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The Activist Cancer Patient

The Activist Cancer Patient
Author: Beverly Zakarian
Publisher: Turner Publishing Company
Total Pages: 198
Release: 1996-04-01
Genre: Health & Fitness
ISBN: 1620455803

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Improve Your Odds of Surviving Cancer Cancer survivor Beverly Zakarian knows firsthand that you can improve your odds of surviving cancer if you take an active role in your treatment. Now, you too can discover the benefits of taking charge. After all, you and your disease are unique, and so is your path to good health. Even the most caring of doctors needs your help to determine which treatment is best for you. With this inspiring, practical book, Beverly Zakarian gives you step-by-step guidelines that will empower you to work with your doctor and within the medical system to find the most effective treatment options. Armed with the resources in this book, you'll be able to use activist techniques to: * Talk intelligently with your physician and make informed decisions * Research state-of-the-art treatments * Understand how drug trials actually work * Discover what "experimental treatment" really means * Search out relevant medical journals and access reliable databases * Enlist the help of medical specialists and support groups


So Much to Be Done

So Much to Be Done
Author: Barbara Brenner
Publisher: U of Minnesota Press
Total Pages: 294
Release: 2016-05-03
Genre: Social Science
ISBN: 1452950342

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“What kind of cancer is it?” was the first question Barbara Brenner asked her doctor after hearing that the lump in her breast was malignant. His answer: “You don't need to know that.” Wrong response. Brenner, who was already an activist, made knowing her business and spreading knowledge her mission. The power behind Breast Cancer Action and its transformative Think Before You Pink® campaign, Barbara Brenner brought an abundance of wit, courage, and clarity to the cause and forever changed the conversation. What had been construed as an individual crisis could now be seen for what it was: a pressing concern of public health and social justice, with environmental issues at the center of prevention efforts. Collected in So Much to Be Done, and framed by personal accounts of Barbara and her influential work, Brenner’s columns and blog posts form a chronicle of breast cancer research and health care activism that is as inspiring as it is informative. As she takes on the corporate forces at work in breast cancer research and treatment and in the “pinkwashing” of fund-raising for the cause, Brenner, a self-described hell-raiser, contends with cancer herself, twice, and her words offer understanding and encouragement to all those whose lives are touched by the disease. When Brenner was diagnosed with ALS in 2011, she broadened her critique of health care while also writing about her own experience. Infused with her characteristic moxie, humor, anger, and compassion, these reflections from her last two years provide an in-depth, precisely observed portrayal of what it is to live with a terminal disease and to die on one’s own terms.


The Biopolitics of Breast Cancer

The Biopolitics of Breast Cancer
Author: Maren Klawiter
Publisher: U of Minnesota Press
Total Pages: 433
Release: 2008
Genre: Social Science
ISBN: 0816651078

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For nearly forty years, feminists and patient activists have argued that medicine is a deeply individualizing and depoliticizing institution. According to this view, medical practices are incidental to people’s transformation from patients to patient activists. The Biopolitics of Breast Cancer turns this understanding upside down. Maren Klawiter analyzes the evolution of the breast cancer movement to show the broad social impact of how diseases come to be medically managed and publicly administered. Examining surgical procedures, adjuvant therapies, early detection campaigns, and the rise in discourses of risk, Klawiter demonstrates that these practices created a change in the social relations-if not the mortality rate-of breast cancer that initially inhibited, but later enabled, collective action. Her research focuses on the emergence and development of new forms of activism that range from grassroots patient empowerment to environmental activism and corporate-funded breast cancer awareness. The Biopolitics of Breast Cancer opens a window onto a larger set of changes currently transforming medically advanced societies and ultimately challenges our understanding of the origins, politics, and future of the breast cancer movement. Maren Klawiter holds a PhD in sociology from the University of California, Berkeley. She is currently pursuing a law degree at Yale University.


