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Reconsidering Neighbourhoods and Living with Dementia: Spaces, Places, and People

Reconsidering Neighbourhoods and Living with Dementia: Spaces, Places, and People
Author: John Keady
Publisher: McGraw-Hill Education (UK)
Total Pages: 326
Release: 2023-10-19
Genre: Medical
ISBN: 0335251730

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“This book holds the story of a monumental research effort… It provides a moving, thoughtful, understanding of what “neighbourhood” means and is a beacon for efforts aimed at improving the quality of life of all involved.” Steven R. Sabat, Professor Emeritus of Psychology, Georgetown University, Washington D.C., USA “It is indicative reading for educators, researchers, clinicians and policy makers nationally and internationally. By grounding the underpinning research in the lived experience of people with dementia, the book’s appeal extends to voluntary and community groups. Reading it is a must!” Assumpta Ryan, Professor of Ageing and Health, Ulster University, UK “A remarkable contribution to the ‘Reconsidering Dementia’ series.” Bob Woods, Emeritus Professor, Bangor University, UK This book provides research based insights into the lived experience of dementia, aging in place and the use of participatory and creative social research approaches in the field of dementia studies. For the first time the key findings of one of the UKs largest funded social science research projects, the Neighbourhoods study, are assembled into one accessibly written blueprint for dementia care aiding better understanding of the place and position of those living with dementia in the home and neighbourhood context. Reconsidering Neighbourhoods and Living with Dementia highlights the importance of home for people living with dementia and that neighbourhoods are seen to be relational, virtual, technological, connected, lived, remembered, and imagined, and to exist within and across time. The book is organised under five key parts: •The Lived Neighbourhood •Neighbourhoods, Measurement and Technology •Neighbourhoods and Big Data •Personal Well-Being and Neighbourhood Programme Support •Bringing it Together and Future Directions This comprehensive book is appropriate to a wide range of readers and disciplines including those living with dementia, the related health and voluntary professions, family carers, practitioners, academics, and students undertaking a variety of courses aligned to gerontology, dementia studies and human geography. The Reconsidering Dementia Series is an interdisciplinary series published by Open University Press that covers contemporary issues to challenge and engage readers in thinking deeply about the topic. The dementia field has developed rapidly in its scope and practice over the past ten years and books in this series will unpack not only what this means for the student, academic and practitioner, but also for all those affected by dementia. Series Editors: Dr Keith Oliver and Professor Dawn Brooker MBE. John Keady is a mental health nurse who has been involved in dementia care for over 30 years. Since 2006, he has held a joint appointment between the University of Manchester and the Greater Manchester Mental Health NHS Foundation Trust. He was the Chief Investigator of the Neighbourhoods study.


Neighbourhoods and The Lived Experience of Dementia: Spaces, Places, and People

Neighbourhoods and The Lived Experience of Dementia: Spaces, Places, and People
Author: John Keady
Publisher:
Total Pages: 0
Release: 2023-10-12
Genre:
ISBN: 9780335251728

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"This book holds the story of a monumental research effort... It provides a moving, thoughtful, understanding of what "neighbourhood" means and is a beacon for efforts aimed at improving the quality of life of all involved." Steven R. Sabat, Professor Emeritus of Psychology, Georgetown University, Washington D.C., USA "It is indicative reading for educators, researchers, clinicians and policy makers nationally and internationally. By grounding the underpinning research in the lived experience of people with dementia, the book's appeal extends to voluntary and community groups. Reading it is a must!" Assumpta Ryan, Professor of Ageing and Health, Ulster University, UK "A remarkable contribution to the 'Reconsidering Dementia' series." Bob Woods, Emeritus Professor, Bangor University, UK This book provides research based insights into the lived experience of dementia, aging in place and the use of participatory and creative social research approaches in the field of dementia studies. For the first time the key findings of one of the UKs largest funded social science research projects, the Neighbourhoods study, are assembled into one accessibly written blueprint for dementia care aiding better understanding of the place and position of those living with dementia in the home and neighbourhood context. Reconsidering Neighbourhoods and Living with Dementia highlights the importance of home for people living with dementia and that neighbourhoods are seen to be relational, virtual, technological, connected, lived, remembered, and imagined, and to exist within and across time. The book is organised under five key parts: -The Lived Neighbourhood -Neighbourhoods, Measurement and Technology -Neighbourhoods and Big Data -Personal Well-Being and Neighbourhood Programme Support -Bringing it Together and Future Directions This comprehensive book is appropriate to a wide range of readers and disciplines including those living with dementia, the related health and voluntary professions, family carers, practitioners, academics, and students undertaking a variety of courses aligned to gerontology, dementia studies and human geography. The Reconsidering Dementia Series is an interdisciplinary series published by Open University Press that covers contemporary issues to challenge and engage readers in thinking deeply about the topic. The dementia field has developed rapidly in its scope and practice over the past ten years and books in this series will unpack not only what this means for the student, academic and practitioner, but also for all those affected by dementia. Series Editors: Dr Keith Oliver and Professor Dawn Brooker MBE. John Keady is a mental health nurse who has been involved in dementia care for over 30 years. Since 2006, he has held a joint appointment between the University of Manchester and the Greater Manchester Mental Health NHS Foundation Trust. He was the Chief Investigator of the Neighbourhoods study.


