Neurodevelopmental Outcomes In Children With Down Syndrome And Congenital Heart Defects PDF Download

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Congenital Heart Disease and Neurodevelopment

Congenital Heart Disease and Neurodevelopment
Author: Christopher McCusker
Publisher: Academic Press
Total Pages: 216
Release: 2016-05-03
Genre: Science
ISBN: 0128017929

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Congenital Heart Disease and Neurodevelopment: Understanding and Improving Outcomes brings together the work of leading researchers from the U.K., Europe, and the U.S. to provide a comprehensive examination of the causes, risks, and neurodevelopmental and psychological outcomes in children with congenital heart disease. The book includes longitudinal studies which have tracked outcomes from birth through late childhood and explores the emergent phenotype and etiologies, risk, and protective factors that strengthen proposed models. Medical and surgical advances have meant that greater numbers of children with even the most severe congenital heart disease (CHD) now survive well into adulthood. Studies over the past 20 years have suggested certain neurodevelopmental and psychological features are common, with clinical interventions being internationally articulated. The U.K. Belfast Center has developed and evaluated unique early intervention programs to circumvent the common problems discerned and promote optimal adjustment and outcomes. The first edition of Congenital Heart Disease and Neurodevelopment: Understanding and Improving Outcomes describes these programs in detail and outlines promising results obtained by researchers worldwide. Such interventions, together with the U.S. consensus statement (Circulation, 2012) on neurodevelopmental screening, hold great promise for clinical interventions. Features input from leading research experts in the field Describes cutting-edge research on longitudinal studies that link neurodevelopmental phenotypes with cutting-edge neuroimaging studies Discusses the first series of early intervention studies developed in Belfast targeted at key developmental transitions—birth and diagnosis, early childhood, and adolescence Includes clinical implications and action points in each section Features generalizable potential of interventions across other pediatric populations


Neonatal Neurology

Neonatal Neurology
Author:
Publisher: Elsevier
Total Pages: 554
Release: 2019-07-17
Genre: Medical
ISBN: 0444640304

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Neonatal Neurology, Volume 162 in the Handbook of Clinical Neurology, series updates the reader on the latest advances in the study of neurological diseases diagnosed in the fetal and neonatal periods. With recent advances in magnetic resonance imaging, digital electroencephalography recording, and genetic testing and diagnosis, there is expanding awareness relating to early onset neurological conditions and how their early diagnosis can improve prediction of outcome and subsequent neurodevelopmental outcome. This new volume covers diagnosis and management of congenital conditions, including brain malformations, neuromuscular conditions and genetic epilepsies, as well as acquired injury related to peri-partum events, prematurity, critical illness and systemic diseases. Provides an in-depth understanding of the basic scientific research, translational research and clinical consensus across neonatal and fetal medicine Explores how early neurological diagnosis can improve prediction of outcome and how management can improve subsequent neurodevelopmental outcome Features chapters co-authored by two experts, combining expertise in both neonatal and fetal neurology


AN URBAN BIOETHICS APPROACH TO UNDERSTANDING DISPARITIES IN NEURODEVELOPMENTAL OUTCOMES FOR CHILDREN WITH CONGENITAL HEART DISEASE

AN URBAN BIOETHICS APPROACH TO UNDERSTANDING DISPARITIES IN NEURODEVELOPMENTAL OUTCOMES FOR CHILDREN WITH CONGENITAL HEART DISEASE
Author: Colette Gramszlo
Publisher:
Total Pages: 0
Release: 2022
Genre:
ISBN:

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Congenital heart disease (CHD) is the most common birth defect and often resultsin neurodevelopmental impairments and psychological problems which impede educational and occupational attainment and decrease overall quality of life into adulthood. While morbidity and mortality outcomes have improved over the last several decades, non-Hispanic black and Hispanic children continue to experience a disproportionate burden of CHD. An urban bioethics approach to disparities in cardiac neurodevelopmental outcomes necessitates an examination of the context, setting, and structures in which CHD care is delivered. This thesis proposes a model through which access to and quality of cardiac care impact disparities in neurodevelopmental outcomes. The thesis describes an initial evaluation of the proposed model conducted through retrospective record review. Though research funding and hospital resources have historically flowed toward optimizing surgical and other clinical care techniques, results indicate that factors such as poverty and other social determinants of health have a greater impact on many CHD outcomes. An urban bioethics framework asks us to additionally consider the ways in which cardiac care teams act as barriers to high quality care. Findings are discussed in terms of next steps and a proposed qualitative study to further evaluate results.


Gross Motor Skills for Children with Down Syndrome

Gross Motor Skills for Children with Down Syndrome
Author: Patricia C. Winders
Publisher: Special Needs Collection
Total Pages: 0
Release: 2013-12
Genre: Down syndrome
ISBN: 9781606130094

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Revision of: Gross motor skills in children with Down syndrome. 1997.