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The Private Worlds of Dying Children

The Private Worlds of Dying Children
Author: Myra Bluebond-Langner
Publisher: Princeton University Press
Total Pages: 298
Release: 2020-05-05
Genre: Social Science
ISBN: 0691213089

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Winner of the Margaret Mead Award A classic, moving study of terminally ill children that emphasizes their agency and shows how we can relate to dying children more honestly “The death of a child,” writes Myra Bluebond-Langner, “poignantly underlines the impact of social and cultural factors on the way that we die and the way that we permit others to die.” In a moving drama constructed from her observations of leukemic children, aged three to nine, in a hospital ward, she shows how the children come to know they are dying, how and why they attempt to conceal this knowledge from their parents and the medical staff, and how these adults in turn try to conceal from the children their awareness of the child’s impending death. In contrast to many parents, doctors, nurses, and social scientists who regard the children as passive recipients of adult actions, Bluebond-Langner emphasizes the children’s role in initiating and maintaining the social order. Her sensitive and stirring portrait shows the children to be willful, purposeful individuals capable of creating their own worlds. The result suggests better ways of relating to dying children and enriches our understanding of the ritual behavior surrounding death.


In the Shadow of Illness

In the Shadow of Illness
Author: Myra Bluebond-Langner
Publisher: Princeton University Press
Total Pages: 321
Release: 2020-06-30
Genre: Medical
ISBN: 0691214700

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A revealing account of how families adapt to living with a chronically ill child What is it like to live with a child who has a chronic, life-threatening disease? What impact does the illness have on well siblings in the family? Myra Bluebond-Langner suggests that understanding the impact of the illness lies not in identifying deficiencies in the lives of those affected, but in appreciating how family members carry on with their lives in the face of the disease's intrusion. The Private Worlds of Dying Children, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, she turns her attention to the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis. Through a series of narrative portraits, she draws us into the daily lives of nine families of children at different points in the natural history of the illness—from diagnosis through the terminal phase. In these portraits, as family members talk about their experiences in their own words, we see how parents, well siblings, and the ill children themselves struggle, in different ways, to contain the intrusion of the disease into their lives. Bluebond-Langner looks at how parents adjust their priorities and their idea of what constitutes a normal life, how they try to balance the needs of other family members while caring for the ill child, and how they see the future. This context helps us understand how well siblings view the illness and how they relate to their ill sibling and parents. Since the issues raised are not unique to cystic fibrosis but are common to other chronic and life-threatening illnesses, this book will be of interest to all who study, care for, or live with the seriously ill.


Children Mourning, Mourning Children

Children Mourning, Mourning Children
Author: Kenneth J. Doka
Publisher: Taylor & Francis
Total Pages: 207
Release: 2014-01-21
Genre: Psychology
ISBN: 1317756797

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Based on the Hospice Foundation of America's second annual teleconference, this book explores three basic themes in children's grief. Firstly, it maintains that children are always developing; therefore their understanding of death and their reactions to illness and loss are also multifaceted and constantly undergoing change. Secondly, children grieve in ways that are both different from and similar to adults. While they may need different therapeutic approaches from their elders, each loss is different and the grief experience will be affected by many of the same factors that affect adults. Thirdly, it holds that they need significant support as they grieve.; Talking to children about loss and and illness is too important to wait until a crisis; rather, it is essential to provide opportunities to discuss loss in times that are not so Emotionally Laden. This Book Aims To Demonstrate That Open Communication between parents and children will lead to skills and understanding that are essential to the child for coping with loss and reaffirming that death is part of the process of living.


Drawings from a Dying Child (RLE: Jung)

Drawings from a Dying Child (RLE: Jung)
Author: Judith Bertoia
Publisher: Routledge
Total Pages: 161
Release: 2014-07-11
Genre: Psychology
ISBN: 1317649982

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Does a dying child understand death? How can we help children who are dying? Originally published in 1993, this book concerns a young girl, Rachel, terminally ill with leukaemia. The book describes a series of drawings she made and shows how they reveal her inner experience, how she became fully aware that she was dying and even came to accept death. The result is a moving and informative story that will be invaluable to caregivers and families with a dying child. It provides new understanding of the experience of a dying child and suggests practical strategies for coping.


Death, Dying and Palliative Care in Children and Young People

Death, Dying and Palliative Care in Children and Young People
Author: Alison M. Rodriguez
Publisher: Taylor & Francis
Total Pages: 215
Release: 2023-04-07
Genre: Health & Fitness
ISBN: 1000865657

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Death, Dying and Palliative Care in Children and Young People: Perspectives from Health Psychology examines the issues relevant to children and young people living with serious illness and their families by taking a closer look at the literature and knowledge around the processes of care, health, well-being and development through a health psychology lens. The text introduces readers to the general palliative and holistic care needs of children and young people along with the nuances of caring relationships. The chapters discuss the vulnerabilities encountered in living with serious illness and facing a shortened life prognosis, being at the end of life, and issues relative to the historical concept of the ‘good death’ or ‘dying well’, grief, and bereavement. The author examines how individual and familial experiences can be multi-layered, which can consequently influence perceptions and behaviours. The text therefore offers a deep exploration of the varied ways in which people draw on different resources to navigate their palliative care lived experiences. The book will be beneficial to the students of, and individuals interested in, psychology and nursing along with other health and social care courses. It will further be of interest to individuals interested in gaining more understanding of the experiential aspects of death, dying and palliative care in children and young people from health psychology perspectives.