Talking with Dementia Reconsidered

Talking with Dementia Reconsidered
Author: Keith Oliver
Publisher: McGraw-Hill Education (UK)
Total Pages: 268
Release: 2024-05-01
Genre: Health & Fitness
ISBN: 0335251293

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“The voice of lived experience is ever growing and without doubt we should never miss an opportunity like this to listen, capture and learn from it.” Paola Barbarino, CEO, Alzheimer’s Disease International “This latest book will help so many people - those with dementia and their loved ones.” Victoria Derbyshire, British Journalist, Newsreader and Broadcaster “Talking with Dementia Reconsidered is a landmark, which will inspire professionals, researchers and the upcoming cohort of people whose lives are affected by dementia.” Tom Dening, Professor of Dementia Research, School of Medicine, University of Nottingham, UK “I would strongly advise all health and social care professionals to read this and rethink what they “know” about dementia.” Dr Hilda Hayo Chief Admiral Nurse and CEO, Dementia UK This book places people living with a diagnosis of dementia at its core, providing each person with the opportunity to express themselves whilst viewing their lives in relation to the Kitwood flower model. Authored by a person living with dementia, an experienced consultant clinical psychologist and a respected academic, the three combine to amplify and showcase the words of the Fifteen people living with dementia, in an original, authentic and unique way. This book: Gives readers transparent insight into the lives, hopes and fears of a diverse range of people living with various forms of dementia Shows how each petal of the Kitwood flower with love at its centre is a helpful framework for each person to describe their life Links the interviews with issues, frameworks, policy and practice Examines what stakeholders can take from this book to advance dementia care. Talking with Dementia Reconsidered truthfully adds to the growing knowledge base of what life with dementia is really like in an engaging and informative way. It is essential reading for anyone and everyone directly or indirectly affected by dementia through lived experience, studying dementia or working professionally to support those affected. The Reconsidering Dementia Series is an interdisciplinary series published by Open University Press that covers contemporary issues to challenge and engage readers in thinking deeply about the topic. The dementia field has developed rapidly in its scope and practice over the past ten years and books in this series will unpack not only what this means for the student, academic and practitioner, but also for all those affected by dementia. Series Editors: Dr Keith Oliver and Professor Dawn Brooker MBE. Dr Keith Oliver is an Alzheimer's Society Ambassador and Dementia Service User Envoy for Kent and Medway Partnership NHS Trust in the UK. He retired from being a head teacher when diagnosed with Alzheimer’s at age 55. Keith is Series editor for the Reconsidering Dementia Series. Reinhard Guss is Associate Fellow of the British Psychological Society and former Dementia Work Stream Lead for the Faculty of the Psychology of Older People (FPOP). Reinhard is a Consultant Clinical Psychologist and Neuropsychologist working within the National Health Service. Dr Ruth Bartlett is Associate Professor at the University of Southampton, UK, co-director of the University’s Doctoral Training Centre in Dementia Care and Principal Investigator of an interdisciplinary, cross-faculty research project funded by the Alzheimer’s Society.