The Living Room

The Living Room
Author: Bonnie J. Addario
Publisher: Post Hill Press
Total Pages: 287
Release: 2021-05-04
Genre: Health & Fitness
ISBN: 1642937371

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Lung Cancer. The mere words strike fear in all of us—fear of the diagnosis, the treatment, and the ultimate prognosis. Where is the hope? It can be found in The Living Room by Bonnie Addario, a seventeen-year survivor of stage 3B lung cancer who established the Bonnie J. Addario Lung Cancer Foundation in 2006 along with the Addario Lung Cancer Medical Institute in 2008, and is now co-founder and chair of the GO2 Foundation for Lung Cancer (2019). A determined activist on behalf of patients suffering from the disease, Bonnie has built an extraordinary global network of fellow activists, patients, doctors, oncologists, researchers, and caregivers—a thriving and ever-growing community devoted and committed to advocating on behalf of those patients and families affected by the disease. Among all cancers, none are more pernicious than lung cancer. Nearly 150,000 Americans are lost to the disease every year, amounting to around 400 every single day. It accounts for one-third of all cancer diagnoses, the most deaths of any cancer and as many losses as the next three most deadly cancers (breast, prostate, and colon) combined. The Living Room, which draws its name from a virtual support group live-streamed internationally once a month by Bonnie’s foundation, tells the stories of twenty lung cancer patients who have bravely fought the disease and found ways to thrive, not just to survive. The goal of Bonnie’s efforts is to break down the barriers and stigmas associated with lung cancer and demonstrate how the new wave of treatment options are moving to make it a manageable disease. The people you will meet in The Living Room will lead you to believe that miracles are all around us, that they’re happening every day, and that they just might happen to the next cancer patient who picks up this book. All proceeds from The Living Room will go directly to research and patient services.


Cancer Talk

Cancer Talk
Author: Selma R. Schimmel
Publisher: Crown
Total Pages: 392
Release: 2010-04-21
Genre: Health & Fitness
ISBN: 0307755002

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For the first time, Cancer Talk provides a support group in a book. Research shows that cancer patients who attend support groups can survive longer and lead fuller lives than patients receiving medical treatment alone. Cancer Talk, based on "The Group Room®," the nation's only talk-radio cancer support show, brings hope, information, and inspiration to everyone affected by cancer. Show host Selma Schimmel, a cancer advocate and longtime survivor, has gathered the voices of cancer patients and survivors, family and friends, physicians, therapists, and other healthcare professionals to create an invaluable guide to help you: Deal with the wide range of emotions a cancer diagnosis provokes Cope with relationships, intimacy, and physical changes Optimize the doctor-patient relationship and navigate treatment options Handle the side effects of treatment Understand legal, workplace, and insurance issues Live with and beyond cancer Anyone whose life has been touched by cancer will find new support from the intimate and empowering voices of the only real experts out there--the people who live with cancer.


Cancer Activism

Cancer Activism
Author: Karen M. Kedrowski
Publisher: University of Illinois Press
Total Pages: 318
Release: 2007
Genre: Business & Economics
ISBN: 0252031989

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The first comprehensive study of the breast cancer and the prostate cancer movements


Health Advocacy, Inc.

Health Advocacy, Inc.
Author: Sharon Batt
Publisher: UBC Press
Total Pages: 397
Release: 2017-06-15
Genre: Social Science
ISBN: 0774833874

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Over the past several decades, a gradual reduction in state funding has pressured patient groups into forming private-sector partnerships, raising an important ethical question: do these alliances ultimately lead to policies that are counter to the public interest? Health activist, scholar, and cancer survivor Sharon Batt examines the issue by investigating Canada’s breast cancer movement from 1990 to 2010. Health Advocacy, Inc. dissects the relationship between the companies that sell pharmaceuticals and the individuals who use them, drawing links between neoliberalism and corporate financing and the ensuing threat to the public health care system. Combining archival analysis, interviews with advocacy and industry representatives, and personal observation, Batt argues that the resulting power imbalance continues to challenge the groups’ ability to put patients’ interests ahead of those of the funders. A movement that once encouraged democratic participation in the development of health policy now eerily echoes the demands of the pharmaceutical industry. Batt’s thorough account of this shift defines the stakes of activism in public health today.


