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Down Syndrome Parenting 101

Down Syndrome Parenting 101
Author: Natalie Hale
Publisher: Special Needs Collection
Total Pages: 0
Release: 2011
Genre: Child rearing
ISBN: 9781606130209

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2012 About.com Readers' Choice Awards Winner: Favorite New Special-Needs Parenting Book 2011 ForeWord's Book of the Year Award Finalist: Parenting category Down Syndrome Parenting 101 is a savvy book for parents, grandparents, teachers, and anyone who shares life with a person with Down syndrome! It's full of uplifting advice and best practices gleaned from the author's personal and professional experiences raising a son, now an adult, and teaching educators and parents how to teach children with Down syndrome to read. Down Syndrome Parenting 101 offers inspired takes on a host of important issues, from learning to recognize and celebrate your child's personality and gifts to finding a great teacher for him, and from insisting your child pull his own weight to giving your child his space as an adult. The author'equal parts mentor, humorist, enthusiast, and realist'takes readers by the hand and walks them through the various life stages, experiences, and people they will encounter with their child including: getting to know and fall in love with your child, interacting with medical professionals, literacy, discipline, school, transitioning, and independence. Chapters are short, a plus for busy parents, and can be read individually or sequentially. Throughout, many characters'the author's son, friends, and students'appear, serving as anecdotal evidence in support of the author's points and adding to the storytelling effect. As an added bonus, the book includes a Foreword by Martha Beck, parent of a child with Down syndrome and author of the New York Times bestseller, Expecting Adam. Turn to this upbeat book for credible, realistic advice and for a dose of bibliotherapy when you need validation and perspective.


Whole Child Reading

Whole Child Reading
Author: Natalie Hale
Publisher: Special Needs Collection
Total Pages: 0
Release: 2016
Genre: Children with mental disabilities
ISBN: 9781606132838

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Discover the keys to teaching children and adults with Down syndrome and other developmental disabilities how to read for meaning. Written for today's busy parents and teachers, this easy-to-use guide explains how to go in through the heart to hook beginning and struggling readers, but then how to teach to the brain; so that learning is fast and permanent. The methods in the book can be adapted for learners of any age who are reading at a third grade level or below. If you have at least five minutes a day to work on reading, you have enough time to get started using Whole Child Reading!


Up, Not Down Syndrome

Up, Not Down Syndrome
Author: Nancy M. Schwartz
Publisher: Modern History Press
Total Pages: 126
Release: 2020-04-01
Genre: Medical
ISBN: 1615994629

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Up, Not Down Syndrome is a love letter and a map. Experience how it feels to think your life is over after having an unlovable baby. At first the loss seems impossible to overcome. Alex becomes the author's greatest teacher. Love is stronger than fear. Everyone has gifts. The book consists of three parts: the story, the lessons Alex taught the writer and Alex's perspective. Up, Not Down Syndrome is a promise to stay positive, no matter what: up, not down. Nancy's journey gets to the core of what it is to be human: * Explore what it feels like to think life, as you know it, is over. * Discover the fierce love, joy and peace a baby diagnosed with Trisomy 21 (Down syndrome) brings. * Learn the lessons this child taught his mom. * Understand the gift this baby brings to our world. * Realize the depth of the love this family has for the child. "A beautiful, honest account of not just accepting--but embracing--the unknown. Nancy shows us the blessing of an unexpected gift and the enormity of love." --Sara Byala, Ph.D. "This is a wonderful book to remind you that the joy of love is possible in unexpected places when you open your heart to it." --Barbara Taylor Bowman, Irving B. Harris Professor of Child Development "A moving and wise story of how a family navigates through hope, loss, learning and, most of all, love." --Rabbi David Wolpe, author of David: The Divided Heart "The truth and beauty of Nancy Schwartz's words tell an ongoing story of love, learning and the power of acceptance. All can learn from this family's boundless hope and from their source of joy and strength: Alex." --April Beard, Music Educator and Cellist Learn more at www.UpNotDownBook.com From Modern History Press www.ModernHistoryPress.com


Fasten Your Seatbelt

Fasten Your Seatbelt
Author: Brian Skotko
Publisher: Special Needs Collection
Total Pages: 0
Release: 2009
Genre: Brothers and sisters
ISBN: 9781890627867

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Even the closest brothers and sisters don't always get along or understand each other. Add a disability like Down syndrome to the mix, and that sibling relationship gets even more complicated, especially for teenagers. Fasten Your Seatbelt is the first book written exclusively for teens with a brother or sister with Down syndrome. In an easy-to-read, question & answer format, it tackles a broad range of their most common issues and concerns. Nearly 100 questions--all posed by teen siblings--are grouped into the following categories: Facts and stats about Down syndrome How people with Down syndrome learn Handling parent and family conflicts Dealing with your sibling's frustrating behaviors Managing uncomfortable situations Sorting out your feelings Becoming an advocate What the future holds for you and your sibling Finding local and national resources Thoughtful, knowledgeable answers are provided by Brian Skotko, the brother of a young woman with Down syndrome, and Sue Levine, a social worker focused on sibling issues for the past 30 years. Fasten Your Seatbelt gives teens the green light to explore their own feelings and questions about their sibling with Down syndrome and how their relationship may change in the future. Wondering whats on their minds? Here are a few sample questions from the book: Why does my brother always have temper tantrums? How can one extra chromosome make someone so different? Can my sister with Down syndrome marry someday? Will my brother be able to live on his own as an adult?


