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| Author | : David Goode |
| Publisher | : American Association |
| Total Pages | : 0 |
| Release | : 2013 |
| Genre | : Developmentally disabled |
| ISBN | : 9781937604059 |
| Author | : Robert Klitzman |
| Publisher | : Oxford University Press, USA |
| Total Pages | : 433 |
| Release | : 2015 |
| Genre | : Medical |
| ISBN | : 0199364605 |
All studies on people involving diseases, from cancer to autism, and behavior. Yet ethical violations persist. At the same time, critics have increasingly attacked these committees for delaying or blocking important studies. Partly, science is changing, and the current system has not kept up. Since the regulations were first conceived 40 years ago, research has burgeoned 30-fold. Studies often now include not a single university, but multiple institutions, and 40 separate IRBs thus need to approve a single project. One committee might approve a study quickly, while others require major changes, altering the scientific design, and making the comparison of data between sites difficult. Crucial dilemmas thus emerge of whether the current system should be changed, and if so, how. Yet we must first understand the status quo to know how to improve it. Unfortunately, these committees operate behind closed doors, and have received relatively little in-depth investigation.
| Author | : Dr. Robin DiAngelo |
| Publisher | : Beacon Press |
| Total Pages | : 194 |
| Release | : 2018-06-26 |
| Genre | : Social Science |
| ISBN | : 0807047422 |
The New York Times best-selling book exploring the counterproductive reactions white people have when their assumptions about race are challenged, and how these reactions maintain racial inequality. In this “vital, necessary, and beautiful book” (Michael Eric Dyson), antiracist educator Robin DiAngelo deftly illuminates the phenomenon of white fragility and “allows us to understand racism as a practice not restricted to ‘bad people’ (Claudia Rankine). Referring to the defensive moves that white people make when challenged racially, white fragility is characterized by emotions such as anger, fear, and guilt, and by behaviors including argumentation and silence. These behaviors, in turn, function to reinstate white racial equilibrium and prevent any meaningful cross-racial dialogue. In this in-depth exploration, DiAngelo examines how white fragility develops, how it protects racial inequality, and what we can do to engage more constructively.
| Author | : James Trent |
| Publisher | : Oxford University Press |
| Total Pages | : 384 |
| Release | : 2016-11-01 |
| Genre | : Medical |
| ISBN | : 0199396205 |
Pity, disgust, fear, cure, and prevention--all are words that Americans have used to make sense of what today we call intellectual disability. Inventing the Feeble Mind explores the history of this disability from its several identifications over the past 200 years: idiocy, imbecility, feeblemindedness, mental defect, mental deficiency, mental retardation, and most recently intellectual disability. Using institutional records, private correspondence, personal memories, and rare photographs, James Trent argues that the economic vulnerability of intellectually disabled people (and often their families), more than the claims made for their intellectual and social limitations, has shaped meaning, services, and policies in United States history.
| Author | : James I. Charlton |
| Publisher | : Univ of California Press |
| Total Pages | : 215 |
| Release | : 1998-03-27 |
| Genre | : Social Science |
| ISBN | : 0520925440 |
James Charlton has produced a ringing indictment of disability oppression, which, he says, is rooted in degradation, dependency, and powerlessness and is experienced in some form by five hundred million persons throughout the world who have physical, sensory, cognitive, or developmental disabilities. Nothing About Us Without Us is the first book in the literature on disability to provide a theoretical overview of disability oppression that shows its similarities to, and differences from, racism, sexism, and colonialism. Charlton's analysis is illuminated by interviews he conducted over a ten-year period with disability rights activists throughout the Third World, Europe, and the United States. Charlton finds an antidote for dependency and powerlessness in the resistance to disability oppression that is emerging worldwide. His interviews contain striking stories of self-reliance and empowerment evoking the new consciousness of disability rights activists. As a latecomer among the world's liberation movements, the disability rights movement will gain visibility and momentum from Charlton's elucidation of its history and its political philosophy of self-determination, which is captured in the title of his book. Nothing About Us Without Us expresses the conviction of people with disabilities that they know what is best for them. Charlton's combination of personal involvement and theoretical awareness assures greater understanding of the disability rights movement.
| Author | : Ezekiel J. Emanuel |
| Publisher | : OUP USA |
| Total Pages | : 848 |
| Release | : 2011-02 |
| Genre | : Medical |
| ISBN | : 0199768633 |
The Oxford Textbook of Clinical Research Ethics is the first comprehensive and systematic reference on clinical research ethics. Under the editorship of experts from the U.S. National Institutes of Health of the United States, the book's 73 chapters offer a wide-ranging and systematic examination of all aspects of research with human beings. Considering the historical triumphs of research as well as its tragedies, the textbook provides a framework for analyzing the ethical aspects of research studies with human beings. Through both conceptual analysis and systematic reviews of empirical data, the contributors examine issues ranging from scientific validity, fair subject selection, risk benefit ratio, independent review, and informed consent to focused consideration of international research ethics, conflicts of interests, and other aspects of responsible conduct of research. The editors of The Oxford Textbook of Clinical Research Ethics offer a work that critically assesses and advances scholarship in the field of human subjects research. Comprehensive in scope and depth, this book will be a crucial resource for researchers in the medical sciences, as well as teachers and students.
