes Behavioral Diabetes is a must-have resource for researchers, graduate students and fellows, as well as clinicians, therapists, and other practitioners involved in diabetes management across the lifespan. A secondary audience comprises individuals working in the community and policy levels, including but not limited to health care and medical systems administrators, as well as school and workplace policymakers. “This book is a comprehensive overview of the extremely important topic of behavioral diabetes. The issues encompassed in this book have evolved greatly over the last few decades and the editors have done a spectacular job in having the key experts on each of the many topics review the literature while at the same time keeping it practical for both clinicians and researchers.” --Irl B. Hirsch, MD, University of Washington, Seattle