Dementia and Ethics Reconsidered

Dementia and Ethics Reconsidered
Author: Julian Hughes
Publisher: McGraw-Hill Education (UK)
Total Pages: 312
Release: 2023-05-30
Genre: Medical
ISBN: 0335251013

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“In this masterful book, Julian Hughes makes a convincing case that many acts in clinical and care practice are ethical matters. Hughes takes us gently through a jungle of philosophical ideas and explores a series of ethical issues in dementia care, such as diagnosis, covert medication and end of life care. His humanity shines through as he favours a values-based approach to care, and concludes by declaring (in the spirit of Tom Kitwood) that the person must be placed first in order to do what is right and good for people living with dementia. A must-have volume for practitioners, social scientists and enlightened general readers.” Tom Dening, Professor of Dementia Research, School of Medicine, University of Nottingham, UK “This book is totally brilliant. The outstanding author Dr. Julian Hughes must now be considered the foremost ethicist of his generation when it comes to caring for individuals with dementia … This is now the book that everyone who cares about dementia and ethics must read, discuss, and implement. It is a huge contribution.” Stephen G. Post PhD, Director, Center for Medical Humanities, Compassionate Care & Bioethics Stony Brook University School of Medicine, USA “This book should be an essential read for all of us who support and navigate the ethical issues relating to people with dementia and their families.” Paul Edwards, Director of Clinical Services, Dementia UK Ethical issues are involved in every decision that is made in connection with someone living with dementia – from decisions about care and treatment to decisions about research and funding. This book encourages the reader to reconsider ethics in dementia care with the use of ‘patterns of practice’, an innovative idea developed by the author. The book highlights the importance of understanding the person’s narrative, of good communication, high quality care, and expert interpretation of the meaning of situations for people living with dementia. This book: • Reviews ethical theories and approaches in connection with dementia care • Considers issues such as such as stigma, quality of life, personhood, and citizenship in relation to dementia • Looks at issues relevant to research ethics • Presents case vignettes to highlight a complete spectrum of ethical issues that arise in dementia care • Is accessibly written for multiple audiences – from people living with dementia to practitioners Dementia and Ethics Reconsidered is a comprehensive account of thought and practice in relation to ethical issues that arise in the context of dementia care, which seeks to show how ethical thinking can be put into practice and prove relevant to day-to-day experience. The Reconsidering Dementia Series is an interdisciplinary series published by Open University Press that covers contemporary issues to challenge and engage readers in thinking deeply about the topic. The dementia fi eld has developed rapidly in its scope and practice over the past ten years and books in this series will unpack not only what this means for the student, academic and practitioner, but also for all those affected by dementia. Series Editors: Dr Keith Oliver and Professor Dawn Brooker MBE. Julian C. Hughes was a consultant in old age psychiatry. Having trained in both philosophy and medicine, he was appointed honorary professor of philosophy of ageing at Newcastle University, UK and subsequently professor of old age psychiatry at the University of Bristol, UK. He was deputy chair of the Nuffield Council on Bioethics, UK.


Ebook: Leisure and Everyday Life with Dementia

Ebook: Leisure and Everyday Life with Dementia
Author: Christopher Russell
Publisher: McGraw-Hill Education (UK)
Total Pages: 225
Release: 2023-10-11
Genre: Medical
ISBN: 0335251315

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“This exciting and unique book provides a significant collection of the research base and theory surrounding leisure and dementia.” Dr Mary O’Malley, BSc, PhD, CPsychol, Senior Research Fellow, Association for Dementia Studies, University of Worcester, UK “This is the most important edited collection to emerge from leisure studies in the last thirty years.” Professor Karl Spracklen, School of Humanities and Social Sciences, Leeds Beckett University, UK “This book is a novel collection of works that not only broadens and enriches our understandings of the importance of leisure for people living with dementia, but in demonstrating the possibilities for living well with dementia through engagement with leisure, it helps to build the foundation for developing an ethical standard to support such engagement to the fullest extent possible.” Pia Kontos, Senior Scientist and Professor, KITE Research Institute, Toronto Rehabilitation Institute – University Health Network, and Dalla Lana School of Public Health, University of Toronto, Canada This book examines leisure in the everyday lives of people living with dementia and challenges readers to consider the role of leisure activities beyond their potential for therapeutic benefit. Leisure and Everyday Life with Dementia emphasises how leisure offers people living with dementia opportunity to realise their citizenship through participating in leisure in everyday life. It explores the role of society in enabling this through giving equal chances to make choices about how, when and where people participate. This book: • Examines diverse kinds of leisure, including sports, music, travel, nature, and the online world • Contains accessible summaries and ‘So what does this mean in practice?’ sections at the end of each chapter • Has been co-edited and written with a guiding vision provided by a person living with dementia • Contains contributions from authors across the world and across multiple disciplines. Leisure and Everyday Life with Dementia is essential reading for anyone whose study or work in nursing or social care, occupational therapy, social work, arts therapies, arts, health and wellbeing, sports and exercise, or gerontology includes an interest in dementia. The Reconsidering Dementia Series is an interdisciplinary series published by Open University Press that covers contemporary issues to challenge and engage readers in thinking deeply about the topic. The dementia field has developed rapidly in its scope and practice over the past ten years and books in this series will unpack not only what this means for the student, academic and practitioner, but also for all those affected by dementia. Series Editors: Dr Keith Oliver and Professor Dawn Brooker MBE. Dr Karen Gray is a researcher at the University of Bristol, UK. She has wide-ranging experience in researching and evaluating engagement in arts and creative activity for health and wellbeing. Dr Chris Russell is Senior Lecturer with the Association for Dementia Studies at the University of Worcester, UK, where he is Programme Lead for the Post Graduate Certificate in Dementia Studies. Jane Twigg has a background as a physiotherapist. This was before caring for her mom, who had dementia, including supporting Mom to continue to live in the world. Jane is now living with atypical dementia. She has a passion for life. Long distance walking brings her most joy, giving her a sense of achievement and wellbeing.