Living Well and Dying Faithfully

Living Well and Dying Faithfully
Author: John Swinton
Publisher: Wm. B. Eerdmans Publishing
Total Pages: 313
Release: 2009-11-10
Genre: Religion
ISBN: 1467441341

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Living Well and Dying Faithfully explores how Christian practices — love, prayer, lament, compassion, and so on — can contribute to the process of dying well. Working on the premise that one dies the way one lives, the book is unique in its constructive dialogue between theology and medicine as offering two complementary modes of care.


Speaking Honestly with Sick and Dying Children and Adolescents

Speaking Honestly with Sick and Dying Children and Adolescents
Author: Dietrich Niethammer
Publisher: JHU Press
Total Pages: 236
Release: 2012-06
Genre: Medical
ISBN: 1421404567

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Niethammer, a prominent paediatric oncologist, explains why it is so important to speak frankly and respectfully to young patients about their disease. The question at the heart of this book is how children and adolescents feel and think about death and dying.


The Human Rights of Children

The Human Rights of Children
Author: Michael Freeman
Publisher: BRILL
Total Pages: 306
Release: 2022-03-16
Genre: Law
ISBN: 9004219102

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For decades, Professor Michael Freeman has without doubt been one of the world's most infuential scholars in international children's rights. His scholarship has been at the forefront of the field and has helped shape many of the developments within it. This collection offers the reader a thought-provoking snapshot of some of his most seminal essays, written and/or published over the past 30 years. Together they highlight above all the interdisciplinary nature of the issues he discusses. Legal doctrinal questions that make the case for recognising that children have rights are of course discussed. But aspects of moral and political philosophy are dealt with as well, in addition to, among other other disciplines, history, theology, psychology and antropology.


Last Child in the Woods

Last Child in the Woods
Author: Richard Louv
Publisher: Algonquin Books
Total Pages: 414
Release: 2008-04-22
Genre: Family & Relationships
ISBN: 156512586X

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The Book That Launched an International Movement Fans of The Anxious Generation will adore Last Child in the Woods, Richard Louv's groundbreaking New York Times bestseller. “An absolute must-read for parents.” —The Boston Globe “It rivals Rachel Carson’s Silent Spring.” —The Cincinnati Enquirer “I like to play indoors better ’cause that’s where all the electrical outlets are,” reports a fourth grader. But it’s not only computers, television, and video games that are keeping kids inside. It’s also their parents’ fears of traffic, strangers, Lyme disease, and West Nile virus; their schools’ emphasis on more and more homework; their structured schedules; and their lack of access to natural areas. Local governments, neighborhood associations, and even organizations devoted to the outdoors are placing legal and regulatory constraints on many wild spaces, sometimes making natural play a crime. As children’s connections to nature diminish and the social, psychological, and spiritual implications become apparent, new research shows that nature can offer powerful therapy for such maladies as depression, obesity, and attention deficit disorder. Environment-based education dramatically improves standardized test scores and grade-point averages and develops skills in problem solving, critical thinking, and decision making. Anecdotal evidence strongly suggests that childhood experiences in nature stimulate creativity. In Last Child in the Woods, Louv talks with parents, children, teachers, scientists, religious leaders, child-development researchers, and environmentalists who recognize the threat and offer solutions. Louv shows us an alternative future, one in which parents help their kids experience the natural world more deeply—and find the joy of family connectedness in the process. Included in this edition: A Field Guide with 100 Practical Actions We Can Take Discussion Points for Book Groups, Classrooms, and Communities Additional Notes by the Author New and Updated Research from the U.S. and Abroad


Among the Hidden

Among the Hidden
Author: Margaret Peterson Haddix
Publisher: Simon and Schuster
Total Pages: 169
Release: 2002-06-12
Genre: Juvenile Fiction
ISBN: 0689848072

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In a future where the Population Police enforce the law limiting a family to only two children, Luke, an illegal third child, has lived all his twelve years in isolation and fear on his family's farm in this start to the Shadow Children series from Margaret Peterson Haddix. Luke has never been to school. He's never had a birthday party, or gone to a friend's house for an overnight. In fact, Luke has never had a friend. Luke is one of the shadow children, a third child forbidden by the Population Police. He's lived his entire life in hiding, and now, with a new housing development replacing the woods next to his family's farm, he is no longer even allowed to go outside. Then, one day Luke sees a girl's face in the window of a house where he knows two other children already live. Finally, he's met a shadow child like himself. Jen is willing to risk everything to come out of the shadows—does Luke dare to become involved in her dangerous plan? Can he afford not to?