| Author | : John A. Lynch |
| Publisher | : MSU Press |
| Total Pages | : 288 |
| Release | : 2019-09-01 |
| Genre | : Medical |
| ISBN | : 1628953802 |
The Origins of Bioethics argues that what we remember from the history of medicine and how we remember it are consequential for the identities of doctors, researchers, and patients in the present day. Remembering when medicine went wrong calls people to account for the injustices inflicted on vulnerable communities across the twentieth century in the name of medicine, but the very groups empowered to create memorials to these events often have a vested interest in minimizing their culpability for them. Sometimes these groups bury this past and forget events when medical research harmed those it was supposed to help. The call to bioethical memory then conflicts with a desire for “minimal remembrance” on the part of institutions and governments. The Origins of Bioethics charts this tension between bioethical memory and minimal remembrance across three cases—the Tuskegee Syphilis Study, the Willowbrook Hepatitis Study, and the Cincinnati Whole Body Radiation Study—that highlight the shift from robust bioethical memory to minimal remembrance to forgetting.
| Author | : Ellen Marie Wiseman |
| Publisher | : Kensington |
| Total Pages | : 386 |
| Release | : 2022-08-30 |
| Genre | : Fiction |
| ISBN | : 1496715888 |
Instant New York Times Bestseller! Girl, Interrupted meets American Horror Story in 1970s Staten Island, as the New York Times bestselling author of The Orphan Collector blends fact, fiction, and the urban legend of Cropsey for a haunting story about a young woman mistakenly imprisoned at Willowbrook State School – the real state-run institution that Geraldo Rivera would later expose for its horrifying abuses. An Indie Next Pick | Peruse Book Club Pick | A Room of Your Own Book Club Pick | A Publishers Lunch Buzz Books Selection Sage Winters always knew her sister was a little different even though they were identical twins. They loved the same things and shared a deep understanding, but Rosemary—awake to every emotion, easily moved to joy or tears—seemed to need more protection from the world. Six years after Rosemary’s death from pneumonia, Sage, now sixteen, still misses her deeply. Their mother perished in a car crash, and Sage’s stepfather, Alan, resents being burdened by a responsibility he never wanted. Yet despite living as near strangers in their Staten Island apartment, Sage is stunned to discover that Alan has kept a shocking secret: Rosemary didn’t die. She was committed to Willowbrook State School and has lingered there until just a few days ago, when she went missing. Sage knows little about Willowbrook. It’s always been a place shrouded by rumor and mystery. A place local parents threaten to send misbehaving kids. With no idea what to expect, Sage secretly sets out for Willowbrook, determined to find Rosemary. What she learns, once she steps through its doors and is mistakenly believed to be her sister, will change her life in ways she never could imagined . . . “A heartbreaking yet insightful read, this novel will open one's eyes to the evil in this world.” —New York Journal of Books “Unvarnished, painful and startlingly clear.” —Bookreporter.com
| Author | : Carolina Bank Muñoz |
| Publisher | : Univ of California Press |
| Total Pages | : 579 |
| Release | : 2022-01-25 |
| Genre | : History |
| ISBN | : 0520964152 |
This alternative guidebook for one of the world’s most popular tourist destinations explores all five boroughs to reveal a people’s New York City. The sites and stories of A People’s Guide to New York City shift our perception of what defines New York, placing the passion, determination, defeats, and victories of its people at the core. Delving into the histories of New York's five boroughs, you will encounter enslaved Africans in revolt, women marching for equality, workers on strike, musicians and performers claiming streets for their art, and neighbors organizing against landfills and industrial toxins and in support of affordable housing and public schools. The streetscapes that emerge from these groups' struggles bear the traces, and this book shows you where to look to find them. New York City is a preeminent global city, serving as the headquarters for hundreds of multinational firms and a world-renowned cultural hub for fashion, art, and music. It is among the most multicultural cities in the world and also one of the most segregated cities in the United States. The people that make this global city function—immigrants, people of color, and the working classes—reside largely in the so-called outer boroughs, outside the corporations, neon, and skyscrapers of Manhattan. A People’s Guide to New York City expands the scope and scale of traditional guidebooks, providing an equitable exploration of the diverse communities throughout the city. Through the stories of over 150 sites across the Bronx, Manhattan, Queens, Brooklyn and Staten Island as well as thematic tours and contemporary and archival photographs, a people’s New York emerges, one in which collective struggles for justice and freedom have shaped the very landscape of the city.
| Author | : David J. Rothman |
| Publisher | : Routledge |
| Total Pages | : 417 |
| Release | : 2017-07-12 |
| Genre | : Medical |
| ISBN | : 1351472569 |
The Willowbrook Wars is a dramatic and illuminating account of the effort to close down a scandal-ridden institution and return its 5,400 handicapped residents to communities in New York. The wars began in 1972 with Geraldo Rivera's televised raid on the Willowbrook State School. They continued for three years in a federal courtroom, with civil libertarian lawyers persuading a conservative and conscience-stricken judge to expand the rights of the disabled, and they culminated in a 1975 consent decree, with the state of New York pledging to accomplish the unprecedented assignment in six years. From 1975 to 1982, David and Sheila Rothman observed this remarkable chapter in American reform of mental disabilities care. Would the state live up to its agreement without "dumping" residents into other nightmarish institutions? Would the lawyers prove as interested in meeting client needs as in securing client rights? Could a tradition-bound bureaucracy create a new network of community services? And finally, would a governor and a legislature tolerate such outside intervention, and if so, for how long? In answering these questions, The Willowbrook Wars takes us behind the scenes to clarify the role of the judiciary, the fate of the underprivileged, and the potential for social justice. In their new afterword, the authors bring the story up to date, describing the results of the closing of the institution in 1987 from the experiences of integrating the former residents into communities to the legal battles between the state of New York and advocates for the mentally handicapped.