Dementia and Place

Dementia and Place
Author: Richard Ward
Publisher: Policy Press
Total Pages: 240
Release: 2021-09-24
Genre: Health & Fitness
ISBN: 1447349016

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Giving voice to the lived experiences of people with dementia across the globe, including Australia, Canada, Sweden and the UK, this critical and evidence-based collection engages with the realities of life for people living with dementia at home and within their neighbourhoods. This insightful text addresses the fundamental social aspects of environment, including place attachment, belonging and connectivity. The chapters reveal the potential and expose the challenges for practitioners and researchers as dementia care shifts to a neighbourhood setting. The unique ‘neighbourhood-centred’ perspective provides an innovative guide for policy and practice and calls for a new place-based culture of care and support in the neighbourhood.


Designing Environments for People with Dementia

Designing Environments for People with Dementia
Author: Alison Bowes
Publisher: Emerald Group Publishing
Total Pages: 136
Release: 2019-02-08
Genre: Social Science
ISBN: 1787699714

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The ebook edition of this title is Open Access and is freely available to read online. This book systematically explores and assesses the quality of the evidence base for effective and supportive design of living environments for people living with Dementia.


Planning Dementia-Inclusive Suburban Neighbourhoods

Planning Dementia-Inclusive Suburban Neighbourhoods
Author: Samantha Biglieri
Publisher:
Total Pages:
Release: 2019
Genre:
ISBN:

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Globally, the population is ageing at a rapid rate, and with that comes the prevalence of dementia. Dementia is an umbrella term to describe a progressive set of symptoms impacting cognition that will affect 115.4 million people worldwide in 2050. In Canada, an estimated two-thirds of the 402,000 people living with dementia (PLWD) live in community, as opposed to congregate living settings (Alzheimer's Society of Canada, 2010). PLWD are likely to experience a 'shrinking world' effect (Duggan, Blackman, Martyr, & Van Schaik, 2008; Shoval et al., 2011), making it essential to investigate supportive features in public space near their homes. These features can enable the positive outcomes associated with continued access to one's neighbourhood, such as maintaining daily activities, improved physical and mental health, independence, and a sense of dignity (Burton & Mitchell, 2006; O'Connor et al., 2007). Most older Canadians have expressed the desire to age-in-place, and PLWD deserve to access this option and their neighbourhood, just like any other citizen (Fainstein, 2010; Swaffer, 2014). However, there is a paucity of research on the impact of the built environment on PLWD, with the majority of studies being based in Europe, and no research on North American suburban neighbourhoods. Existing studies are critiqued for a lack of attention to the relational experiences of place, and lack of focus on planning processes. Despite this lack of evidence, policies continue to be put forward, such as 'age-friendly cities' and the newer 'dementia-friendly cities'. In response, this dissertation explored how PLWD experience their local suburban neighbourhoods and what planning practitioners can do to support them. The research then focused on three broad objectives: 1) to investigate everyday outdoor practices of PLWD and how they are shaped by their socio-spatial relationships; 2) to identify barriers and supports to PLWD's mobility; and, 3) to investigate the accessibility of the planning process for PLWD. Using a socio-spatial relational approach, and applying a critical disability lens to Fainstein's (2010) 'Just City' to form a framework for conducting planning research with PLWD, a mixed-methods case study was employed. Participants included seven (7) PLWD from suburban areas in Waterloo Region who were engaged using several methods: introductory and multiple go-along interviews, GPS tracking, travel diaries, experience sampling methods, as well as a field experiment using participant observation and a post-experience interview. The findings are described in three separate manuscripts focusing on each of the objectives. The first manuscript highlights the socio-spatial relational complexities associated with outdoor practices as a PLWD. It was found that PLWD care for themselves in place over time (including the past, present and future); that they care for close others and build interdependencies in place; and encounter with un/familiar others in public spaces is a form of support. This also speaks to the importance of understanding PLWD as complex individuals, disrupting their consistent portrayal in media and academia as dependent (Swaffer, 2014). The second manuscript focuses on what planning practitioners can do to support PLWD, by identifying recommendations to support mobility through land-use, urban design, and wayfinding, as informed by socio-spatial understandings. Finally, the third manuscript found that the open house, a public engagement tool, could be made accessible to PLWD with a few modifications, and considers the implications for using this to make further claims to citizenship for PLWD. This dissertation makes several theoretical, methodological, and substantive contributions to planning scholarship and practice. Overall, this research provides planning practitioners in suburban areas with empirical evidence conducted in a context similar to their own. This could serve as a starting point upon which to begin incorporating dementia-inclusive recommendations in terms of land-use and design, as well as how to alter the planning process itself. Ultimately, the goal must be to change how planning professionals view PWLD, and to work collaboratively with PLWD to build more accessible, inclusive neighbourhoods.