Before Pink Ribbons

Before Pink Ribbons
Author: Chloe Bell-Wilson
Publisher:
Total Pages: 121
Release: 2019
Genre: Breast
ISBN: 9781392848661

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Abstract: Over the course of the twentieth century, breast cancer shifted from being a taboo subject to one openly discussed. Though historians have long recognized the importance of breast cancer as a lens through which to examine the intersection of gender, disease, and society, little attention has been paid to the activist movement that brought the disease into the spotlight of both culture and politics by the end of the century. From the inception of the American Society for the Control of Cancer (the predecessor to the American Cancer Society) in 1913 to the first Race for the Cure hosted by the Susan G. Komen Breast Cancer Foundation in 1983, women contributed their time and labor to overcoming the stigma surrounding the disease and worked to end its grip on women. In examining the long story of breast cancer activism, this thesis illuminates the changes and continuities in the movement. Using a combination of media sources and private correspondence, this work argues that women used breast cancer activism as an avenue through which to gain agency in a patriarchal medical world that typically denied them autonomy over their bodies and treatment. Finally, taking into account social status, privilege, and the context in which people lived, this thesis complicates the notion of linear progress in the work against the disease as conflict and power struggles came to the forefront of cancer discourse.


Taking Charge of Breast Cancer

Taking Charge of Breast Cancer
Author: Julia Ericksen
Publisher: Univ of California Press
Total Pages: 334
Release: 2008-04-07
Genre: Social Science
ISBN: 0520941187

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Vividly showcasing diverse voices and experiences, this book illuminates an all-too-common experience by exploring how women respond to a diagnosis of breast cancer. Drawing from interviews in which women describe their journeys from diagnosis through treatment and recovery, Julia A. Ericksen explores topics ranging from women's trust in their doctors to their feelings about appearance and sexuality. She includes the experiences of women who do not put their faith in traditional medicine as well as those who do, and she takes a look at the long-term consequences of this disease. What emerges from her powerful and often moving account is a compelling picture of how cultural messages about breast cancer shape women's ideas about their illness, how breast cancer affects their relationships with friends and family, why some of them become activists, and more. Ericksen, herself a breast cancer survivor, has written an accessible book that reveals much about the ways in which we narrate our illnesses and about how these narratives shape the paths we travel once diagnosed.


Her-2

Her-2
Author: Robert Bazell
Publisher: Random House
Total Pages: 241
Release: 2011-04-27
Genre: Health & Fitness
ISBN: 0307764982

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Two years after she underwent a mastectomy and chemotherapy, Barbara Bradfield's aggressive breast cancer had recurred and spread to her lungs. The outlook was grim. Then she took part in Genentech's clinical trials for a new drug. Five years later she remains cancer-free. Her-2 is the biography of Herceptin, the drug that provoked dramatic responses in Barbara Bradfield and other women in the trials and that offers promise for hundreds of thousands of breast cancer patients. Unlike chemotherapy or radiation, Herceptin has no disabling side effects. It works by inactivating Her-2/neu--a protein that makes cancer cells grow especially quickly-- produced by a gene found in 25 to 30 percent of all breast tumors. Herceptin caused some patients' cancers to disappear completely; in others, it slowed the progression of the disease and gave the women months or years they wouldn't otherwise have had. Herceptin is the first treatment targeted at a gene defect that gives rise to cancer. It marks the beginning of a new era of treatment for all kinds of cancers. Robert Bazell presents a riveting account of how Herceptin was born. Her-2 is a story of dramatic discoveries and strong personalities, showing the combination of scientific investigation, money, politics, ego, corporate decisions, patient activism, and luck involved in moving this groundbreaking drug from the lab to a patient's bedside. Bazell's deft portraits introduce us to the remarkable people instrumental in Herceptin's history, including Dr. Dennis Slamon, the driven UCLA oncologist who played the primary role in developing the treatment; Lily Tartikoff, wife of television executive Brandon Tartikoff, who tapped into Hollywood money and glamour to help fund Slamon's research; and Marti Nelson, who inspired the activists who lobbied for a "compassionate use" program that would allow women outside the clinical trials to have access to the limited supplies of Herceptin prior to FDA approval of the drug. And throughout there are the stories of the heroic women with advanced breast cancer who volunteered for the trials, risking what time they had left on an unproven treatment. Meticulously researched, written with clarity and compassion, Her-2 is masterly reporting on cutting-edge science.