Twins 101

Twins 101
Author: Khanh-Van Le-Bucklin
Publisher: John Wiley & Sons
Total Pages: 214
Release: 2008-11-03
Genre: Family & Relationships
ISBN: 0470447427

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"A must-read for expectant or multitasking mothers of multiples by an academic pediatrician and mother of twins, Twins 101 provides practical tips and wise words in a readable style that fits into the fast pace of these mothers’ lives." —Theodore Sectish, MD, associate professor of pediatrics, Harvard Medical School; program director, Children’s Hospital Boston Dr. Le-Bucklin's new parenting book is the first by a pediatrician who is also a mother of twins. No other pregnancy and parenting book for multiples offers this unique and much-needed perspective. Twins 101 features practical advice and well-researched information in an easy-to-read format. From maintaining a healthy twin pregnancy to meeting the daily challenge of caring for twins, Twin 101 guides families through each stage with insightful tips, practical advice, useful resources, and inspirational stories.


Unexpected

Unexpected
Author: Alison Piepmeier
Publisher: NYU Press
Total Pages: 195
Release: 2021-02-23
Genre: Social Science
ISBN: 1479816639

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What prenatal tests and down syndrome reveal about our reproductive choices When Alison Piepmeier—scholar of feminism and disability studies, and mother of Maybelle, an eight-year-old girl with Down syndrome—died of cancer in August 2016, she left behind an important unfinished manuscript about motherhood, prenatal testing, and disability. In Unexpected, George Estreich and Rachel Adams pick up where she left off, honoring the important research of their friend and colleague, as well as adding new perspectives to her work. Based on interviews with parents of children with Down syndrome, as well as women who terminated their pregnancies because their fetus was identified as having the condition, Unexpected paints an intimate, nuanced picture of reproductive choice in today’s world. Piepmeier takes us inside her own daughter’s life, showing how Down syndrome is misunderstood, stigmatized, and condemned, particularly in the context of prenatal testing. At a time when medical technology is rapidly advancing, Unexpected provides a much-needed perspective on our complex, and frequently troubling, understanding of Down syndrome.


Life As We Know It

Life As We Know It
Author: Michael Berube
Publisher: Vintage
Total Pages: 306
Release: 1998-03-31
Genre: Family & Relationships
ISBN: 0679758666

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When Jamie Bérubé was born with Down syndrome in 1991, he was immediately subject to the medical procedures, insurance guidelines, policies, and representations that surround every child our society designates as disabled. In this wrenching yet ultimately inspiring book, Jamie's father, literary scholar Michael Bérubé, describes not only the challenges of raising his son but the challenge of seeing him as a person rather than as a medical, genetic, or social problem.


The Down Syndrome Diary

The Down Syndrome Diary
Author: Jamie Freeman
Publisher: Independently Published
Total Pages: 250
Release: 2021-03-17
Genre:
ISBN:

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If ever a book had a soul, it would be the one you're reading about right now. In 2013, when her son was just six months old, a new mama walked into a bookstore and bought a beautiful, leather-bound journal. Inside she proceeded to pour her soul out and tell her story. What story? The story of what it's truly like to have a child with Down syndrome...the story she wished she could have read the day she found out she would be part of that club. She then packed up the journal and sent it off to her friend many miles away in northern Ontario, Canada. Social media outlets had brought them together, and the sharing of this tangible journal began to bring them even closer. The spirit of the book began to grow as the diary embarked on a journey through twenty-six homes in four different countries finally making its way back into the hands of that original mama.As the stories were told and the torch was passed, The Down Syndrome Diary was born. A journal filled with words, pictures, tears, and even a few wine stains became the greatest gift someone could receive upon hearing that their child has Down syndrome. Opening these pages will give you a glance into the amazing work of art that journal became.Enjoy!


Windows Into Heaven - Stories Celebrating Down Syndrome

Windows Into Heaven - Stories Celebrating Down Syndrome
Author: Stacy Tetschner
Publisher:
Total Pages: 140
Release: 2008-08-01
Genre: Art
ISBN: 9780615221236

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Thirty families share their stories and positive insight into what someone with an extra chromosome--someone with Down syndrome--can bring into the lives of all they touch.


A Different Kind of Perfect

A Different Kind of Perfect
Author: George Michael Lane
Publisher: Gom Paraclete Press
Total Pages: 0
Release: 2008-02
Genre: Down syndrome
ISBN: 9781932966541

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A Different Kind of Perfect is a story about parents choosing a child with Down syndrome and the implications of that choice. It's a story about faith and blessings in an imperfect world that craves and idealizes perfection. It's also a story about finding God's perfection through love. Written with an honest voice, George Michael Lane draws the reader into his family's personal story. The struggle with whether or not to terminate the pregnancy is honest and will hit a nerve with a contemporary audience.