Social Research Methods in Dementia Studies

Social Research Methods in Dementia Studies
Author: John Keady
Publisher: Routledge
Total Pages: 230
Release: 2017-10-06
Genre: Social Science
ISBN: 1315517477

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Traditionally, the most preferred social research methods in dementia studies have been interviews, focus groups and non-participant observations. Most of these methods have been used for a long time by researchers in other social research fields, but their application to the field of dementia studies is a relatively new phenomenon. A ground-breaking book, Social Research Methods in Dementia Studies shows researchers how to adapt their methods of data collection to address the individual needs of someone who is living with dementia. With an editorial team that includes Ann Johnson, a trained nurse and person living with dementia, this enlightening volume mainly draws its contents from two interdisciplinary social research teams in dementia, namely the Center for Dementia Research [CEDER] at Linköping University in Norrköping, Sweden and the Dementia and Ageing Research Team [DART] at The University of Manchester in Manchester, UK. Case examples are shared in each of the main chapters to help ground the social research method(s) in a real-life context and provide direction as to how learning can be applied to other settings. Chapters also contain key references and recommended reading. This volume will appeal to undergraduate and postgraduate students, as well as postdoctoral researchers, interested in fields such as: Research Methods, Qualitative Methods and Dementia Studies.


Design and Covid-19

Design and Covid-19
Author: Rachel Cooper
Publisher: Bloomsbury Publishing
Total Pages: 215
Release: 2024-01-11
Genre: Design
ISBN: 1350266736

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Presenting key examples and case studies of how design has responded to the pandemic, Design and Covid-19 offers lessons and approaches to design for future resilience. Design has a key role to play in not only creating products to ensure safety from the pandemic, but also in the creation of complex systems, new technologies and physical environments that enable us to carry out our lives and protect populations in the future. Design and Covid-19 identifies four key phases of the pandemic to examine how designers developed systems, services, communications and products as part of our response to the crisis, whether at an international, national or community level. Contributors report from a range of international contexts, including countries in Europe, Asia, Africa and Australasia, detailing how countries responded to the pandemic, introduced social distancing and lockdowns, developed test, track and trace systems, implemented new laws and how design and designers responded to the urgent new challenges that the pandemic created. They explore the adaptation of designs as communities searched for new ways of connecting and working through restrictions and social distancing measures, establishing local mutual aid groups and using social media to support each other through the pandemic, and go on to focus on recovery and resilience, analysing the deeper, systemic design response as industries emerge from lockdown. They explore the need to reflect on and investigate key issues in order to understand what we can learn personally, socially, economically and globally from this unprecedented crisis. Drawing upon the expertise of scholars from across the globe, Design and Covid-19 explores a wide range of design disciplines to address the complex societal and global issues highlighted throughout the pandemic, and to inform new ways of building human and planetary wellbeing.